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Katie O'Rourke

Member Since 22 May 2006
Offline Last Active Sep 08 2006 02:13 AM
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Topics I've Started

Can Anyone Help Me?

05 September 2006 - 01:55 PM

Hiya. Sorry wasnt sure which section to put this under, and wondering if anyone could give me some advice as i dont know whats wrong and silly doctors are not really helping.
Basically its exactly 3 years now that I have been diagnosed as coeliac and been on the diet, and adhere to it pretty strictly. Basically when I was diagnosed i had the blood test, followed by the gastroscopy. However, I also had GERD at teh time, and also unexplained intetsinal bleeding, so they did a sigmoidoscopy as well. Basically he said that whenever I get bad diarrheoa my gut cant cope, and my blood vessels are very near teh surface after the villi being destroyed, and told me it should improve with a gluten free diet.
Anyway, 3 years later and the bleeding has just been gettign worse if anything. I always have diarrhoea, and i dotn even have any fibre in my diet so i have no idea why. i still have the bleeding problem as well. some foods in particular seem to set it off, but other times i dont know what it is. i have noticed that nuts and seeds, and dessicated coconut, as well as spicy foods, black pepper and chili are all problem causing. i had trouble if i ate over 15 grams of chocolate a day before the diet, but now i am fine with chocloate. i dotn understand. its very confusing. earlier this year the bleeding got so bad that they were going to hospitalise me, but i really dont like needles and dont trust hospitals, so tried changing my medication instead. (it may be coincidence that this happened a week after i tried oats for the first time since diagnosis but later realised they must have been contaminted with wheat anyway.) anyway at that time my gastroenterologist said he wanted me there so he could do exploratory surgery (!). i was really not keen on this and went to see my GP (normal doctor) instead. he diagnosed me with having IBS (which is often mentioned on this site is aka i dotn know what it is), and gave me mebeverine, and when this didnt work well, gave me alverine as it is stronger, and also gave me procteosedyl and peppermint oil capsules as he said this should help. my gastroenterologist failed to admit he had missed tehre was soemthing else wrogn with me apart from coeliac disease, and was just like "yeah, well IBS is even more common than coeliac disease, 10-25% of people have it". which didnt exactly fill me with confidence that he knew hwta he was doing. anyway what he wanted to do was exploratory surgery, including tying off the blood vessels which were causing the problem. though i think this is stupid - i think he only wants to do it because he wont admit there is another problem until he has seen what it is exactly, and also thsi is stpid, because surely if i accidentally eat soemthing that doesnt liek me again, surely teh bleeding will start again. i need to know what is causing it in the first place. surely he should at least test me for other intolerances causing me to have D all the time before doing surgery?
also my other problem is that it is making me very anaemic - i normally have to take the pill continuously to prevent time of the month, so as to not become mroe anaemic, as the only iron tablets which did not make me ill - Slow Fe, have now stopped being made. and supposedly youre not suppoed to take iron tablets with IBS anyway...
I dont know, any advice please...
thanks

Gluten Free Hotels

15 June 2006 - 01:32 AM

Hi. Just wanted to let everyone know that if anyone is visiting the UK at all, there are actually gluten-free hotels here - usually one of the owners is coeliac, and it means you can have a great holiday without worrying about the food :D
I'm about to leave now to go on holiday - driving down to the south coast of England, and getting the ferry from Southampton across to the Isle of Wight, where we are staying at a gluten-free hotel - and the menu looks really nice :).
http://www.wightstay.../hambledon.html
Anyway, if anyone wants any more info, feel free to PM me or email: katie_orourke_11@hotmail.com
I'll reply when I get back:)

Hiccups

31 May 2006 - 02:20 PM

Hi. I was just generally wondering does anyone on here find they get hiccups a lot more than normal people? I've been noticing that I've been getting them a lot, much to the annoyance of my sister. Get them up to twice a day, 4 days a week, and they last for up to 15 minutes a time. Just wonderign if anyone else has experienced this, and if you have, did it get worse after following the gluten-free diet for a while? Thanks for any replies - I'm just intrigued...

Is Kissing Gluten Free?

24 May 2006 - 07:10 AM

Hiya. Im actually 22, and from the UK, but havent been diagnosed very long and thought you guys may be able to help me out. Do you know if it is safe to kiss guys who have eaten gluten? And if not, is there a certain amount of time you have to wait before you can kiss them? Please help, thanks x :)