Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 14 Feb 2004
Offline Last Active Aug 22 2010 06:15 PM

Posts I've Made

In Topic: My Girlfriend Got Tested

13 August 2010 - 09:15 AM

Has she ever had an upper endoscopy with biopsy? She had problems when she was younger and "she eats slow" are red flags to me. There is a possiblity of a congenital defect or damage/inflamation in the upper digestive track.
If she has any test results can you get a copy of them? It would be a good thing to know what if anything has been ruled out from the test results.

hi mommida... yes she did get the endoscopy done and biopsie too when she was younger in her country. They told her she had malabsorption and villi atrophy in the duodenum. Thats just a longer term of saying you have celiac disease.. to mee anyways.. :)

In Topic: My Girlfriend Got Tested

12 August 2010 - 12:41 PM

Oh gosh no! If she gets sick from a little CC she will get very, very sick from a challenge. Testing herself with soy or dairy was what I meant. If she is still consuming those have her drop them and then if she is feeling better she could add them in one at a time and see if symptoms return. I suggested that because she is still feeling ill even on the diet. That may be due to the Chrons but it could also be due to another intolerance in addition to gluten.
One more thought. Do you still eat or drink gluten foods? If you do are you making sure you brush your teeth really well before you kiss? You can contaminate her that way.

Yes i brush all the time... but we both have celiac disease.. ;)

In Topic: My Girlfriend Got Tested

12 August 2010 - 10:15 AM

Keep in mind that other intolerances are intolerances and not allergies so they won't show up in allergy tests. If she is still consuming dairy and soy I would suggest she drop those and then add them back in when she is feeling better. Add them in one at a time for at least a week and see if she reacts.
Some good supplements won't hurt just make sure they are gluten free and do not have wheat or barley grass. Even though those are thought to be safe they aren't. Some sublingual B12 may help with the energy even if they say her levels are fine.

Hi raven, would it be a good idea for her to test herself? Like eat gluten?
I know she gets very sick with very little contamination.

In Topic: Is It Worth Seeing A Doc If Not On Gluten Normally?

12 August 2010 - 07:52 AM

I'm hoping insurance will help pay for food at least and am hoping there are other benefits as well. I feel like I am lying if I say that my son and I have Celiac's if it's not been proved and diagnosed. I'm overly honest that way, is that lame? LOL

You did get an official diagnosis.... Yellow poop

In Topic: My Girlfriend Got Tested

12 August 2010 - 05:44 AM

No it is not true that they will be able to find the antibodies if she is already gluten free. She would need to do a gluten challenge for a couple of months and then get retested for the antibodies, and even then they may be a false negative. People can have Chrons and Celiac both. People can also have other intolerances, dairy and soy being the most common for us. Is she very strict with the gluten-free diet and protecting herself from cross contamination?

Hi raven, thanks !
Yes she is very strict with the diet, she hasn't been putting on wieght because she eats very little and very slow. She is 90lbs at 38 yrs old. I think they didn't know much about the disease back in the days in Cuba.
She said she feels some what better on the diet, but she doesn't have much energy. Everything she eats is safe home made and labelled gluten free. She also got tested for extra allergies and everything was ok. Did her routine blood tests and eveything was ok also.

Celiac.com Sponsors: