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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Sobiha replied to Sobiha's topic in Related Issues & Disorders2
Additional allergies
Hi Scott Thank you for your reply I don't think I'm having any gluten in my diet. I only cook fresh food at home and I'm really careful about reading labels. On the whole my symptoms have improved and I'm feeling very much better. However, I still do have the occasional 'attack' severe stomach pain and vomiting which probably happens about once... -
- lasthope2024 replied to lasthope2024's topic in Food Intolerance & Leaky Gut3
help? This forum might be the last hope I have in my life. Please I beg you
I will look into this first thing tomorrow, as when I was first diagnosed I was tested for b12 and I was deficient. This has been incredibly helpful and I thank you. If there's anything else you can think of as you read my story I'd really appreciate it. My only concern when taking supplements is if they're deluded/low quality and not really gluten... -
- knitty kitty replied to lasthope2024's topic in Food Intolerance & Leaky Gut3
help? This forum might be the last hope I have in my life. Please I beg you
Welcome to the forum, @lasthope2024, Blood tests are not reliable measures of vitamin deficiencies. Antibiotics are known to cause Thiamine Vitamin B1 deficiency. Gastrointestinal Beriberi is caused by Thiamine deficiency. "At age 14 I started having constant, chronic abdominal pain and acid reflux (also constipation and reduced... -
- trents replied to lasthope2024's topic in Food Intolerance & Leaky Gut3
help? This forum might be the last hope I have in my life. Please I beg you
Welcome to the forum community, @lasthope2024! Many of the symptoms you describe seem to have been temporary and transitory. What would you say is your biggest current cause of concern and suffering? May we ask you age? -
- lasthope2024 posted a topic in Food Intolerance & Leaky Gut3
help? This forum might be the last hope I have in my life. Please I beg you
Please take a moment to read this. your testimony might save my life. I am 21 years old (from a third world country) in my childhood I never had any stomach issues aside from recurring mild gastroenteritis (a few days every couple of months which went away on its own) some times could go six months to a year without any illness at all. At age ...
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