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Member Since 24 Feb 2004
Offline Last Active May 22 2004 04:57 PM

Posts I've Made

In Topic: What Do You Do?

27 February 2004 - 06:34 PM

I use Calendula First Aid cream from California Baby for our kids. It works great. They have many gluten free products free of harmful chemicals too. Downside..it's pretty expensive. They have a website www.californiababy.com. I also sometimes just use coconut oil that I keep in our pantry for cooking.


In Topic: Eating by blood types

26 February 2004 - 02:43 PM


I've read D'Adamo's works and find them interesting but still had questions. I do agree that one man's medicine is another's poison and regional influences & food eaten in those regions played a monumental role in developing the different blood types. I thought...Okay some blood types have evolved to digest grains, but they needed to evolve and adapt to them...they weren't in their diet prior to agriculture because grains and beans just weren't worth the effort and didn't taste good uncooked. It seems that grains came into the picture only when populations grew and there was food shortage. It took thousands of years for certain blood types to evolve to digest a food that is essentially designed to be undigestible (contains very tough storage proteins designed by nature to withstand the cold in order to grow into a new plant...not so good travelling throough the human's digestive track). So I guess I just question their usefulness in our diet. Especilly since now there is evidence that we need far less of them then previously believed. Granted I can't pretend to be an expert as I had a big struggle giving them up and still crave them. I just know it feels better if I avoid them and my daughter is healthier. She too had trouble digesting meats until we removed all grains (the fat digestion seemed to be a real issue). We eat very little red meat... mostly fish, poultry and lots of veggies and fruits. And I guess I'm not suprised, when I think of things from this perspective, that so many people have trouble with red meat as most cattle are primarily "grain fed" in today's world when their natural diet is to eat the grasses not the grain. They are fed the grain to "fatten" them up because it gives them the flavor the consumer seeks (which is basically the flavor of toxins accumulating in the fat of unhealthy cattle....UMMM sounds appealing huh?). Is the grain making them more unhealthy too, promoting more disease in livestock which is then treated with courses of antibiotic, etc. It doesn't seem too far fetched considering the damage gluten does to us.

Just more food for thought.

In Topic: Confused...please Help!

25 February 2004 - 10:02 PM


Our daughter Samantha was the same weight at 15 mos as your daughter. We had done a great deal of our own research after getting lots of strange blood results from a variety of specialists who could offer no real answers on how to HELP our daughter. She had extremely low neutrophil count (part of her white blood cells that help fight infection) which the Hematologist classified as "Autoimmune Neutropenia" and said she would most likely grow out of it by age six but gave no explanation as to how this occurs or advice on how to keep her healthy. By the way, he is very well known for treating kids with cancer and people travel from other states to see him. My sister died of leukemia, so going to this office was a CONSTANT reminder of that and I would get so emotional each time I had to bring her. It served as good motivation to seek my own answers to the questions we had. Anyway, we suspected she had a dairy allergy at first and took her off dairy. At the next office visit, following the removal of dairy, her neutrophil count was near normal. But her weight was still very poor and so I asked her pediatrician for a referral to an allergist since we were beginning to suspect that her food sensitivities went beyond dairy.

Well we waited a very long time to see the "highly recommended" allergist who disappointed us with his complete lack of bedside manner and disregard for our input. Then we waited weeks for the results. Samantha's tested negative for all the common allergens because her IgA was undetectable. The allergist said "although we tested for x, y, & z we cannot tell you whether or not she is allergic to them". He actually told me that her results looked like that of a malnourished child. Mother guilt set in....I was NOT starving my child. I struggled with her constantly to get her to eat. Eating was painful for her. She would get sores in her mouth (associated with the low netrophils...also with Celiac which I later learned...I get them too). I was soooo discouraged...I thought for sure we'd get some direction from the allergist. He did suggest we see a GI as it was obvious that the immune response was happening upon digesting certain "unknown allergens".

So we got that referral and the appointment was set again for a LONG time into the FUTURE. The pediatrician ran tests on her stool for parasites which came up negative. So we decided to take Samantha to Naturopath in the meantime. We were fed up with specialists compartmentalizing our daughter and failing to she her as a whole little person with systems that interact. Upon the naturopath's recommendation and our own research we decided to remove the gluten (& soy which also seemed to effect her) from her diet. Finally, improvement! She was having more good days. Less irritable, less diarrhea (she had been having an average of 6-7 poopy diapers daily), and gaining weight. At our next appointment with the Hematologist her blood counts (other than mild anemia) were also within normal range. We went a couple of more times to this office before seeing the GI...the results stayed & her neutrophils continued to improve.

Finally got to see the GI who reviewed all the info and was very open to our input and research. She could not order the endoscopy because she knew it might show a false negative but said she was 90% certain Samantha has celiac disease with IgA deficiency. Because we were finally seeing a weight gain she agreed not to gluten challenge her for the sake of the endoscopy.

At our next appointment at the Hematologist, Samantha was released! Her tests were completely normal including the anemia.

