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BRUMI1968

Member Since 18 May 2006
Offline Last Active Jan 18 2012 09:56 PM
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#641852 Food Pantry Issues

Posted by BRUMI1968 on 24 September 2010 - 01:35 PM

Hi

My husband started going to a foodbank in our neighborhood a few months ago. It is a once-per-month thing. Anyway, typically they don't let folks go through - they just give you a box (actually, many boxes) of food to last the month. My husband told them that I had Celiac and need to be gluten free, and they let him walk through. He got tons of Amy's soups and some Whole Foods stuff. Now he always gets to walk through. So I know it is really hit and miss as to what person you get, but hopefully you'll find someone with a kind heart who will let you walk through and look for gluten-free stuff.

And on a bigger note, shouldn't we be doing something about this in our communities? Like writing letters to our food bank organizations and such. I'm going to write a letter to the Oregon foodbanks and just ask that folks be educated that people with Celiac Disease and other food sensitivies may need to be able to choose their own food. And maybe volunteer at foodbanks to help sort food by intolerance? I don't kow, but this problem is only going to become bigger, as the economy is not improving quickly and more and more people are being diagnosed.

Good luck to you.

Sherri
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#634441 On Sibo Diet - So Hungry!

Posted by BRUMI1968 on 24 August 2010 - 07:16 PM

I've done grain free, and it works best for me. It is really hard to maintain, however. I use sweet potato for that feeling of full, and recently added back regular potato after not eating it for two years.

I'm also, though, typically vegan and to be honest, this is catching up to me. I am adding back some meat right now because I'm anemic and it's hard for me philosophically to grasp that taking supplements made in a lab someplace could possible be better than eating GRASS FED humanely raised meat once a week or so. That said, I'm struggling with it. I'm also an aspiring Buddhist, which adds to the problem philosophically.

I think the grain free thing just needs a way to make enough calories. One way is to add quinoa or amaranth to the diet - they are not grasses/grains, but we call them that as it makes them easier to talk about. They are actually seeds. Amaranth especially helped me when I first went grain free - it tastes a bit odd but you get used to it. I have never in my life been more "regular" than when I had amaranth every morning for breakfast.

I'm currently on the low fodmap diet, for similar reasons to why you're on the sibo diet...it is pretty interesting if you want to google it. It separates out types of sugars and then through elimination and adding back, you can see which of these highly fermentable sugars you might have troubles with. Already being vegan I did not have to worry about milk sugar, so mostly I had to quit beans (which I know I do better w/o anyway), onions, Brussels sprouts (totally my favorite), cabbages, zucchini (ate a lot of this) and I think that is mostly it.

Anyway, I'm blathering on due to the crazy low-oxygen anemia brains....but try adding quinoa, amaranth, or sweet potato for feeling full. Cream of cauliflower soup can help too (just cook the cauliflower and then put it in the blender, it creams up by itself, or add some avocado)...if that's allowed on sibo. Good luck to you!

-Sherri
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#632576 Anyone Know How I Can Put Weight On?

Posted by BRUMI1968 on 17 August 2010 - 07:06 PM

And also, I don't know where you live or if this would help you, but I have heard of folks using medicinal marijuana for appetite and nausea problems. I don't know how your upper GI symptoms manifest themselves, but if all else fails, you might look into it.
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#631920 Vertigo And Gluten Connection

Posted by BRUMI1968 on 15 August 2010 - 03:47 PM

It might be related, but it might not.

I got bad vertigo a couple years ago. Just out of nowhere (typically how it comes on) I turned over in bed to get a glass of water and the whole world tipped around and started spinning. Whoa, I thought. Thinking it was over, I got up to go to the bathroom and as soon as I started to lower myself down (I'm a lady, after all) I lost my balance and had to put my hand out on the wall to make it the toilet w/o falling over. Getting up was the same way. This went on, getting fewer and fewer attacks, for a couple days. Then I felt weird for a long time. Then I got the vertigo again, etc.

