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Member Since 07 Jan 2006
Offline Last Active Jul 26 2011 04:57 PM

#324614 The Lyme Disease Thread

Posted by on 12 July 2007 - 08:27 AM

I have recently made a lot of progress in treatment ... this is for the encouragement of those just seeking treatment ...

When all this started, I couldn't read a newspaper article, yet I used to love to read Victorian novels with all their large words and flowery language. I also didn't understand humor ... at all.

Just within the past couple days, I've been able to pick up books again and read a chapter at a time. This is a HUGE change. The brain is definately working better.

So is the body ... I don't spend nearly as much time lying down as I used to. Even the monthly Herxhemer reaction (the killing off of the bugs cycles and monthly you get significantly sicker as the bugs are killed in greater quantity) has lessened significantly. I used to need help walking during a herx ... now I can go about my normal days, with an increase in symptoms, but still somewhat functional. I need a lot of rest, but I used to be bedridden by them.

I encourage all of you to look for what's wrong, it's just not normal to be sick, no matter how normal your doctors try to convince you that it is. The fact is, they think you're exaggerating.
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#323578 The Lyme Disease Thread

Posted by on 09 July 2007 - 12:09 PM

If you think you might have Lyme, you will want to be tested by IGeneX. It's the only lab that does a complete Lyme test (Western Blot) and since all they do is test for Lyme, their tests are more sensitive than the local labs who don't do it as often. I called IGeneX and had a test kit sent to my house. I took the kit to my doctor and asked for the test to be done (it's a blood draw). Then my doctor sent it to the lab.

When you get the results, you need to ask for a copy of them. The CDC has set standards for tracking purposes, but they were not intended to be used for diagnostic purposes. The problem is that so many doctors are inexperienced in treating Lyme that they use the CDC standards.

For diagnosis, you will need to see a Lyme specialist. There is a lot of information on www.ILADS.org.
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#323577 The Lyme Disease Thread

Posted by on 09 July 2007 - 12:01 PM

This symptom list is copied from www.canlyme.com. If you have 20 or more of these symptoms, you should be tested for Lyme.

Symptoms of Lyme Disease
  • The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
  • Rash at site of bite
  • Rasheson other parts of your body
  • Rashbasically circular and spreading out (or generalized)
  • Raised rash, disappearing and recurring
    • Head, Face, Neck
  • Unexplained hair loss
  • Headache, mild or severe, Seizures
  • Pressure in Head, White Matter Lesions in Head (MRI)
  • Twitching of facial or other muscles
  • Facial paralysis (Bell's Palsy)
  • Tingling of nose, (tip of) tongue, cheek or facial flushing
  • Stiff or painful neck
  • Jaw pain or stiffness
  • Dental problems (unexplained)
  • Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose
    • Eyes/Vision
  • Double or blurry vision
  • Increased floating spots
  • Pain in eyes, or swelling around eyes
  • Oversensitivity to light
  • Flashing lights/Peripheral waves/phantom images in corner of eyes
    • Ears/Hearing
  • Decreased hearing in one or both ears, plugged ears
  • Buzzing in ears
  • Pain in ears, oversensitivity to sounds
  • Ringing in one or both ears
    • Digestive and Excretory Systems
  • Diarrhea
  • Constipation
  • Irritable bladder (trouble starting, stopping) or Interstitial cystitis
  • Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)
    • Musculoskeletal System
  • Bone pain, joint pain or swelling, carpal tunnel syndrome
  • Stiffness of joints, back, neck, tennis elbow
  • Muscle pain or cramps, (Fibromyalgia)
    • Respiratory and Circulatory Systems
  • Shortness of breath, can't get full/satisfying breath, cough
  • Chest pain or rib soreness
  • Night sweats or unexplained chills
  • Heart palpitations or extra beats
  • Endocarditis,Heart blockage
    • Neurologic System
  • Tremors or unexplained shaking
  • Burning or stabbing sensations in the body
  • Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
  • Pressure in the head
  • Numbness in body, tingling, pinpricks
  • Poor balance, dizziness, difficulty walking
  • Increased motion sickness
  • Lightheadedness, wooziness
    • Psychological well-being
  • Mood swings, irritability, bi-polar disorder
  • Unusual depression
  • Disorientation (getting or feeling lost)
  • Feeling as if you are losing your mind
  • Over-emotional reactions, crying easily
  • Too much sleep, or insomnia
  • Difficulty falling or staying asleep
  • Narcolepsy, sleep apnea
  • Panic attacks, anxiety
    • Mental Capability
  • Memory loss (short or long term)
  • Confusion, difficulty in thinking
  • Difficulty with concentration or reading
  • Going to the wrong place
  • Speech difficulty (slurred or slow)
  • Stammering speech
  • Forgetting how to perform simple tasks
    • Reproduction and Sexuality
  • Loss of sex drive
  • Sexual dysfunction
  • Unexplained menstral pain, irregularity
  • Unexplained breast pain, discharge
  • Testicular or pelvic pain
    • General Well-being
  • Unexplained weight gain, loss
  • Extreme fatigue
  • Swollen glands/lymph nodes
  • Unexplained fevers (high or low grade)
  • Continual infections (sinus, kidney, eye, etc.)
  • Symptoms seem to change, come and go
  • Pain migrates (moves) to different body parts
  • Early on, experienced a "flu-like" illness, after which you have not since felt well.
  • Low body temperature
  • Allergies/Chemical sensitivities
  • Increased effect from alcohol and possible worse hangover

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#310533 For All Nesquik Lovers. . .

Posted by on 02 June 2007 - 07:14 AM

I eat things made on shared equipment.

