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Member Since 21 Apr 2006
Offline Last Active Mar 09 2010 04:29 PM

Posts I've Made

In Topic: Positive For 2 Copies Mthfr C677t Mutation.

09 March 2010 - 02:47 PM

I have one copy MTHFR and I also have Factor V Leiden, which is a blood clotting disorder. I only found this all out because I have had 3 miscarriages in a row. As soon as I get pregnant again I will have to go on Lovenox, baby asprin, and Extra folic acid, B6 and B12. I take the B vitamins now because my homocysteine levels were high, but a recent blood test indicates the level is now normal. But I still need to be on extra B vitamins for life. Also, coffee and black tea increases your homocysteine levels. I have eliminated coffee and black tea and now only drink herbal teas. I have one perfectly healthy girl who is now 4. I had her before I experienced any of my miscarriages. It took over a year to conceive my daughter… this was while I was eating gluten because I didn’t find out I was celiac until 4 months after I had my daughter. I’m not sure if there is a correlation with the MTHFR and celiac, but I definitely have both. I know that many people who have Factor V Leiden also have MTHFR. I’ve been talking with others on different pregnancy message boards and so many people swear by lovenox. Many have had multiple miscarriages and finally when they are on Lovenox they are able to carry the baby to term. There are many success baby stories with lovenox.

In Topic: Need To Find A Good gluten-free Pizza Crust Recipe

09 March 2010 - 01:12 PM

I use Against the Grain pizza crust (it comes frozen). http://www.againstthegraingourmet.com/ My husband who is not celiac says he loves it! It's delicious!

In Topic: Fda Gluten Free Labeling

25 March 2009 - 05:57 AM


I just logged on this morning to post about this and was very glad to see this topic already posted.
This is our future and health!! Please share your thoughts on their comment section. With everyone’s effort we can all help each other and ourselves by helping the FDA understand proper gluten free labeling. Many of us share the lack of trust in some products out there. Here is our opportunity to make a strong influence on regulations. I personally feel that the more who comment the better and stronger the study will be. Let’s bring our celiac community together. Go Team!

Here is an article about the topic:
(i hope it works, I've never linked before)

planned FDA study for gluten free labeling

In case my link didn't work here is a quotation from the article:

"The Gluten-Free Labeling of Food Products Experimental Study will collect information from both consumers who have celiac disease or gluten intolerance and those who do not have either condition. The purpose of the study is to gauge perceptions of characteristics related to claims of "gluten-free'' and allowed variants (e.g., "free of gluten,'' "without gluten,'' "no gluten''), in addition to other types of statements (e.g., "made in a gluten-free facility'' or "not made in a facility that processes gluten-containing foods'') on the food label. The study will also assess consumer understanding of "gluten-free'' claims on foods that are naturally free of gluten, and gauge consumer reaction to a product carrying a gluten claim concurrently with a statement about the amount of gluten the product contains.
The data will be collected over the Internet from samples derived from two sources: (1) A membership list from a celiac disease special interest organization and (2) an online consumer panel. Participation in the study is voluntary…. Five thousand adults will complete the experiment.

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