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Member Since 16 Feb 2006
Offline Last Active Private

Posts I've Made

In Topic: Meniere's Disease

09 April 2012 - 04:39 PM

Do full workups now include vitamin deficiency testing? Wow, that is really good news.

Every "full workup" I've ever had included hundreds of dollars of blood tests--and the only deficiency ever looked for was anemia.

If your doctor is smart enough to be looking for vitamin deficiencies, (s)he is likely smart enough to have looked for thyroid problems, which would have been my next suggestion.

In Topic: Meniere's Disease

09 April 2012 - 03:53 PM

You might want to read the whole thread (and others) at http://www.menieres....ic,25945.0.html, as there are other ideas there that may be helpful for your dizziness and ataxia.

One other idea mentioned there is B12 deficiency.

A common symptom of celiac is acid reflux, which is almost always treated by long-term Prilosec. Long-term Prilosec use causes B12 deficiency--which can cause the same symptoms as Meniere's. And with intestinal malabsorption, which is practically the rule in celiac disease, many vitamin deficiencies are common, including B12 deficiency, even when Prilosec isn't used.

In Topic: Meniere's Disease

09 April 2012 - 03:47 PM

According to http://www.menieres....c,25945.0.html:

"Many people here have found that certain foods trigger Meniere's symptoms. The most common offending food seems to be wheat. The protein in wheat is called gluten, and it is also found in other grains (barley, rye, and oats).

Celiac Disease is an autoimmune disorder triggered by gluten, and increasingly common symptoms reported in celiac forums include tinnitus, dizziness, and hearing loss. The anecdotal evidence indicates that removing gluten from the diet eliminates symptoms. Celiac Disease has historically been defined by the results of an intestinal biopsy, but the trend is now to diagnose it by blood work, which looks for antibodies to gluten as well as endomysial antibodies (andtibodies against oneself). Celiac Disease and gluten intolerance are often used interchangeably to describe the same set of symptoms; there is much debate on whether gluten intolerance is simply early-stage celiac or whether it is a separate condition, but the treatment is the same, either way--a gluten-free diet.

Celiac disease is one of the leading causes of intestinal malabsorption, and is linked with many other common autoimmune disorders, including thyroid disease, diabetes, rheumatoid arthritis, lupus, and MS. Vitamin deficiencies are common to all of them.

While celiac is noted to CAUSE vitamin deficiencies, it is also possible that vitamin D deficiency likely plays a role in causing celiac, and perhaps other autoimmune conditions as well."

In Topic: Toddler, Should I Do The Endoscopy?

18 March 2012 - 09:11 AM

I would LOVE to know *forsure* so that I can know if I need to be worried about my other girls also.

I don't think any test can tell you "for sure."

Doctors don't agree on whether gluten intolerance belongs under the subheading of celiac, or vice versa. Some think they are two completely separate conditions, while others believe that gluten intolerance is simply early-stage celiac.

Genetic tests can indicate likelihod, but plenty of people without DQ2 and DQ8 alleles have either full-blown celiac or "just" gluten intolerance with symptoms at least as severe as those of someone with biopsy-diagnosed celiac.

Environmental triggers play an enormous role in triggering celiac, no matter what the genetic predisposition.

If your other daughters have the same gene pool, the same general diet, the same home, the same schools, etc. then they are facing the same environmental triggers.

It doesn't mean that they will all develop celiac.

But it means that you should be on the lookout for any symptoms that might indicate a problem with gluten. Yes, this means the obvious intestinal symptoms, but there are other symptoms as well, and for some people, the autoimmune reaction mysteriously skips the intestines, or for some, their intestinal damage is "silent," meaning that they have damage but no discernable symptoms.

Other possible symptoms of celiac:
thyroid issues
type 1 diabetes
joint pain
vestibular issues (dizziness, tinnitus, etc)
neurological issues (including depression and bipolar disorder)
unexplained weight GAIN
carbohydrate "addiction" (particularly to wheat, obviously)
repeated candida infections
unexplained vitamin deficiencies (for example, in spite of supplements, which would indicate malabsorption)
small stature
ADD/ADHD/Asperger's/autism diagnosis
unexplained tiredness/exhaustion

I'm probably leaving a whole bunch out. I'm sure someone will fill in whatever I'm missing!

In Topic: Bulk Bread Mix That Works Well In A Zojirushi

16 March 2012 - 07:40 AM

Annalise Roberts has a cookbook of recipes specifically for the Zojirushi bread machine:
Gluten-Free Baking Classics For The Bread Machine.

You can probably find a used one on-line.

Many of her recipes also appear on www.foodphilosopher.com.

You can also try www.betterbatter.org, which has a ton of very good recipes, and they sell a very nice gluten-free flour mix that is less expensive than most, especially if you buy it in bulk (they will ship it to you in 5-pound boxes, which is very manageable, and they're easy to store).

I go back and forth between the betterbatter recipes and Annalise Roberts' recipes (sometimes I just use the betterbatter flour in the Annalise Roberts recipe!).

Really, the only thing the bread mixes add is salt,sugar and a yeast packet. That's very few ingredients, and not a lot of extra convenience for the high price of a specialty mix.

You can also save a lot of $ if you buy yeast in bulk, from Costco or Sam's Club, and just measure it out with a teaspoon. Those little packets literally triple or quadruple the price.

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