Still I could see that more improvements could be made with her diet. She seemed to be existing on rice, rice milk and any alternative gluten-free "Carb" she could get. The more ingredients the worse her digestion. Some of the gluten-free ingredients in mixes seemed to cause problems (esp. potato starch and bean flours) as did many of the grain alternatives (quinoa, millet). So I did some additional research and found info on the Paleolithic diet. This diet recommends eating only foods that could be eaten uncooked in Paleolithic times as foods such as dairy, grains, potatoes, beans, were not consumed because they are essentially toxic without a great deal of cooking or processing. It made sense and seemed to spell out all the foods our daughter was having trouble with.

Samantha now eats only meat, fish, veggies, and fruit (mostly organic). It cuts out the guess work and she is doing great. I'd even say she's getting a second chin. Still irritable at times (but it may just be the age and her temperament). We haven't seen a doctor since December! She poops 1x per day and sometimes even skips a day. Days seem long sometimes. I am constantly in the kitchen because she is always demanding food (catching up I guess) and when I get frustrated I need to remind myself that less than 6 months ago I was pleading with her to eat.

I am sorry this is so long but want to say...Please keep seeking those answers. When I felt hopeless our naturopath said to me,"Never forget, the human body has a remarkable ability to heal itself." It was such a simple statement but has kept me striving for the keys to health and not falling too deep into the disease mentality.

In Topic: Testing

25 February 2004 - 07:48 PM

I am currently struggling with the same issue. My 22 month old daughter is "most likely" Celiac. We started her on the gluten free diet prior to getting the tests done too. Her tests showed IgA deficiency so this made her tests negative. However, since IgA deficiency occurs most commonly in people with celiac or diabetes type 1 her GI was able to tell us with a high degree of certainty (based on other factors as well) that our daughter has celiac disease but can't put the "official diagnosis" on record until the endoscopy is done. The GI agreed that doing a gluten challenge for the sake of the endoscopy at this time was not wise as our daughter was seriously underweight and had finally been showing improvement.

Then my husband and I were tested and all our results came back negative (also still waiting on results for our 4 year old daughter). I am pretty certain at least one of us carries the gene if not both of us. I have many of the classic celiac disease signs (short stature, digestive problems, recurrent miscarriages, history of allergies and family history of gastro & autoimmune problems) and my husband has a nephew with Autism and a mother with Fibromyalgia. I was gluten free along with our youngest daughter and feeling much better but decided to get tested and gluten challenged myself. I'm feeling AWFUL... all for negative results (processed by Quest which I've now learned is not welltrained at processing these tests). Now I wonder if I should continue to pursue a positive result while I'm still ingesting gluten. I read a lot on this board about EnteroLabs and people getting better reliability with these tests. I'm not sure I am ready to pay out of pocket to learn that I should avoid something I know makes me feel bad anyway. I might opt to order just the gene test figuring if the gene is there that will be enough proof for me. As for my daughter, I don't plan to gluten challenge her ever. I know I did it to test but I can't see the rationale personally. She was very sick and I do not want to do her body harm for the sake of proving her villi is flattened by gluten. Her GI is very understanding and I'm sure will help us regardless of our choice to forego the endoscopy.

It is unfortunate that we should need to go to these extremes to get PROOF. I have been trying to ask myself what is my own motivation behind trying to get the PROOF. I think it has more to do with trying to boost my self-control (a recovering cookie addict here) and proving to my family that it is not in my head (and that they too could improve their own health) than actually having it medically documented. I've been doing a lot of research on the Paleolithic Diet and the foods our bodies are designed to digest. From what I've read, I am now convinced that grains (amongst other foods: potatoes, beans, and dairy) are not good for anyone regardless of an autoimmune response to them. My daughter is doing so well on this diet. It is very limiting (only meats, fish, vegetables, and fruit) but very satisfying once you get used to it. When I stopped trying to substitute the baked goodies with gluten free alternatives and took all grains of her menu her health improved drastically and she is now gaining weight steadily. I am already a bit panicked about when she is old enough for school. Right now she doesn't remember what a cookie tastes like and is not tempted with sitting next to someone eating one but in a class setting when there are parties, etc.... I am so hoping people will be more enlightened about the dangers of grains before she goes to school. My 4yr old eats gluten free at home but she does get the goodies at school (UGHHH). I feel mixed about what kind of results I'd like to see her get. While I don't want her to be celiac disease, again it feels no one will take my concerns seriously in the schools or medical offices otherwise. I would like her to be gluten free regardless of her diagnosis.

Oh this crazy world. Hopefully, the Low carb craze is here to stay and people will start asking WHY these foods are so bad for you and concern themselves more with TRUE health than with simply losing weight. And maybe..just maybe...we as adults will begin to question why we are still feeding our children foods that are causing adults to become seriously ill and overweight. Why are we setting them up like this? It'll be a long fight though...these foods are so addictive! Sorry for ranting...

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