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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- plumbago replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Partial Positive Biopsy/Negative Serology - is celiac still possible?
Thanks for clarifying that, Trents. In my response, I misread the celiac panel results, totally! So I retract that first sentence which was based on the misread of the antibody tests. But @gameboy68, as Trents says, the endoscopy/biopsy results do likely point to (or align with) celiac disease. -
- trents replied to gameboy68's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Partial Positive Biopsy/Negative Serology - is celiac still possible?
Your symptoms definitely align with celiac disease and your endoscopy/biopsy certainly points to possible celiac disease. However, your celiac antibody testing does not. This could very likely be due to inadequate gluten consumption during the weeks/months leading up to the blood draw. Guidelines for the gluten challenge are evolving but the current trend... -
- Scott Adams replied to normagain's topic in Related Issues & Disorders1
What else can endoscopy detect
It's not uncommon for individuals to suspect yeast overgrowth or candida, especially given the range of symptoms they can cause. While endoscopy is a valuable tool for examining the upper digestive tract and identifying certain conditions like reflux, ulcers, and inflammation, it may not directly visualize or diagnose conditions like SIBO (small intestinal... -
- Scott Adams replied to Tyrexs's topic in Gluten-Free Foods, Products, Shopping & Medications1
Great Value Almond Flour
I see "gluten-free" on the front, so yet, it is safe for those with celiac disease: https://www.walmart.com/ip/Great-Value-Superfine-Blanched-Almond-Flour-2-lb/896217647 -
- Scott Adams replied to Denise I's topic in Gluten-Free Foods, Products, Shopping & Medications1
A & W Root beer gluten free?
Yes it is:
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