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mannabbe

Member Since 30 Dec 2003
Offline Last Active Aug 15 2008 05:17 PM
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Posts I've Made

In Topic: Fragile

13 June 2004 - 06:27 AM

Libby,
I think that for many of us, the emotional toll of gluten ingestion is unavoidable. A woman doctor friend of mine told me that she considers gluten to behave as a "neurotoxin" for many of us. I've been gluten-free for 3 years, and if I have a bit of gluten accidently, I'll be on the verge of tears for 24 hours. The woman who sits next to me a work has celiac and she has the exact same experience.

It helps me to know that it's the gluten doing it - it's not my life or my job or my relationships. It's just the dumb gluten. I always drink lots of water on those days , and if it's a work day, I start out the day with caffeine - which seems to counter the dull headedness of gluten.

take care and know you aren't alone!
Laurie

In Topic: Hi From Me

17 April 2004 - 04:30 PM

Terri,
I live in Seattle - and I'd love to know the name of the restaurant you went to where the chef came to your table 4 times! I highly recommend Wild Ginger downtown - the majority of their menu is either already gluten free, or can easily be made gluten free. Also, try to make time for a trip to Flying Apron Bakery in the U District. You won't believe their gluten-free, vegan chocolate cupcakes.
happy travels, Laurie

In Topic: At A Loss

16 April 2004 - 07:39 PM

Sara, Many of us have recurring depression issues that are directly related to gluten ingestion - the woman who sits next to me at work is also celiac. Whenever either of us has a gluten exposure, that person is extremely depressed (i.e. on the verge of tears) for about 24 hours.
I encourage you to tell your 3 year old that you have figured out what's wrong and that you will get better. I was diagnosed when my daughter was 4, and my recovery took longer than most for reasons I won't get into in this post. When she was 6 she told me that she thought I was going to die. I still get tears in my eyes thinking about the burden my poor girl carried around with her for those 2 years

I now feel better than I have in my entire life, and I hope that you can say that in 6 months too!
Laurie
(A year after I was diagnosed, my daughter was diagnosed too)

In Topic: Hi From Me

16 April 2004 - 07:25 PM

Gillian,
I agree with your statements about "allergy" not representing our auto-immune condition - but what out Terri, who is eating out in restaurants all week? That's where the rubber hits the road for me - what do I say in a restaurant? My experience is that restaurant staff snap to attention when they hear the word "allergy" and that "gluten intolerance" and (rather controversially) "gluten allergy" are the operative words in the restaurant world.
If any of you have had experience making the whole "eating out" scene work in other ways, I would love to hear about it.
Terri, I just survived 10 days away from home and (miraculously!) returned home well. Yet another disaster averted - at least that's how it feels.
Laurie

In Topic: Maui, Hawaii

15 April 2004 - 08:52 PM

Heather,
It would have been fun to run into you on Maui! Here's a summary of my trip, which contains different info from Heather's, for the most part:

Near the Airpot:
"Down to Earth" is a health food store on Dairy road, across from the large shopping center where Borders Books is located. This store, and Mana Foods in Paia, are the best health food stores on Maui and I purchased all my gluten-free stock foods at these two locations. There is a smaller Down to Earth in Lahaina as well (downtoearth.org)

Kaanapali Beach:
My favorite restaurant on Maui is the Hula Grill. It was literally the only restaurant I went to where they had heard of gluten intolerance. We had late lunches / early dinners here 3 times (and I have a 7 year old, so it's obviously kid friendly). Not cheap though.

Lahaina:
Maui Taco is walking distance from the Lahaina Down to Earth grocery store, and is a fab place to get rice and beans and guacamole (adn cheap!)
Compadres is a Lahaina mexican restaurant that also had surprisingly good food (e.g. grilled fish wrapped in lettuce leaves instead of tortillas!)

Kehei
We ate at the Sansei restaurant twice - it has quite a fine reputation locally, and we had a 1 hour wait the first time we went. The 2nd time we went at 5:30 (when it opened) and found out they give a 25% discount for people who arrive between 5:30 and 6:00. Probably the best japanese restaurant I've ever been to (sanseihawaii.com).

My eating habits changed drastically for this trip - I had fruit for breakfast, whatever was around for lunch (I hauled rice cakes and hazelnut butter around in a cooler), and then splurged on an early dinner. We found grilled fish EVERYWHERE, so I know you all can make this trip work.

In addition to gluten, I also have to avoid dairy and corn and soy - so if I can enjoy 10 days on Maui, you probably can to!

Mahalo and Aloha! Laurie