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Member Since 14 Jan 2006
Offline Last Active Dec 03 2006 02:29 AM

Posts I've Made

In Topic: Negative Results

02 March 2006 - 09:56 PM

Hi Lemonade, sorry you didn't get the results you were hoping for - I know how disappointing that is. It might be a good idea to get the blood tests rechecked at a later stage if you don't find out anything definite. I had been tested (blood test) in early 2004 (although I didn't know until later) & it came back normal, and later in 2005 I had 2/3 levels positive. I'm still without diagnosis but I'm going to try a gluten-free diet and hope I feel better. Hope the enterolab is more helpful :)

In Topic: Endoscopy & Biopsy Question

02 March 2006 - 09:12 PM

I had an appointment with my doctor yesterday, I have to say she did seem alot more helpful - I was worried about asking if I could get the celiac blood test done again - but she actually said it would be worth doing & I also asked if this was something that should be checked on every now & then, and she thought it would be a good idea to get it checked twice a year.

My other tests were pretty much normal, I don't have a carry-over from glandular fever which is what I had thought so that doesn't explain the tiredness or weakness.

I'm going to try a gluten-free diet for a few months and see how I go.

Thanks for the link Holly, I'll definitely join & good luck with your endoscopy :)

I have wondered whether maybe I am just in the early stages and that's why I'm having problems with a diagnosis. When it first started I had really severe symptoms, and after awhile my symptoms were still bad but seemed to kind of level out - or maybe I just got more used to it. There seems to be alot of emphasis on having the positive Tissue transglutaminase (sp?) levels in the blood test and a positive biopsy and I wonder if this is causing people to be misdiagnosed because they're just in the onset stages of celiac's and enough time hasn't passed for the stomach to be in bad enough shape yet.

In Topic: Endoscopy & Biopsy Question

24 February 2006 - 11:25 PM

My specialist wrote that he had taken 'lots' of samples in case (despite normal endoscopy) - though I'm not sure how many 'lots' is, I know when I had my appointment he said the standard now was to take about 6 samples. The strange thing is my doctor gave me a printout of the test report, and it says (I've cut a few things out)...

Specimen: Duodenum

Macroscopic: (SS/LG)

Two mucosal biopsies received 4 and 3mm respectively. All embedded.


The sections show two fragments of small bowel mucosa which show normal villous and crypt morphology ...etc.

Summary: Biopsy, Duodenum
Normal Small Bowel Mucosa


I'm not sure if this means only two samples were taken? I know afterwards he told me there was alot of activity in my small intestine, that it kept pushing the endoscope back up, but hadn't said anything about only being able to take two samples.

I think I will be going gluten-free, or at least trying a gluten-free diet and seeing if that makes a difference for me.

In Topic: Endoscopy & Biopsy Question

23 February 2006 - 02:29 PM

Biopsy came back negative, my doctor said that Celiac's is now ruled out - I asked her about having positive bloodwork, did that mean that I was having some sort of reaction to Gluten? I didn't really follow what she was saying, she seems to think that I am just weak and tired from having Glandular Fever a few months ago. She didn't recommended going on a Gluten Free diet because she thinks I'm likely to lose more weight by doing that, I'm 175cm tall and weigh 54 kilos now, I was 68 kgs at the end of 2003 when it first happened. She said my weight loss could just be related to metabolism. I'm having further blood tests done and will know if anything is abnormal next week, other than that she said if I wanted a second opinion she can refer me to another doctor.

Hope you had better luck than me Lemonade & thanks Lynne, I will probably get in touch because I'm a bit lost at the moment and not sure where to go from here so advice would be great :)

In Topic: Endoscopy & Biopsy Question

21 February 2006 - 08:13 PM

Thanks, I'll try to hang in there :) I find out my biopsy results tomorrow.

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