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simply

Member Since 03 Feb 2004
Offline Last Active Mar 03 2004 07:57 AM
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Topics I've Started

Confused By Test Results

19 February 2004 - 02:52 PM

I'm thinking that at this point, it doesn't look like I have
celiac. My test results that I have so far are as follows:

Gliadin IGA Antibody: Negative (12.6 --- Negative is anything under
20 - Two weeks off gluten at the time)

Gliadin IGG Antibody: Weak Positive (29 --- Weak Positive is between
20 and 30 - Two weeks off gluten at the time).

Antiendomysial Antibody (EMA): Negative (was not able to get an
exact value even though I asked for it - After five weeks of LOTS of gluten, every day.)

Antitransglutaminase (tTG): I don't have this one yet, but based on
what I've read, if the EMA is negative, the tTG will probably be
negative as well. - After five weeks of LOTS of gluten, every day.

I would think that maybe I have IGA deficiency, except that I
obviously have some IGA...I'm in the middle of the normal range for the IGA Gliadin test.

I don't know what to think about all this. On the one hand, I'm
happy because I really like bread and it looks like I can keep
eating it. However, my having Celiac explained so much. I was
thinking that if this was the root cause to all my gastro-intestinal
problems, maybe I could give up gluten and then get some energy
back. Maybe I could stop having diarrhea and floating stools. Maybe
I could actually get my HDL cholesterol up (the good kind.)

Now, it seems like I'm back at square one, with no bloody clue as to
what's wrong. After 13 years of Chronic diarrhea, I'm just a little
tired. And with my moving in four weeks, it's not like I have a lot
of time to do all the sleuthing with the doctors that I have now.
I'll have to go DC, get a whole new slew of doctors, and on and on.

So, do I have to be on gluten for an accurate Total IgA test?

This is incredibly frustrating. Any insights will be greatly appreciated.

Simply.

P.S. I thought I posted a similar thing...however, I think I messed it up. Anyway, it's not showing up. If I did, you can ignore this.

Bad Stomach Pains

03 February 2004 - 07:37 PM

Hi...

I've not yet been diagnosed with Celiac, although I'm pretty sure that I have it. I had no idea what it was until my doctor ran a blood tests for gluten antibodies a few weeks ago thinking that it may be the cause of a wide variety of poo problems.

Anyway, he let me know that one of the tests cam back as a weak positive, that I might have gluten sensitive enteropathy, and that I should see a gastroenterologist. (Note: I chose the two weeks before the blood test to do atkins...as a result, I had NO gluten during those two weeks - with the exception of a small amount of soy sauce.)

Anyway, while my doctor is out of town, I've been eating a lot of bread and pasta because everything I've read says that you should be eating gluten while they try to diagnose you...otherwise, everything comes up false negative.

Right now, I'm having unbelievable stomach pains....they are not really localized...instead they're pretty much all over. Also, my bones hurt, my hair is falling out, blah, blah, blah. The weird thing is that my symptoms are different before going gluten-free for those two weeks than they are now.

My questions:

1. Is it normal to have different symptoms after going gluten-free for two weeks.
2. How much gluten must I eat on a daily basis to make sure I don't get a false negative (couple crackers or a plateful of pasta plus a few slices of garlic bread)?
3. For how many weeks before the blood test must I be eating gluten? Before the biopsy?
4. Is it normal to be obese and have this thing? If it is possible, HOW?
5. Must you fast before taking the gluten anti-bodies blood test (the first time I took it, I had to because of some other blood work that was being done.)
6. Do you have to stay in the hospital to have the tube slid down your throat for the biopsy...or do you have to be in the hospital at all...do they give you drugs if you have a nasty gag reflux.

Yeah, I have lots of other questions, but that should be enough for now.

Thank you all so much...

Simply