Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 04 May 2014
Offline Last Active May 20 2015 12:30 AM

Posts I've Made

In Topic: I'm Cold!?

16 November 2014 - 12:03 AM

I have been wondering the same. 


For the first time in my life, I have 1) not been suffocating all the time, and 2) my body temperature went from 97.4 average lifelong, to NORMAL at 98.6!


I have found that it is very strange to be getting more healthy as I age.  I went off wheat, and starting taking a lot of missing minerals.  I got better.


On the other hand, my allergies are worse this fall...but that could be the weather...very strange here in California, actually having a little rain!

In Topic: How Do You Describe Celiac Disease When People Ask You "what's That?...

08 June 2014 - 04:25 PM

Celiac is a disease from hell that pretty much equates to people that don't have it eating rat poison.  That is what gluten does to a celiac. That's my story and I'm sticking to it!


 All joking aside, it really depends who you are talking to.  Are they going to understand the constant medical terminology associated with Celiac and all your other related health issues if you have them?


I worked in hospitals for 16 years so I have a lot of friends that understand all the medical related crap.  I get into details with them  All by other friends I try to explain the simplest way possible.  Use words like allergic, medically necessary, explain just where gluten is found and what it does to your system. You don't have to get graphic, they don't need to know that you can finger paint with your poo and hit all colors of the rainbow in one day, but just the basics. I don't have a specific speech all laid out, but I hope that helps a little. 


Pretty sure someone with a more vast experience with this will give the most perfect answer.  I will also be awaiting to see what they have to say.


Good Luck!


Oh, Bethie...you made my day!


I am still laughing!!!



All fun aside, I say "I have a disease that makes wheat, rye, barley and oats burn the lining of my somach like acid, and makes me sick for weaks over one crumb. Can you help me?"


I don't even need to name the disease.

In Topic: Spacey/disconnected All The Time?

04 June 2014 - 11:27 PM

Hi Simon,


Welcome to the forum! :)


You'll probably see people refer to their spaceyiness type symptoms as brain fog here.  That's generally what people call it.  And look, now you have two repsonses! :)


And I'm #3...I have had severe Brain Fog for the last 19 years, Chronic Fatigue, Fibromayalgia, IBS, Anxiety, Depression, and a dozen other things going back 53 years to when I was 6 years old!


I have been Gluten Free 14 days, and have the best, most alert mind, and feeling of happiness since day 4.  Not having the Fog, the Tireds, make it worth living without gluten. 


I look forward to being really well...evidently, like others here on the forum, I have never known what 'well' feels like.


You are looking at your most likely answer already...get tested, and then get off the gluten!

In Topic: Digestive/urinary Problems

04 June 2014 - 11:14 PM

Did you begin taking any vitamins?  Vitamin B colors the urine more yellow.  I know this from personal experience and speaking with a doctor about it.  Have you been tested for celiac?  There are over 300 symptoms and some of yours may be a fit.







I've been trying to find a list of the 300 symptoms, but can't get more than the obvious, standard ten or so list.

Can you tell me where to get the list?



In Topic: Endoscopy And Diagnosis. Why Or Why Not?

04 June 2014 - 09:45 PM

Having just turned 59, and being alone...no spouse, kids or family...I am looking at having to get healthy enough to live on my 5 acres in SoCal, and raise my own food indefinately, and hopefully falling over in my greenhouse, and not being found until it's far too late to do anything for me.


That means a living trust, orders to be taken of at home...which is cheaper than nursing homes, and a paid off home to use as a checking account for my last days.  That and a sincere belief that YHVH will prevent me from acquiring any more disabilities than I already have will keep me from a half-life in a nursing home, as SoCal is already letting people die at home now.  Another 20 years, and the state will be helping us exit this life quickly, I have no doubt.


A full Diagnosis is valuable if you need it to get appropriate treatment in the future, and most people do need it for that, not to mention for warning your family about their possible genetic link.

Celiac.com Sponsors: