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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- brittanyf replied to brittanyf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Lots of celiac symptoms but negative blood test? Need advice!
Thanks for your reply! Here were my results: tTg-IgA: <2 U/mL (standard range=0-3) tTg-IgG: <2 U/mL (standard range=0-5; weak positive 6-9, positive >9) Endomysial Antibody IgA: Negative (all it says) * I guess I’m just concerned/confused with symptoms of malabsorption and if anyone has had similar issues with NCGS? (Fatty/pale s... -
- Sobiha replied to Sobiha's topic in Related Issues & Disorders4
Additional allergies
Hi Scott No, there isn't any mould but the road outside our house has got a lot busier lately. A lot more houses have been built in the area and I wonder if road pollution has something to do with it. -
- Scott Adams replied to nanaimobar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Doc says I have celiac, despite no GI symptoms?
Many people with celiac disease don't have symptoms, so your doctor is correct to make this diagnosis based on your results. Did they refer you to get an endoscopy to confirm this? If so, you need to continue eating gluten until all tests are completed, otherwise you might get false-negative results. This article might be helpful. It breaks down each... -
- Scott Adams replied to Ading69's topic in Traveling with Celiac Disease1
Seeking Gluten-Free Advice for My Trip to South Korea!
I've never been there, but this may be helpful. Here's a concise gluten-free restaurant card in Korean along with its English translation: ---Korean: English Translation: This card should help convey your dietary needs clearly in Korean and English when dining at gluten-free restaurants or explaining your requirements to restaurant... -
- Scott Adams replied to Sobiha's topic in Related Issues & Disorders4
Additional allergies
Is there any chance you have mold or mildew somewhere in your home? I've heard some horror stories about people who get major allergy and other health issues, and then discover black mold in their home.
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