I watch for a reaction ... and if something causes a reaction, I don't eat it anymore.

I know some people don't want to do it that way, which is fine. This method wouldn't work for someone who didn't react to small amounts of gluten.

Nesquick said the product had no gluten ... possible contamination. Pretty much everyone says that. We have a sue-happy society, I'd say that, too if I manufactured food.
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#288920 Having A Scary Episode Of Vertigo

Posted by on 08 April 2007 - 09:37 AM

Not fun but I would not recommend self diagnosing or really listening to me for that matter. Get to a Dr. and a spcialist. Take care. :)

I agree. Do your research so you understand the doctors and can participate in the diagnosis. I don't like medications that hide symptoms ... I'd much rather find the CAUSE!

I get vertigo so bad I need support (hubby's arm or kid's shoulder) to walk. Mine is from Lyme Disease, so I know the source, it's a common symptom, and I'm treating the cause.

Keep looking for what's causing yours!
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#281411 Yogurt

Posted by on 18 March 2007 - 02:44 PM

You can always add your own flavors to the plain stuff. Lemon, vanilla, berries, applesauce, etc. Sweeten with Stevia for an even healthier yogurt. If I recall correctly, the plain yogurts are cheaper too.

One of my daughters likes the plain with nuts and honey or maple syrup. The honey and maple are a better sugar and she uses less than the sugar that would be added.

Plain yogurt is also good with frozen blueberries ... if you mix them in while they're frozen, it's like dessert. I use plain kifir with berries, too.
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#271072 Could It Be Something Else?

Posted by on 18 February 2007 - 01:16 PM

If you were diagnosed with a positive biopsy, you have it!!! Sometimes celiacs have a delayed reaction to glutening and sometimes they become more hypersensitive with a small amount. It's like when you're getting a lot of gluten, your body can't do anything about it, but when you get a small amount, the body wants to eliminate it immediately!

My first guess is that you're getting hidden gluten from somewhere.

My second guess is that you need to cut out dairy until you're healed.
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#269787 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 14 February 2007 - 02:27 PM

:lol: :lol: wheelbarrow :lol: :lol:

:lol: :lol: :lol:

Funny how men call them jewels ... :lol: :lol:
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#269786 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 14 February 2007 - 02:21 PM

am lost and confused as to all of this but am still smiling here and wasting time on computer, as always. :lol:

Maybe the advice was "lighten up, get a life!" ;) (No, I wasn't "there" I'm just basing that on the "quite the opposite" comment) Good to see your funny side, gfp!!! :lol: :lol: :lol:
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#260621 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 21 January 2007 - 05:48 PM

If I HAD to wake up looking like someone else!! ROFL :lol: Miss Iceland? I didn't know there were brunettes in Iceland?!! Brunette must be the "new blonde"!!!

I may have to dye my hair darker ... I usually go very blonde in the summer, but darken a bit in the winter because I'm so pale. But with the antibiotics I'm on for the next couple years :ph34r: , I'm not allowed to go in the sun without #35 .... Brunette, wouldn't that throw everyone for a loop?!!

I agree, we need a picture of the Goose.
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#260554 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 21 January 2007 - 03:23 PM

I'll get Richard's List started for when he returns:Angelina

So, you think Richard likes brunettes?!
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#238218 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 22 November 2006 - 05:19 PM

I think your mojos have all returned and you have to much brain fog to realize it!!!! You are too funny to have missing mojos!!!

Patti, I grew, too, but not to where I was before kids ... :( Used to be a solid C, now I barely fill out a B. If I had any fat on my stomach, I'd have it transferred ... :lol: I've used masking tape, but duct tape?? Ouch! And what fills out the bottom part that you've taped up?
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#212234 Dizziness, Nausea, Blood Disorders

Posted by on 02 October 2006 - 02:54 PM

Yes, I'm not dizzy as I've gone gluten-free, though I have had some dizziness on occassion due to an adrenal fatigue problem I'm having.
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#212185 Dizziness, Nausea, Blood Disorders

Posted by on 02 October 2006 - 01:51 PM

I get so dizzy from gluten I sometimes feel like it would be unsafe for me to drive.
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#211937 The Funny Pages - Tickle Me Elbow - The Original

Posted by on 02 October 2006 - 07:44 AM

I was just thinking it was awfully quiet around here without you today!!

Refrigerators .... ugh. In our old house I had one of those nice, large GE built-in Monogram refrigerators. This house is 90 years old and has to be the coolest house I've ever lived in, but needs a new kitchen in a very bad way.

We have two rental properties. When we bought the second one a couple months ago, we bought new appliances for it, gave our refrigerator to the other rental (theirs was leaking), and took the operational, but lots of broken parts refrigerator out of the new rental and brought it home. So, I have the refrigerator that wasn't even good enough to make it to our rental property!!! :blink: We did that only because we're going to remodel this kitchen ... but I haven't felt up to it, so we won't start working on it till I do. I'm actually thinking of buying a new refrigerator and stove for this house, then putting it in our next rental purchase after we remodel this kitchen!!

I like big, side by sides .... I just don't see how a drawer would be big enough. Sounds like things would be too hard to find. Now, I like the idea of those crisper drawers ... if you could have one near the sink to keep the produce in, but I think that in 10 years it's going to be one of those things that "dates" your kitchen. What I'm trying to do in this house is make it look like it would have originally -- we just did the downstairs bath -- of course, in the kitchen, we'll do a "mission-style revival" no one would want a kitchen how they were 90 years ago.

I was no help, but you got to hear me ramble!! ;)
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