So today we met with a nutritionist that works in the Pediatric GI clinic where my daughter is being treated. That was a very informative and a helpful resource. We both came home with a thick Celiac disease and gluten free diet booklet. They also sent her home with a huge bag of Pediasure samples due to her being extremely low weight for her height. Also, I was able to obtain a copy of the pathology report, and I had thought the Dr. had said she was a Marsh 3b, but I must of misunderstood because the pathology report says 3C. Does that mean complete villous atrophy? I also thought it was interesting that they measured her digestive enzymes in her tissue samples. I didn't know they did that. She was severely deficient in all but one of those.
mom2JMember Since 23 Apr 2014
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11 May 2014 - 05:55