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Member Since 06 Jun 2006
Offline Last Active May 25 2008 06:18 AM

Topics I've Started

Advice About 12 Year Old

11 February 2008 - 07:09 AM

Any thoughts about what to do with my 12 year old daughter? She has been gluten-free/CF for almost 2 years. During this time, we weaned her off Lexapro and she was doing better than ever with some episodes of her old behaviour. She was diagnosed with Oppositional Defiant Disorder and Depression. Her therapist and I thought she was headed for a bipolar diagnosis.

I always thought her episodes were due to cheating or mistakes. In some cases, there was some clear gluten or casein cc exposure. Sometimes I was able to confirm that she had been cheating. Many times, she denies it but, let's just say, she isn't known to be honest.

We've had several episodes lately where I am thinking she will need to be put on meds. I really hate to do this because I'm as convinced as I can be that diet is her problem. But there is the possibility that it isn't her only problem. I'm also afraid if she goes on meds that she will take this as permission to eat whatever she wants. I'm also not convinced that if the problem is gluten, any medicine will help. However, I'm concerned her behavior is getting to be unsafe.

I've considered homeschooling her and just not letting her out of my sight for a while to see if I could determine if it was gluten or not, but even that won't work in the long run, if she is determined to cheat.

Any ideas?

Gluten Free Daughter Tests Positive For Igg

29 November 2007 - 07:25 PM

My daughter had a variety of blood tests done by an Environmental Physician. Apparently, he routinely looks for gluten intolerance. :) Her antigliadin Abs, IgA was 2 (positive > 4) and her IgG was 14 (positive > 9) She has been eating gluten free for 18 months. Does the positive IgG mean she is getting some gluten some where?

I am very careful about gluten. We hardly ever eat out and our kitchen is gluten-free. I don't even bring body products into the house with gluten. I will go over everything again, but how likely is it this is just leftover antibodies from 18 months ago?

Disney Cruise And Disney World

07 August 2007 - 06:41 AM

We just got back from our Disney Land/Sea vacation. After reading all the good things about Disney World, I very bravely (and possibly foolishly) relied on them for all of our meals. They did a wonderful job. I don't think there were any mistakes made and I am very sensitive to gluten. My 2 daughters and I also avoid soy and casein.

When we got onboard the ship, the only food option was the buffet. The chef came out to show us what was ok to eat and what to avoid. There wasn't too much that was ok but I am too worried about cc to eat from a buffet anyway. He ended up making us our own french fries, fried in canola oil, since they typically use soybean oil. He also brought hamburgers and a veggie stir fry for my vegetarian daughter. She then asked for some salad dressing and he had to go search for something that would work. He spent a lot of time on us to make sure we had something good to eat.

After that, we ate only in the table service restaurants. On Disney cruises, you rotate through the 3 onboard restaurants, each with their own theme. The wait staff rotates with you so they are aware of any food issues and you don't have to keep explaining it. After the first night, they had gluten-free rolls warmed and ready for us when we got there. The first night was the most limited in choices. They hadn't prepared anything especially for us but they did have steak and chicken on the menu that was ok for us. After that night, we ordered the night before for our dinner. They were willing to make special things as well as modify what was on their menu. They also had gluten-free pasta available.

For dessert, the chef at one of the restaurants brought us chocolate-covered strawberries as a surprise. He also made meringues with fruit and/or chocolate sauce. One night we had apple crisp with Rice Dream ice cream. Someone at the table next to us celebrated a birthday and they brought them a gluten-free/CF cake.

For breakfast, they had gluten-free/CF soy-free waffles and pancakes. At least the waffles appeared to be frozen. I stayed away from those and just had eggs, potatoes, and bacon or sausage.

