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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Blanco replied to Blanco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15
1540 TTG Results... Help!
Hi @Scott Adams Thank you for the info it's really useful. The doctor did say the specialist might not do the biopsy but it is the specialist I have been referred to that has to make the diagnosis as far as I am aware so I am waiting for the appointment. Our healthcare system here in the UK is very different to America so forgive me if I don't articulate... -
- Blanco replied to Blanco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15
1540 TTG Results... Help!
Hello @Rogol72 Thank you for the info, I don't have private health care here in the UK so unfortunately I can't see this guy without paying for it myself which I'm not in a position to do. -
- knitty kitty replied to susiegoldcoast's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
Waves of nausea after quitting gluten
How are you doing, @susiegoldcoast? -
- knitty kitty replied to Vicrob's topic in Related Issues & Disorders1
Gluten ataxia
@Vicrob, There's a connection between increased liver enzymes and Thiamine deficiency. Thiamine deficiency is a result of malabsorption due to Celiac Disease and increased demand during illness. Thiamine deficiency can cause Ataxia. Thiamine deficiency can cause lesions on the brain. Thiamine deficiency can cause neuropathy. Thiamine deficiency... -
- Blanco replied to Blanco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15
1540 TTG Results... Help!
Hi Christina! Thank you so much for your in depth reply it's nice to hear from a fellow Brit as the health care system here is a lot different to the US as you know. I am waiting for my referral and I'm going to see what they say at the appointment, the GP did say they might well just confirm the diagnosis without a biopsy and they may want to...
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