youngmum3nz

hi there

im currently dealing with something slightly similar with my son whos 12 weeks old. we had an unplanned home birth, which the midwives missed by about 20mins! thankfully my best gluten-free made it there 10mins before to catch the baby. then at 2 days we were rushed to a city hospital with a suspected twisted bowel (which i think may be causing our problems now) he went on formula at 9 days due to alot of stress and thats when things started to get interesting. Hes never had a problem with constipation as he has had chronic diahrea the majority of the time since starting formula (my other two have had problems with constipation as babies, apart from prescription laxatives diluted prune juice or a sugar water mixture that i cant remember the amounts off are usually helpful) he has also been diagnosed as lactose intolerant by a stool test but after waiting 7 wks to see a paediatrican thru the public system were going private (fri 9th) as our GP wouldnt even change his formula (his symptoms have become extreme hes been in alot of pain) although my saving grace has been a mum from my daughters kindy giving me an unopened tin of lactose free formula so fingers crossed it works! he also has reflux and did have colic for a time. Im not sure what they have where you live but in new zealand they have colic drops and gripe water which is meant to help bring up wind. I cant comment on the gluten thing at that age as i have no clue but my only advice would be if youre worried about the health of the baby then take him back to the doctor until youre happy with a diagnosis or treatment. anyway hope that helps alittle! sorry for rambling.

ive considered it but as im very new to this im not sure. id be very interested in what other parents are doing too.....

Thanks everyone for your help, were getting there slowly, i have an appointment booked with a private specialist (which will cost $220 ouch) which i can cancel if we get a public appointment before then. My sons blood results, im told almost certainly officially dx Celiacs he has the antibodies and the three levels (normal 0-20) were 24,52 and 204. Its written on his blood results that those levels support the dx of celiacs. As soon as i start the gluten free diet i will try the elimination diet so fingers crossed gluten is the only problem. Im so glad i came across this site what an awesome resource. Thanks again!!

thats fantastic! i hope i can find a school thats that understanding when my son starts, which thankfully isnt for a few years yet!!

Thanks Tamara
Im kind of glad we have alittle bit of time in between the test results and the paediatrician app. as its giving me a chance to learn what he can and cant eat, (as i dont want to make mistakes after hes off the gluten as the reactions seem to be stronger when theyre not having it all the time) and also to gain an aresonal of information to show my family friends kindy school ect that he is not to have anything with ANY gluten in it. Im going to be a gluten nazi too!! ha ha. Ive made a big folder with all the kids having seperate files so all there informations in one place so if someone losses something i have copies on hand ect (also so no one can tell me this is all in my head.) But there are some things i was wondering if anyone knows the answers too id really appreciate it.
I got a copy of Michaels test results for the celiac panel and one of the levels was very high has anyone had one as high as this does it mean anything inparticular?
Anti-gliadin IgA 24 units, Anti-gliadin IgG 52 units, Endomysial Ab POSITIVE, anti TTG IgA 204 units (the last one worries me with all three's normal range 0-20)

Also whats the go with playdough, paint/art supplies ect? I had no idea they had gluten and i didnt even think theyd be a problem? how do you know which ones do and which ones dont?

Finally i took my 3yr old to get a test done with me before going gluten free she has no symptoms but i thought checking now would be better than going on a gluten challenge when her brother cant eat it but she completely lost the plot so we gave up. what age do you think i should take her back? its not a huge deal as im sure shes fine but yeah any advice would be great.

Thanks everyone for making this so much easier for me, weve had a very stressful few weeks and you just cant ask a 2 or 3 year old to give you adult conversation!! lol