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Member Since 14 Dec 2005
Offline Last Active Jul 20 2007 07:28 AM

Topics I've Started

Why Did I Have To Reregister?

16 July 2007 - 01:56 PM

my computer was having trouble and i had to take it in to the shop. after getting it back, i was not able to log on to this site. when i requested a new password, i was told there was no one on the board registered under my name. i re-registered, and was logged on with my original screen name? anyone know what's up? i didn't have to put my info back in for my signature, either, it just popped back up when i re-registered.

I Made Apple Cheese Danish!

29 May 2007 - 09:48 AM

i made apple cheese danish on saturday and it turned out so good! i had never made this even before my girls were gluten free. i get so excited everytime we make something new and it turns out.

We Made Sweet Rolls!

15 May 2007 - 08:12 AM

i finally tried a gluten free sweet roll recipe yesterday---and they turned out so good!! i used robin ryberg's recipe. these rolls were even made in a square pan-----they didn't have to be put in individual muffin tins to keep their shape. the girls made cream cheese frosting to put on them. i was so excited that they turned out so well!!

Could There Ever Be A "safe" Wheat For Celiacs?

04 May 2007 - 11:09 AM

i don't know if there is any hope for safe wheat---but i found this article interesting.

Wheat ancestors lack the gluten immunogenic factors of modern wheat]

Mapping of gluten T-cell epitopes in the bread wheat ancestors: implications for celiac disease [In Process Citation]

Gastroenterology 2005 Feb;128(2):393-401 (ISSN: 0016-5085)

Molberg O; Uhlen AK; Jensen T; Flaete NS; Fleckenstein B; Arentz-Hansen H; Raki M; Lundin KE; Sollid LM
Institute of Immunology, Rikshospitalet, University of Oslo, Oslo, Norway. oyvind.molberg@medisin.uio.no.

BACKGROUND AND AIMS: Celiac disease is a prevalent disorder characterized by a chronic intestinal inflammation driven by HLA-DQ2 or -DQ8-restricted T cells specific for ingested wheat gluten peptides. The dominant T-cell responses are to epitopes that cluster within a stable 33mer fragment formed by physiologic digestion of distinct alpha-gliadins. Celiac disease is treated by excluding all gluten proteins from the diet. Conceivably, a diet based on baking-quality gluten from a wheat species that expresses no or few T-cell stimulatory gluten peptides should be equally well tolerated by the celiac patients and, importantly, also be beneficial for disease prevention. METHODS: To identify baking quality, harmless wheat, we followed the evolution of the wheat back to the species that most likely have contributed the AA, BB, and DD genomes to the bread wheat. Gluten were extracted from a large collection of these ancient wheat species and screened for T-cell stimulatory gluten peptides. RESULTS: Distinct differences in the intestinal T-cell responses to the diploid species were identified. Interestingly, we found that the fragments identical or equivalent to the immunodominant 33mer fragment are encoded by alpha-gliadin genes on the wheat chromosome 6D and thus absent from gluten of diploid einkorn (AA) and even certain cultivars of the tetraploid (AABB) pasta wheat. CONCLUSIONS: These findings have implications for celiac disease because they raise the prospect of identifying or producing by breeding wheat species with low or absent levels of harmful gluten proteins.
(Medscape abstract)


Ttg Testing For Follow-up

05 March 2007 - 10:30 PM

larry mac suggested we start a new thread on this subject---and i thought it was a good idea. our plan is to test our girls at least every 6 months to see how well we have done on the diet. we have tested sooner when we felt it was needed.

it seems like there are people that question foods that do not give them symptoms, but could possibly be cross-contaminated. i keep wondering why some of these people don't have follow up Ttg tests to see if there is any damage being done.

our ped gi told us that he had a patient that was eating a particular food, but was not sure if it was safe. i think the child liked it, so they probably didn't want to give it up unless they had to. they did follow up blood work and discovered that the Ttg levels were still a problem so they knew that the bars were not safe. obviously, you would have to be certain about the other foods in your diet for this to work.

this may not be a good idea in all situations, but it seems like it could be a lot of help when it came to the question of whether or not some of these foods with CYA statements are safe or not.

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