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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- cristiana replied to Hailey niemann's topic in Coping with Celiac Disease5
Can you get more EBT benefits if you have celiac disease?
Hello @brian1 I'm a UK based Moderator here on the forum. If you are British, you may find that in your region you might be able to get certain gluten-free food (usually staples like bread) on prescription. I recommend you ring Coeliac UK for the most up-to-date advice on this. https://www.coeliac.org.uk/home/ There is some advice here for... -
- Scott Adams replied to GardeningForHealth's topic in Coping with Celiac Disease10
10 years later, my celiac is progressing
Legumes can be a source of wheat contamination, but I assume that you use versions labelled "gluten-free." -
- Scott Adams replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Waiting for urgent referral.
Be sure all testing is completed before going gluten-free, that is, unless you are certain that gluten is the culprit and have decided not to eat it again. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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