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munchkinette

Member Since 31 Jan 2006
Offline Last Active Jan 06 2012 06:29 AM
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Posts I've Made

In Topic: How Much Tsh Fluctuation Is Normal?

06 December 2011 - 03:51 PM

My Endo is very good and I think his personal range is .5 - 2 - he doesn't rely on the lab range because the one he uses still thinks 5 is normal... :(

I would find a good Endo - especially if you have hypo symptoms. GPs so often don't know enough to effectively treat it. You'll need a full thyroid panel test at some point too and an Endo will order that for you whereas a GP might think it totally unnecessary especially if your range is within lab limits. Also, if your cholesterol is higher than last year that is a good indicator that you have something going on with your thyroid.


My cholesterol is higher, but only because of my HDL. My regular doctor (not the sub) said it was excellent, even though it was higher. Last time I saw her was this summer though, which is about a month before my symptoms started. My main concern is to fix the hair loss ASAP. I can't afford to lose much more! I've also been getting panic attacks. I had no idea those could be related to thyroid disorders until I started googling thyroid issues... but those have been happening a lot lately as well.

In Topic: How Many Courses Of Antibiotics Have You Taken In Your Life?

04 December 2011 - 11:12 AM

I picked 20-30. I had lots of ear infections when I was little, up to the age of about 15. I don't think I've taken antibiotics once since high school. I've been taking probiotics for at least 4 years though. I think it helps a lot since I rarely get colds.

In Topic: Hair Loss?

03 December 2011 - 12:06 PM

Poor exercise tolerance and hair loss are classic hypothyroid symptoms. It's possible you were hypothyroid before you went gluten-free and the diet helped for a time. Make sure your Dr. reads your TSH on the new reference range. It should be between 0.5-2.5.



I've had my thyroid tested over the years, but it's always been pretty normal. I think it was 1.4 last time. Still, something new is happening. I have read that the new range should be 2.5 or 3.0 though, so if he doesn't get it right I'll go see an endocrinologist. I probably should anyway.

In Topic: Hair Loss?

02 December 2011 - 03:07 PM

I would request a vit test from your doc to make sure where your vit levels are. I was having problems with hair loss and found zinc and BioSil drops worked for me. I know someone who used Evening Primrose oil tabs that worked. It is possible you have more than just a need for these as far as nutrients though.


That's what the doctor has ordered to begin with. Plus some kind of thyroid test. I'll find out when I get there since I set up the first round of testing over email. I already take a multivitamin with iron, plus 5000 IU of vitamin d3 every day, and probiotics. I shouldn't have deficiencies, but who knows. Last time I wasn't absorbing anything even though I was taking vitamins.

In Topic: Hair Loss?

02 December 2011 - 11:58 AM

I am so sorry to hear about you problems, but congrats on the exercise. I was determined to loose weight in June, I lost 50lbs in 13 weeks, and starting feeling horrible out of nowhere. I had no energy, I could barely get out of bed. I lost about 60% of my hair from July till now.
I have to tell you that everyone was telling me its because of the exercise and the stress and the weight loss, and in fact it was but not completely. My family doctor ordered some tests which showed that my TTG and IGA antibodies were positive, I saw a Gastroenterologist and he confirmed without a biopsy because my sister has celiac and I had symptoms and the positive blood tests which I heard is really hard to get that I have Celiac.
I have been off gluten for about 2 weeks and my TTG went from 113 to 68 so I am getting there.
My hair is still falling out but I know that will take time, I never thought I would have it but I do, and your story really hits close to home, I would find a gastroenterologist and try with him, as I can tell you my family doctor was anything but helpful or knowledgeable. Plus your blood may be negative for Celiac but a biopsy might show something different especially since you have family history.
Good luck to you


I've had some blood tests for Celiac, but I can't get the biopsy. I was a mess after getting glutened right before Thanksgiving. I've only been feeling better for about 3 days now. I can't handle eating enough for the biopsy.

I do have several other autoimmune diseases in my family, that's why I'm not ruling it out. But some of the symptoms I've been having (except hair loss) are similar to what I felt before going gluten free. Have you tried an endocrinologist? That was actually something I was considering.