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celiac sucks

Member Since 24 Feb 2006
Offline Last Active Sep 12 2011 05:07 PM

Posts I've Made

In Topic: Can't... Stop... Sleeping...

12 September 2011 - 05:02 PM

I was diagnosed with celiac disease 10 years ago and I have been gluten free ever since. I also experience a lot of fatigue and sleepiness. About 6 years ago I began with deilbating fatigue. I would literally sleep for 18-20 hours a day. I had to be woken up to eat and drink it was horrible and the doctors did not know why. About Two years ago my fatigue/ sleepiness did begin to get better but I was still very sleepy all the time. I recently went to mayo clinic and I finally got a diagnosis. Idiopathic hypersonimia. basically it is excessive sleepiness during the day. Tests to find this are to wear an actiograph which is a watch that measures your sleep patterns, and night time sleep study, and a day time nap study. I hope you begin to feel better!

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