Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 17 Feb 2004
Offline Last Active Private

#844253 Off Gluten For 1.5 Years, But Having An Endoscopy For Nausea Next Month. Dr W...

Posted by on 20 December 2012 - 08:35 AM

I think it is reasonable to assume you are strictly gluten free. You probably have missed the window for a Celiac diagnoses, unless you have a rare case of Celiac which does not completely heal on a gluten free diet.
Gene testing could be used to determine if you have some of the known Celiac genes. Remember not all Celiac genes are identified and genetic testing can be inaccurate too.

There are many different things that can present with the same gut symptoms. Gluten can also be a "trigger" for Eosinophilic Esophagitus another auto immune disease. The symptoms are very similar to Celiac Disease. (In fact I thought my daughter must have been having gluten from somewhere causing the symptoms. She was diagnosed "probable Celiac" when she was 17 months old and then with EE when she was 6.)

You have enough making you sick right now to have the endoscope with biopsy. You will probably not get a Celiac diagnoses, but hopefully find out if there is another related illness.

An endoscopy with biopsy will not diagnose a gallbladder issue.
  • 1

#833770 Frankenstorm!

Posted by on 01 November 2012 - 07:46 AM

That is the point, Michigan has had some residual weather from a very strong hurricane before. I think about every 7 years we get some rainy weather from winding down cyclones. This storm was soo big we had the rain, wind, and cold BEFORE Sandy even made landfall. This was the first time we had to listen to wind all night long and wonder if the house construction is safe enough. The house was freezing cold that wind whipped up through every crevice it could into the house. Better than the alternative of a neighbor's window somehow had too much of a vacuum seal and popped outward.

I know the it is a mere comparison for the states directly in line with the storm (practically the whole coast line of the continent) This is just to let others know how freakishly widespread this storm reached. If you can send any help to the areas devastated from this storm, please don't hesitate!
  • 1

#825963 What Do You Do If You Break An Arm Or A Leg? Re: Casts

Posted by on 28 September 2012 - 06:38 AM

I would not lick the cast. (I heard they taste awful!)
  • 1

#825425 Dehydration

Posted by on 25 September 2012 - 07:07 AM

I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.
  • 1

#819054 How Important Is An Endoscopy If Blood Test Is Positive?

Posted by on 22 August 2012 - 06:03 AM

EoE, can be a different experience per patient.

Something triggers the production of eosinophils (white blood cells that have a spearlike attack, usually reserved for parasite infection)

once the eosonophils are activated, they are actively damaging (normal healthy tissue) for 12 days.

in the case of EoE the eosinophils damage the tissue of the esophagus. Deep furrows, schatki rings , food can be stuck in the esophagus from the damage, and patients may need surgical dilation

Some patients do need to be put on feeding tubes. If you can figure out food "Triggers" and avoid them, you eliminate the damage.

The top suspects for triggers are the top 8 allergens, gluten, and peas. Unfortunately there seems to be an airborn allergen connection. Many patients are diagnosed late summer to fall (as symptoms seem to "flare" seasonally)

New patients diagnosed with EoE are now reccomended to be tested for Celiac for the known connection between the 2 conditions.

There is a list of disorders that can cause the same symptoms as Celiac, some are more common to be connected to Celiac. Testing can help rule out other possible conditions.
  • 1

#813388 Misdiagnosed?

Posted by on 24 July 2012 - 02:34 PM

How old are they? Time for a nap...or perhaps involuntary down-time? :/

PUBERTY :ph34r: :ph34r: :ph34r:
OMG!!! :blink: The hormones are raging, but they are acting like pre-schoolers!
  • 0

#813293 Misdiagnosed?

Posted by on 24 July 2012 - 09:14 AM

Mystery diagnoses

Going through doctors trying to get a full proper diagnoses is very hard. Some doctors don't even *believe* or understand DH, Celiac,or gluten intolerance.

It seems to me many here have gone through a long frustrating experience to get diagnosed. Life changing social circumstances trying to stay on a gluten free diet. (family arguements, loss of "friends', even divorces) Staying on the diet has many challenges. Some restaurants have said, "You should not eat here because we will not gaurantee any food item safe for you to eat.'

people come here with type out statements that have no voice inflection of the true tone of their voice. it's hard to determine if they are angry, sad, tired, and have worded things that shouldn't be taken to heart as an assault on you.

i really hope you find a great doctor to work with. i hope you get healthy as quick as possible. please don't hold a grudge against this forum, which is very helpful.

(for instance did you know that two of my friends have recently passed away within 1 month of each other at the ages of 41 and 42 years old? i have been crying all morning? my kids have been acting up so badly they are both grounded? The dog ate my shoes? i wish I could just go back to bed and start the morning over.)
  • 1

#811566 Misdiagnosed?

Posted by on 17 July 2012 - 05:42 AM

Are you sure you had the full Celiac panel?
When you tried the gluten free diet and felt better, that is actually scientific data. The doctor wants to call it placebo effect. Did you have any accidents? Did you pop something in your mouth that just seemed like it just couldn't have wheat in it, and felt ill after?