At Disney World, I made reservations for every meal at a table service restaurant. Our plane was late the first night and all of the restaurants were closed except the counter service ones. We went to Captain Cook's in the Polynesian and of course there was nothing on the menu that was gluten-free/CF/SF. The chef came down from the kitchen upstairs and made hamburgers with gluten-free rolls and french fries. We have not had restaurant fries in over a year and we were very hungry after traveling all day so those french fries were the best food we had on the whole trip! The chef made them just for us in canola oil and brought them down himself when they were done. He was apologetic because they took so long and because he had to use hot dog buns cut in half for our hamburgers but we were just happy to have restaurant food that was safe to eat. He actually comped our meal since it took him so long!

Once we saw that Captain Cook's was able to manage our diet, we ended up eating there most days for breakfast. Every day, we placed our order directly with the chef, who then made it in a separate kitchen to avoid cc. They were able to make pancakes and waffles for us. We also ate at the Ohanu for breakfast.

My husband and I ate at Victoria and Albert's one night. They modified my food to go along with their regular menu. I didn't feel like it was compromised. They said they frequently have to make changes for allergies there. I used to love to go out to nice restaurants for dinner but haven't felt comfortable since finding out about my gluten intolerance so I really enjoyed eating there.

If anyone wants to know exactly what other restaurants we ate at, I will post those. It seems to me that you could eat at any table service restaurant and be treated really well. They seemed more than willing to modify or create dishes that you would want to eat.

My Daughter's Gluten Experiment

04 April 2007 - 12:38 PM

My 11 year old daughter has been gluten/casein free for almost a year. Before this, she was an extremely difficult child. She was even diagnosed with Oppostional Defiant Disorder. 11 months into the diet, I would say the only time she acts that way is when she has some gluten or casein. Sometimes I am pretty sure she has had it because she ate something that said "may contain traces of wheat or milk" and sometimes I am only fairly certain since I am going on how she acts. She has admitted to cheating by trying "a goldfish" or the frosting off from a cupcake but usually when her behaviour is bad and I ask her what she has eaten, she says "nothing". But life in our house has definitely improved since she has been on the diet.

Apparently, when she started the diet, I told her she could do a gluten challenge after one year. My husband is not totally convinced she needs to be on this diet but he has said he thinks it helps. So he wants her to do the challenge. So last night, without telling my husband, I let my daughter eat chicken nuggets and a fortune cookie. She was difficult this morning but not as bad as I thought she would be. I see the connection but it is not enough for my husband to agree there is a definite link. My thought was she would be in such a bad mood that he would notice and probably point out that the diet wasn't working. ;) Unfortunately, since her reaction wasn't that bad, it probably will undermine my whole argument with both of them that she needs to be on this diet.

So my question is do you think I should continue to let her eat gluten until her behaviour is so bad that it is clear to everyone (my husband and her) that she needs to be on this diet? I'm concerned then it will be very difficult for her to go back to the diet, not to mention how difficult she will be during the challenge. My symptoms (mood) take 2 1/2 weeks to go away so it will be a long time if hers take that long. I'm also concerned about her sister because she can be very mean and violent when she's had gluten and her sister gets the worst of it.

After I agreed to let her challenge it last night, she told me the day before she had cheated and had a fortune cookie. Just that morning, she had been very mean to her sister and hit her and I "knew" she had cheated but she didn't admit it. So this, to me, proves the point but it isn't enough for her dad.

Of course, there is the possibility, I am wrong and she doesn't need to be on the diet. :ph34r: She's only been diagnosed by Enterolab and my observation of her diet response.

Sorry this is so long. Thanks to anyone who has it all.

Cape Cod Potato Chips

01 April 2007 - 02:43 PM

I called the Cape Cod potato chips customer service to find out their gluten status. She said the only ones that are really gluten free are the russet brown chips. Some of the other ones, like the original, do not have any gluten-containing ingredients but are manufactured in the same room as some that do have gluten. According to her, the gluten is in powder form and is "flying around".

Just thought I would share for those who don't like gluten flying around their food! :blink:

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