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teebs in WV

Member Since 05 Dec 2005
Offline Last Active Oct 20 2009 05:12 PM
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Posts I've Made

In Topic: Are There Always Blisters?

05 January 2007 - 05:22 PM

If I were you I would ask for another biopsy. Even though you are gluten-free, it can take a long time for it to get completely out of your skin (as you mentioned). I was diagnosed via skin biopsy in Oct. 2005, immediately began gluten-free diet and started dapsone at the same time. I have tried many times to go off of dapsone but I still break out after a few days.

In Topic: Anyone Diagnosed With Primiary Biliary Cirrhosis (pbc)?

05 January 2007 - 04:59 PM

Thanks Dee. I found the PBCers website and actually found a doctor that is in the same GI group that I go to. I am going to ask to be referred to him. I have never been tested for any vitamin deficiences or osteoporisis. I asked once and was told I was too young to worry about it (AAAAAAAAAAAHHH). I have done so much research on my own on PBC and based on what I have read I definitely need to find a specialist that has seen this disease before.

I am curious - have you had the itching that is common with PBC? I have been going crazy itching again and have blamed it on Celiac Disease - until I found out a few months ago that it is very common with PBC. My hands and feet have been itching like crazy, and for the past few days I have itched everywhere - to the point I am ready to lose my mind. I know there is medication they can give to relieve the PBC associated itching, but of course my GI didn't give me that. He did give me Ursodiol and I started taking it on the 2nd.

I am so glad that I have someone else that I can talk to about this!

In Topic: Chex Mix

05 January 2007 - 04:52 PM

I made a huge batch for Christmas. My great-aunt always made Chex Mix for Christmas (her own special concoction) so it has been a family tradition for years. I took over the duty when she passed away in 1993. Last Christmas - my first being gluten-free - I didn't make it. This year, I decided I would try and bought the corn and rice crunch 'ems that everyone else has mentioned. I added peanuts, glutino pretzels, barbecue seasoning (dried powder), and a little sugar (my aunt always used Life cereal and that was my favorite part - I always used to pick out the Life and just eat that!). EVERYONE that ate the mix that I made this year loved it and had no idea that it was gluten-free. It was my greatest accomplishment this Christmas season and it felt so good to be able to revive an old tradition.

In Topic: Dermatologist

05 January 2007 - 04:45 PM

Based on my personal experience, a knowledgeable dermatologist is a must. I was very lucky that my derm took one look at me and was very certain that I had DH before he even did the biopsy. I had no GI symptoms at all - just the itchy blisters.

I suggest searching the internet for dermatitis herpetiformis + dermatologist + your state and see if you can find one that way. Or if you provide the city or state someone may be able to offer more suggestions. Hope this helps.

In Topic: Grand Cayman

02 January 2007 - 05:58 PM

Would you mind sharing the name of the resort/hotel where you stayed?

Thanks,

Tracy