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Member Since 15 May 2006
Offline Last Active Nov 02 2009 12:43 PM

Posts I've Made

In Topic: To All The Type One Diabetics Out There

23 September 2008 - 07:32 PM

My son was diagnosed Type one at age 9 (2003) and celiac the following year. Erratic blood sugars were occuring for about 4 months prior to diagnosis ... his sister was diagnosed celiac first, then they tested Matt immediately - and confirmed by biopsy. His outward symptoms were not as pronounced as his sisters - yet he had way more damage to his villi on biopsy.

Going gluten free will likely help those erratcic readings.
The damaged villi are inflammed so the body is in a constant state fo trying to repair the damage.

Carbohydrates are absorbed in an "uneven fashion".....sometimes they are not absorbed well or the opposite effect "carb dumping" as they are absorbed too quickly...this is what can cause unexpected highs and lows in a diabetic.

Hope this helps.

In Topic: Overreacting?

06 September 2008 - 09:22 PM

First off , I understand how you feel and it must have been very difficult to sit there and watch them eat food you cannot have ...it was probably esp hard because you have only been on the diet for 3 months - all the emotions are still pretty raw and you feel a sense of loss (loss of choice in food).
You ate before you went out and did not know others may want to stop for lunch.

Another perspective - is that the family and friends are still learning too - this whole "gluten free" thing is difficult to "get" early on.
Perhaps next time - if someone else wants to eat and you are hungry too - do not think of it as having others revolve around you. Its simply choosing a restaurant. They can choose gluten items or other tasty items at the salad bar...allowing you to eat and enjoy a meal.
An approach that has worked well for me is:
I really can't eat anything at that restaurant and I am hungry too, do you mind if we went "_______". (as another poster suggested). Both my kids are celiac so it teaches them how to handle these situations.
Its not like you are telling them to order what you order..
I am guessing that it may have been easier to watch other people eat whatever choice .....if you had been able to chow down on some gluten free choices.

If the others knew you were hungry too and chose that restaurant knowing you could not eat there - is much different than choosing the place and not thinking about the gluten free aspect of dining out. The latter requires education and also requires you to communicate to others ....give your mom a list of restaurants that have food you can eat.

This is a hard diet to follow in a gluten filled world..... chin up ... you are not over reacting...just reacting as any normal person would to a life changing diagnosis..... and wishing family and friends would think of you when they make decisions like this.
Just remember - most people dont mind choosing a different restaurant - they can always go back another day and get that pizza or pasta if they really want it.
Hope this helps.

In Topic: Layman's Definition Of Celiac

05 September 2008 - 10:46 AM

The way I told my kids is: the gut is inflammed and damaged. The good nutrients are not absorbed very well so the stuff your body needs to function well - just passes on through. Then because the lining is worn away from inflammation (I liken it to a skinned knee)...so bad stuff - bacteria, and proteins that normally shouldnt get past the "barrier" of normal tissue get into the body. Yes it does trigger an autoimmune response which is systemic, in addition - all this other stuff is going to the brain, nerves, muscles etc..which leads to a cellular response in various organs and this is why the symptoms are so varied among celiacs. My daughter had neurologic symptoms and my son had muscle aches and pains as well as bed wetting.

Back to the skinned knee - I use this analogy because they can visualize the scrape - they see it can get infected...and how the healthy intact skin is not red and oozing. Basically the difference between a heathy gut and a damaged one. Very simple and it gets the point across without a bunch of medical terminology.

So I told them, by eating gluten free the gut can heal and function as a normal barrier to bad stuff - just like normal skin does on the outside of our body.
Hope this helps.

In Topic: 16yr Old Diabetic Daughter Just Diagnosed

02 September 2008 - 11:15 AM

Welcome - and keep reading this site! Lots of excellent suggestions already.
My son is 14 - diagnosed Type 1 at age 9, and celiac at age 10. Huge difference in blood sugars after going gluten free. The intestine in a celiac who has not gone gluten free (not diagnosed) is inflammed and villi are damaged which leads to erratic absorbtion of carbs.
It WILL get easier - my daughter is almost 16 and is celiac too. Brown bagging is the only way to go to prevent cross contamination and the resulting physical symptoms or erratic blood sugars.

It is overwhelming at first but once you get better at the diet and making homemade pizza crusts or finding a frozen shell that works, finding fun / safe food gets easier.

I make pizza the night before and my son figures out how many slices he needs (carb wise), packs it to school and microwaves it - they both know to put it on paper towel or a paper plate since the school microwaves always have bread crumbs etc in them. Soon after he did that - his classmates were actually jealous that he gets homemade pizza in his lunch and it looks so good.

Corn chips / cheese and salsa with a juicebox and/ or some fruit / veges.

Rice paper sandwiches - now this took some time to master - working with rice paper!

meat roll ups with a fruit choice and or veges with dip

sandwiches (we use the tapioca bread mix by Kinnickinnick)

chicken salad - the way my daughter likes it - she puts it together in a container with the lettuce and sliced / diced chicken and whatever else she wants, puts ranch dressing (gluten free of course) in a separate container, and then mixes it together at lunch, Very few carbs so you would have to add some carb food to meet the needs of her diet/insulin

Have her help you in shopping for lunch food, get her to create a list of favorite food and find gluten-free alternatives. I found some recipes on this site that are fabulous - for cookies, donuts etc. For those days when a treat would be nice :)

It is a double whammy in the sense that you have to learn all over again - the various foods and carb counts....and Deal with the emotional impact of yet another dietary restriction for her... but depending on her personality - she may see it as a challenge or something to rebel against. Have her involved as much as possible in food decisions and show her that even if a certain item tasted like cardboard or was a disaster in the kitchen - Get messy and make mistakes! Try again, try various products. It will give her a sense of control and power.
and look at the recipe section here and keep reading threads about snack / lunch ideas for school. There have been a several threads in the past.
You are not alone and neither is your daughter.
There will be "oopsies" in the beginning and learning curve - just like it was when she first diagnosed Type 1.

Best of luck..
Keep coming back.

In Topic: Different Levels Of Intolerance?

08 June 2008 - 08:29 PM

Sorry if this sounds a daft question but what are "the nightshade family"

no questions is ever daft! :)

Nightshades refer to plants that grow at night - and there is also another group called Morning glory plants - they grow in the morning part of the day!
Nightshades include: potatoe, tomatoe, peppers and eggplant.
My daughter cannot handle potatoe at all, but can handle tomatoe sauce in homemade chili ( no peppers) and ketchup. She doesn't like actual tomatoes (fresh) so never tried them for a reaction.... I know the reaction: "eeewww, mom I dont like tomatoe"


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