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imsohungry

Member Since 29 Jun 2006
Offline Last Active May 01 2011 01:38 PM
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#637665 Canceling My Colonoscopy

Posted by imsohungry on 07 September 2010 - 10:01 AM

I'm confused. Why are you gluten challenging when your doctor told you that you were latent celiac? Did he explain that celiac disease is progressive and the more gluten you expose yourself to, the worse the autoimmunity can become?

Get off the stuff and get well again. Things should start to settle down in a couple weeks. If you're so weak on gluten challenge that you can't even tolerate a bowel prep, you have your answer about celiac anyway. Do yourself a favor and refuse further challenges to avoid making your gluten problems worse.


The reason I continued eating gluten after my pregnancy is because my new GI did bloodwork that came back normal (I had to change GI's once my other one moved out of state) and the new GI also told me that I didn't need to be gluten-free. :blink:
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#637596 Canceling My Colonoscopy

Posted by imsohungry on 07 September 2010 - 05:51 AM

Your doctor does sound clueless if he was looking for celiac with a colonoscopy he wasn't actually looking for celiac at all.
I find it interesting that your symptoms resolved while you were pregant and resumed the baby. I don't know if it is common but I saw the same effect when I was preggers with my second child. I had horrible morning sickness but once that was over I felt better than I had in a long time. Of course symptoms came back with a vengance after she was born.
Have you had a celiac panel done? Your regular doctor or even your OB/GYN could order it. You do need to have that done before you go gluten free of course.
As far as healing times goes it can vary. I had a resolution of my D and migraines within a short time, like about 2 weeks but the rest of the issues took much longer. Healing can take some time but if you go with a whole food unprocessed diet and do the things you need to do to be safe at home that will help speed things along.
I wish you the best and although I think you did the right thing to cancel with this clueless doctor do be sure to find a new GI who is more celiac savvy in case your issues don't resolve. You may want to consider finding a new one before you go gluten free if you feel you need a formal diagnosis with the endo. Some GP or Internists may diagnose based on blood test or symptoms resolving gluten free but not all will.


Interesting that you had the same results when you were pregnant! I had horrible morning sickness through my first trimester and lost a lot of weight, and then I started craving Krystal hamburgers (like White Castle burgers). I could eat 10 at a time! But amazingly, I wasn't doubled over with pain and diarrhea.


I have had a blood panal done by a good GI who has since moved out of state; his results came back partially positive (which means inconclusive), but he told me to go gluten-free because of my family history of celiac and GI problems. He also said that my personal symptoms and other autoimmune diagnoses led him to believe that "in [his] professional opinion," if I didn't start the diet, he would be seeing me back in five years with full-blown celiac with intestinal damage.

Sigh....I just want to feel better. :unsure:
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#637586 Canceling My Colonoscopy

Posted by imsohungry on 07 September 2010 - 04:44 AM

Hi everyone,

I'm supposed to have a colonoscopy tomorrow, but I'm canceling it. Besides my Dr. being condescending...I've since realized that a colonoscopy is not the test to get for Celiac testing, and that is how he says he tested for it last time.

I am also too weak for the prep. required for the test. A whole bottle of Miralax and 4 Ducolax tablets. I'm already having D 5-10 times a day (the other day, 12). I don't have enough strength not to eat AND take all that to "flush" out my system.

Meanwhile, while I postpone the test(s) and look for a new GI, I was wondering, on average, how long it takes to see results once one goes gluten-free?
I've been gluten-free before, and my stomach regulated itself. It wasn't until this doctor told me to eat gluten again that my tummy started acting crazy.

What actually happened was that I ate gluten during my pregnancy, and I had no bad reactions. Once my son was born, my symptoms came back. This doctor told me it obviously wasn't gluten sensitivity or intolerance or I would have been sick during my pregnancy. Nonetheless, gluten-free is the ONLY time my stomach has functioned "normally." Any thoughts? Any ideas on when I should start feeling better after going gluten-free again...I know it varies by person, but is there a "general" time-frame? Thank you. :)

-Julie
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