I do believe I have BPPV (Benign Paroximal P..... Vertigo) which is an inner ear thing. It could be a coincidence with you that it started up with gluten again....but it might not be, as vertigo can come on from more things than BPPV. You should go gluten-free again and see if it goes away. It took me WEEKS if not over a month to get rid of the weird feeling you're talking about in your head. Every time I walked through library aisles or whatever it was worse (aisles of tall narrow places) and walking through doors or tunnels. Then you also get the fear of another vertigo attack. My stomach did not get upset; some folks do get that; but nonetheless, I lived in fear for a while. I ended up getting the whole thing again a few months later, and the recovery was very similar. Now it's been almost a year. I hope I don't get it again, but who can say. I only just started allowing myself to lay on one side in bed (usually one side is stronger for bringing on the vertigo than the other). Yuck. Vertigo. Just wrong wrong wrong. And it's so hard to explain to anyone how disconcerting it is.

Take care and good luck.
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#631731 Too Quick Of A Reaction?

Posted by BRUMI1968 on 14 August 2010 - 03:52 PM

We are new to celiac and going gluten-free. My 3yo just tested positive last week in the bloodwork and had the endoscopy today; GI saw a lot of celiac markers in her instestine (irritation, scalloping). We have been removing a lot of gluten in the past 10+ days but aren't 100% there since school will take a little time to sort through all the art products, etc. My question.........

Once she is 100% gluten-free and her intestine is healed, will she always feel pain if she's glutened? Is she just used to the pain now or will the body be over-reactive to it in the future when it's not an almost-daily occurence?

Thanks!!!



It seems like most of us get more sensitive to being exposed to gluten the longer we go without it. I can say that for me, now when I get bloating/constipation pain like I used to, I'm shocked that I could deal with it so well for 30 years. You do get used to constant pain; and once you go without it, it is hard to get it again. But it does help keep us on track.

I hardly ever get pains now from gluten or other dietary factors, so you can be assured that if you get this thing handled, her life is going to be so much better. Good for you for figuring it out and making that effort.
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#631729 Too Quick Of A Reaction?

Posted by BRUMI1968 on 14 August 2010 - 03:50 PM

I didn't read all the responses, but wanted to say that if I eat gluten, I can feel it within minutes. I get anxiety symptoms almost instantly, tingling in my extremeties, can't concentrate on even people I'm talking with, intense fear and panic, and then end up with digestive symptoms w/i two hours. You can feel it the minute it hits your mouth I bet, if you really get in tune with yourself. Since it is an auto-immune reaction, it is happening as soon as gluten molecules enter your blood stream.

No matter what any doctors say - they are aggregators of scientific study information/averages/probabilites, not of life-experiences of their patients - you can react almost instantaneously. (Not to say I don't like doctors for things like broken bones and stitches.)
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#630130 gluten-free Diet Confusion

Posted by BRUMI1968 on 08 August 2010 - 09:41 AM

Gluten IS on oats, unless they are grown and harvested super-carefully. Wheat sprouts in oat fields all the time, and the grains are virtually identical and cannot be separated. Even with certified gluten-free oats, 10-15% of celiacs don't tolerate them. The medical recommendation is that celiacs who eat oats should go back for another biopsy once they're added to the diet to be sure they're not doing damage.

Sweet and sushi rice are OK.

Here's the thing. The low amount of damage isn't as trivial as your doctor makes out. Autoimmune disorders are progressive and you're young with your whole life ahead of you. Anemia isn't good for you and many celiacs end up with osteoporosis and thyroid trouble. Don't mess up your body by being cavalier about your celiac.



sushi rice is okay if you're buying it uncooked, but there might be a problem if you're eating sushi out at a restaurant. I used to eat at a great sushi place b4 being diagnosed. Then I was diagnosed, and I asked them about a few things. Some of the sushi rice prepared has vinegar or rice in it - anyway, there was a language barrier, but I felt very uncertain that prepared sushi rice was safe at a restaurant.
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