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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- JustGemi replied to JustGemi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
SCARED: What Do These Test Results Mean?
Thank you! What do you recommend in the next 7 weeks until I see my Doctor? Just start my Gluten free diet? -
- Scott Adams replied to Raquel2021's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Went to see a gastroenterologist today and
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The... -
- Scott Adams replied to RILEYW's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
I don’t have a diagnosis but I’m pretty positive I have celiac and have ongoing GI Problems
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- Scott Adams replied to JustGemi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
SCARED: What Do These Test Results Mean?
So if the normal range for your tests is below 15.0 U/mL, and your results are 120.9 U/mL HIGH, it definitely looks like you could have celiac disease. Your doctor may want to schedule an endoscopy to confirm this, but with such high results it is also possible that the diagnosis might be made on your blood test results alone (more info on that is below)... -
- JustGemi replied to JustGemi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
SCARED: What Do These Test Results Mean?
The Tissue Transglutaminase Iga: It says at the top of the page....Normal range: below <15.0 U/mL The numbers on the top/left of chart start at 123, 122.121.120.119 My Results 120.9 U/mL HIGH ___________________________________________________________________ The Gliadin AB Iga: It says at the top of the page....Normal...
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