My daughter was diagnosed with Celiac disease about 4 months ago. At the time of diagnosis, her Tissue transglutenase antibody was 120. Her small bowel biopsy came back very + for celiac disease. Fast forward 4 months later and adherence to a strict gluten free diet, and her antibody level has only dropped to 100. So 20 "points" so to speak. When the nurse called, I was under the impression that meant she was still in contact with gluten and that if she is adhering to a strict gluten free diet, we need to double check some more where this might be coming from. I'm racking my brain unsure where this mystery gluten is getting into her system. And I feel horrible that after 4 months of her completely changing everything about her diet, this only dropped 20 points. My question is, is it unusual to have only dropped this much in four months, or is it possible that it could just take some time? I will be going over all ingredient lists again in all the food she consumes as well as soap and hair products etc... but we have been so very careful about this. And I do want to add that she has felt so much better since going gluten free. She has gained 10 pounds already since diagnosis (in her case this was needed) which tells me something is going well.
Thanks in advance for any advice/help with this.