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Member Since 29 Mar 2006
Offline Last Active Apr 05 2011 02:36 PM

Posts I've Made

In Topic: Need To Vent, Shoulder To Cry On And Everybody

31 March 2011 - 07:15 PM

I haven't read everyone's replies and I bet they all have a lot of different and good things to offer you.

So I hope I'm not being redundant.

I think, like you said, you know what to do. I wont say "told you so" bc I think you're kicking yourself a little too hard. You know what that kind of negative self talk and stress will do to you on TOP of the physical effects you feel from contamination; you cannot handle that like the average person, so if at all possible, just stop that first!

Be your own best friend and cheerleader. If he won't be on your team, then you should (which you are) but what I mean is... stop trying so hard to make HIM be on your team and instead put more energy into yourself. (how can I word this differently...)

Instead of putting all your energy into changing HIM, devote that energy into something you know will be successful: which is changing YOU.

That's the only way you know you'll be happy, get better, feel better and have a better life. Unless you think you're willing to deal with the headaches and side effects in order to deal with him; in that case you have to stop trying to change him. He's shown you that his philosophies and attitude about this isn't healthy for you, and won't change soon. So if you continue to try and force-quit that on him... soon it's becoming more your fault that these blow-ups happen. He's made it clear where he stands. Take it or leave it. You're the one with the good head on your shoulders. Doesn't sound like he is too reasonable (in regards to THIS topic). He could be a very wonderful man when it comes to everything else. But this is your health.

Finances, human touch, shelter, partnership, conversation etc.... don't mean much if you don't have your health.

and by the way... I've felt so isolated, alone, misunderstood, (all those things) too because for a long time MY husband regarded Celiac as this "thing" you just deal with by eating a certain way. And we didn't have a gluten-free home for 8 years! I went that long making sure HE was happy and the kids were happy and just walked around miserable and sick and on egg shells and always sick and never getting better with no "apparent" explaination bc he refused to believe such small amounts (crumbs etc) could make me THAT sick or that Celiac or gluten could cause me to have a headache (made NO sense to him) or that it correlated with anxiety, insomnia, dark circles under my eyes, fatigue, infections, UTI's, unexplainable joint pain, being cold all the time, depression, hair loss, bruises, and so on. He would understand bloating and IBS troubles but that was MY fault.

It took a long time for him to come around.

Off course... you know this wasn't the ONLY problem. Something else was under the surface but it takes a lot for people to really GET this disease. Don't understand what is SO hard about loving your spouse enough to be educated about something that effects them this much. You have to hand them divorce papers before they begin pacing around throwing out the bread and cookies.

In Topic: Celiac Runner In Training For Marathon

29 March 2011 - 05:48 AM

When I trained for half marathons last year, I went through the same thing. I was able to hold it, most of the time. Are you able to just not eat much of anything? Like a banana or a small bowl of oatmeal? I never ate much before I ran, and then had food ready for when I was finished. Just a thought.

I generally cannot eat prior to running anyway because it gives me cramps/side stitches... so I don't think that's the problem. I usually wait about 2 hours after I've eaten to run. And don't eat much in the day anyway. I'm a grazer during the day. But have larger meals after my workouts.

I feel like it's the adrenaline that causes the problems. It's not only my gut but also my bladder! I feel like my body cannot stop emptying!

During actual races I just focus and ignore it but in training, it's pretty annoying.

In Topic: How Would You Handle A School Like This?

12 March 2011 - 12:40 PM

I don't have a lot of advice, as I'm dealing with some difficult school as well. Your son was diagnosed. I'd love to have my girls' school cooperate with me on their diets and lactose free issues but I have to fight red tape and jump through hoops to get them to deal. Yet everyone seems SO UNDERSTANDING and cautious if a kid has a nut allergy.

All I wanted to tell you was that I think you're awesome and doing a fantastic job!

In Topic: Wwyd?

09 March 2011 - 08:59 AM

Your child's symptoms sound so similar to my youngest. thin arms and legs, very large belly. we switched to lactaid and that made a big difference but when we feed her gluten free meals we see an even BIGGER difference than when she eats regular meals with gluten (her stomach swells almost immediately, to the point she cannot fit into her highchair/tray anymore!!!).

GI hasn't tested her for Celiac yet bc he's afraid it will just come back negative either way. she's only 22mo.

he thinks the only BEST answer is to test her via scope, which (i called yesterday) he's willing to do if all else fails in other testing.

In Topic: Doctors Don't 'believe' In Intolerance, Won't Test For celiac...

08 March 2011 - 05:39 AM

Thank you all.

I am calling in 30 minutes to leave a message with the GI department at our children's hospital. According to our local magazine, it has the best pediatric gi there. I'll have them both tested next week if it kills me.

My question is if they are negative (though I strongly suspect the little one has celiac disease), how do I have them tested or possibly diagnosed with intolerance? or sensitivity?

Like I said... their schools WILL NOT feed them gluten free diets without a doctors note.

which kills me bc i can control what goes on here at home and feed them mostly gluten-free here anyway (easier bc I eat gluten-free, though my husband doesnt and that's another story)... but when they go off to school it's different.
I pack the 5yo's lunch so it's a bit easier for her but next year I cannot do that (private school) without a doctors note. and the 21mo cannot have outside food in her school without a doctors note; I had to jump through hoops just to get them to give her lactose free milk.

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