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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- trents replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Partial Positive Biopsy/Negative Serology - is celiac still possible?
1000 mcg of B12 supplementation is peanuts. You should be taking 5000 mcg. and you should be taking a high potency B-complex to boot. The B-vitamins are seldom found in isolated deficiencies but are usually deficient as a group. If you live near a Costco, their Nature Made product line is a good choice and if gluten free will be labeled as such. Most of them... -
- gameboy68 replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Partial Positive Biopsy/Negative Serology - is celiac still possible?
I am taking 1000 mcg of B12 each morning @trents. I also eat a lot of B12 in my diet which is why I was surprised it was so low. My OBGYN (who ordered the test) said that most of her patients are at 900+ for B12, which also shocked me! I have not been tested for iron deficiency/anemia, but I will look into that. -
- Celiac16 replied to Katanya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Also having vision issues
Thiamine supplementation (vitamin b1 ) really helped my POTS! I was also always having low blood pressure which it helped. Whenever I hear POTS, I suggest it bc my doctor says I’m borderline now and may no longer have it! I previously had mild acidosis in my labs with elevated anion gap and lactic acid with shortness of breath and severe wooziness. ... -
- Celiac16 replied to Cramper's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms24
26 years old and feel like an 80 year old
Going low carb helped me tremendously with postprandial bloating, fatigue, nausea, and sometimes vertigo. I was strict gluten and dairy free for years but I didn’t feel like it was enough. I eventually experimented eliminating grains and then cutting out all carbs and sugars and all my symptoms improved. I’ve been able to put on weight which was never pos... -
- trents replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Partial Positive Biopsy/Negative Serology - is celiac still possible?
How many mg or IU of B12 are you taking daily? One way to address malabsorption inefficiency is to just take more of the supplement. For example, if your absorption efficiency is 25% of normal, you could theoretically, uptake the same amount as someone with 100% absorption efficiency by taking four times as much. Are you also anemic by some chance? B12 uptake...
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