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Member Since 07 Jul 2006
Offline Last Active Feb 25 2009 05:31 PM

Topics I've Started

Tendinitis Treatment

02 September 2006 - 09:51 AM


Quick question. I've been receiving treatment for elbow tendinitis for the past couple weeks. In addition to the icing, streaching, and strength training, they have been treating my elbow with dexamethasone (synthetic steroid anti-inflammatory) delivered via iontophoresis (driving the drug via electrical stimulation from a patch, through the skin, to the target area).

The drug itself is gluten-free. The delivery method should be no problem for those with celiac. The delivery method is also praised for it's ability to reduce/eliminate side effects normally associated with ingestion or injection delivery of the same drug.

Has anyone else done this treatment? My digestion has been somewhat unsettled since commencing the treatment. Nothing crippling. Not a gluten reaction. But has anyone else experienced minor discomfort from this treatment? GI issues? Fatigue?


Casein Intolerance

29 August 2006 - 08:42 AM

1) Can anyone point me to a study/paper that talks about casein intolerance and damage to intestinal villi? Is it an autoimmune reaction or a food sensitivity?

2) For those that have determined they are casein intolerant, do/did you get a reaction every time you ingested dairy?

I've been on the gluten-free diet for 7 weeks. I've consumed some dairy most every day. I've been having a few bad days interspersed with my mostly good days. If casein (or lactose) was a problem, wouldn't I have a reaction everytime/everyday?

What Does A Bad Day Feel Like?

28 August 2006 - 10:08 AM

So I've just finished up Week 7 post-diagnosis. By and large I'm feeling pretty good. Actually starting to put a little weight back on (only a couple pounds, but it's a start). We have been very alert about gluten exposure and I'm comfortable in saying that I've been gluten free.

During the seven weeks, I've had roughly 3 bad stretches lasting a day to 4 in duration. One of them I'm able to attribute to some medication reaction, so that is understandable. The other two have been more of a puzzle. I understand that recover takes time. There will be bad days as well as good. I wouldn't say the bad days are a result of gluten. They're not as bad as prediagnosis. The nausea never builds to anything worse. The D never really becomes 'D', if you know what I mean. Soft and unpleasant, but no real cramping or explosive pressure.

So, after that preamble, what were your immediate, post-diagnosis, non-gluten caused bad days like? I have a life to lead outside of this condition, so I'm going to work and trying to do the things I've always done (without overdoing it, of course). During these bad days I've had to miss a bit of work. Any recommendations (medication or otherwise) to help get through these stretches without having to go 'hermit' for a day or so?

I'm keeping a food log (mostly to track calories) and have not noticed any connection between what I've been eating and when the bad days occur. After only 7 weeks, I'm not willing to go searching for additional food problems when it's highly likely this is part of the 'normal' recovery.



09 August 2006 - 10:21 AM


I'm looking for a gluten-free shampoo. I'm still on the fence that this is necessary, but I figure it's one less thing to worry about, right?

I utilize the Clan Thompson drug list (which includes shampoos) and I've reviewed the Delphi list (which seems a bit dated). It seems that everything that I've used in the past is in that 'unknown' category. For example Suave (Unilever) says to check the label. That's great, but I don't speak shampoo bottle chemical-ese. How does a person know the source of some of those polysyllabic ingredients?

Anyway, I'm currently using J&J Baby Shampoo, but it doesn't lather worth a crap. I don't need something organic, or animal safe, just safe for me and hopefully cheap.

Any advice? Thanks.

Recovery Question

09 August 2006 - 08:24 AM

I've been on the diet for 4 weeks now. The first two weeks went really well. I'm confident I've removed all sources of gluten (haven't eaten out or done anything risky).

At the start of week 3 things began to go sour. Moderate to severe nausea. Difficulty eating enough. Stools have gone soft (not really D, not more than twice a day). I had started taking some Advil to treat some elbow tendinitis. My doc thought this might have been a mistake. Irritated my stomach. Gave me some Prevacid to calm things back down.

Since starting the Prevacid the long lasting nausea has gone away. I've been able to up my caloric intake (I'm pushing hard to gain weight) to my target levels. However a more low-grade of nausea has replaced the previous issues. After I eat (lasts about 1 hour) I experience nausea (but no vomitting, and it doesn't seem to build into anything else). My stools are still soft (they were strangely perfect for the first two weeks after months of D), but it's still not D. My appetite returns for the next snack/meal, but after eating...nausea again. I've stopped the Prevacid, hoping that's the cause. I've been on Bentyl, Advil, and Prevacid one after the other for the past 2 weeks. So there is a strong feeling on my part that the meds are keeping me from feeling my best.

I guess I'm looking for some recovery guidance. Is the nausea part of the healing process? What was the 1st couple months like for some of you veterans? I'm keeping a food log, more to track calories than anything else, but I'm not seeing any correlation between foods and effects. Nothing I'm eating is making me feel worse than I did before diagnosis, so maybe I just need to develop some patience (something I'm not good at).


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