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wdavie

Member Since 19 Feb 2004
Offline Last Active Mar 15 2004 07:47 PM
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Posts I've Made

In Topic: Confused About Biopsy & Other Celiac Info

01 March 2004 - 02:29 PM

Research has shown that you can be Gluten Insenitive/intolerant and never develop Celiac Disease. The Intestine requires the Gene DQ2 or DQ 8 to be present for you to be diagnosed with Celiac disease, as it is an auto immune disease, not an extension of an intolerance.
You either have Celiac or you don't it is not a case of different degrees. Kind of like being a little bit pregnant, you either are or you are not.

Many people have positive bloods yet there is not evidence of Celiac disease in the gut on biopsy, I guess this would indicate and intolerance.
A great resource for further clarification here in the Center for Celiac research in Maryland. these guys are considered the experts in the field of diagnosis and research etc. they have some great reading etc.
Good luck
Wendy

In Topic: I'm Seriously Depressed!

01 March 2004 - 02:19 PM

Try and keep your chin up.
A Gliadin IGa positive does not constitute a Celiac diagnosis. I am Iga Pos and so is one of my sons neither of us are Celiac. Did they test his Ttg level this is far more appropriate for diagnosis.
Also the biopsy is far better that just this test to tell. I say be 100% sure before making major lifestyle changes. Also he should not go Gluten free until all the tests are done as it will effect the results.
I went through the greiving when Grace was diagnosed (by very Pos biopsy in Sept 03) and I still have crappy days. But hey she is so much healthier and happier it far out weighs me feeling sorry and sad.
Good luck with the further testing.
Cheers
Wendy

In Topic: Neg. Blood Result With Stomach Pains Present

01 March 2004 - 02:14 PM

Rice pudding is one of my daughters favorite breakfasts.
Wendy

In Topic: Bioposy Wednesday!

24 February 2004 - 05:19 PM

Ah probably another difference in protocols in different countries. I used to nurse in Theatres and we did endoscopes regularly. In Australia and NZ rarely we put people on Fluid only etc, Usually just the usual Nil By Mouth for 8-12 hours.
Thanks for your reply, I was just curious cause sometimes the preparations for the tests are quiet difficult and traumatic for kids and it would be nice if the preps were as simple as possible.
Cheers
Wendy

In Topic: Bioposy Wednesday!

23 February 2004 - 06:55 PM

Why the fluid only diet? I would have thought this could sway the results. Grace was NBM (Nil Orally) for 8 hours before surgery but was encouraged to be on a diet containing Gluten up until her biopsy.
I hope they find an answer for you as having a sick child is very debilitating for your spirit as a parent.
Good Luck.
Wendy