You have a personal choice to make.

Stay on gluten and get tested (starting with a new doctor). ;) You will also rule out any other disorders during a scope.

Go off gluten feel better (then time takes it toll and you wonder if you can eat that)

IBS is the lamest thing. Doctors don't get paid if they don't write down a diagnoses, so they invented IBS.

*Processed gluten free foods ~for the most part~ are not vitamin enriched and fortified like main stream processed foods.* First the gluten free processed foods are for people avoiding allergens, add more things and you will exclude another food allergen group.

I switched from one brand of gluten free, egg free, and pea free bread for the brand that was enriched with Thiamin(B1), Riboflavin (B2), Niacin, Iron, Folic Acid and Vitamin D.

Gluten free in our home means we eat more fruit& vegetables, meals prepared at home, definately no preservatives are in our baked goods. I can say we are eating a healthier diet. Even on processed items~ when you read the label you tend to make a healthier choice. :D
  • 2

#806455 Help!

Posted by on 25 June 2012 - 07:02 PM

Keep in mind that some reactions to food(S) or airborn allergens can last 12 days.
  • 2

#806366 The Tale Of The Lemon Bars

Posted by on 25 June 2012 - 02:22 PM

Well I remember a few makes and models of automobiles. :ph34r: :rolleyes:
I do remember that hump thing (as described by IH too).
Adding lemon bars to the some of the images in my mind... :lol: ;) Powdered sugar!!? right
  • 1

#805209 Celiac With Throat Squeezing

Posted by on 21 June 2012 - 07:11 AM

There is now a proven connection to Eosinophilic Esophagitus for Celiacs.

My daughter was diagnosed as Celiac first, gluten free for 4 years and then these symptoms started. Really close to "glutening", but take on the vomitting. "Food came back up and went back down" in the throat. Honestly if the eosinophils are causing damage the swelling is causing the throat to close up (stricture). Food particles can get stuck in the throat.

This does seem to be increasing in diagnoses, still most medical professionals don't even know what it is. Do some homework and make sure your Ped. gastro. knows what to look for. It is mostly diagnosed through an upper endoscopy with biopsy. On diagnoses the patient is prescribed a modified steroid inhaler. (the spray is needed to swallow not inhale) Be carefull to prevent a thrush infection. Prevacid is usually prescribed too. You should be reffered to an allergist for testing.

Alas, EoE is not a "true allergy", most do not test positive for what the "triggers" are. An elimination to determine what "allergens" cause the eosinophil production. A Food journal is essential during this time. The tiggers can be food and/or airborn. Once acitivated eosinophils are active for 12 days.

Do a quick check yourself. Are the tonsils enlarged? Creamy patches in the back of the throat? An odd smell?
  • 1

#804271 Swollen Neck Absolutely Insane

Posted by on 18 June 2012 - 05:57 AM

Hey Razzle,

I am concerned about the "cottage cheese" description of the back of your throat. Eosinophilic Esophagitus can look like that. There is now proof that Celiac and EoE have a connection. The symptoms are very similar to Glutening for Celiacs. :(
Keep a food journal. Keep in mind eosinophils are active for 12 days once activated by food or airborn "triggers". :blink:
  • 1

#799859 Oh, It's Just The New Thing!

Posted by on 01 June 2012 - 06:32 AM

Here's some history. It is believed to be the "wasting away" disease described in the Bible.

The cure was discovered through the starving children of Belgum during the war. Children who had been diagnosed as failure to thrive, became "healthier" when they were STARVING. This lead to the conection ~it was food related. They usually just left the person on a banana diet.

You have to remember there was no "routine" endoscopy in the past. The furthest information gastroenterology had was from Dr. Beaumont. Dr. Beaumont had a patient that was accidentally shot in the stomach. The wound never healed properly and left in layman's terms a "window" into his gut. So Beaumont got to watch human digestion through this window and was termed "the father of gastro physiology"

If this "fad" term is happening because more people are asking to be tested. At least people are hearing about Celiac and DH begging to be tested. Because it matches symptoms that they have had for (what 40 some years depending on their age)?

One out of every 300 people are estimated to have Celiac/ DH. The number is probably higher, because doctors really haven't tested. (It was a blind study of blood supply~ only blood donations were sampled) I always get turned down for being underweight, anemic, and so on. So how are the true bunch of undiagnosed Celiacs going to donate blood? ;)

Sorry went on a Cliff Claven rant. :ph34r: :ph34r:
  • 1

#797645 Life Has A Way Of Playing Cruel Jokes On You...

Posted by on 22 May 2012 - 06:30 PM

You may be the person to develop the best gluten free food ever. Your love of cooking and entertaining does not need to end, just needs to be allergen safe. ;)

Hate to say it, this isn't that bad.
  • 2

#795970 Possible Celiac 19 Month Old

Posted by on 16 May 2012 - 06:33 AM

Do not start a gluten free diet for her until testing is done.

To keep some sanity, keep a food journal (it looks like you have started doing that). Keep the amounts of food, time consumed, and BM reactions with any other symptoms.
  • 1

Celiac.com Sponsors: