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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- B1rdL0ver replied to B1rdL0ver's topic in Related Issues & Disorders44
Dealing with constant nausea and just feeling awful.
@trents, okay I will! Thanks ! -
- shadycharacter replied to Linedancegal's topic in Introduce Yourself / Share Stuff3
25 year biopsy confirmed/ate pizza with no ill effects?
Fermentation breaks down some of the gluten in wheat. Nowhere enough for a wheat dough to become gluten free, but the gluten may be significantly reduced. I think some pizzerias make the dough the day before and leave it overnight. The longer the microbes are acting on the flour, the better. -
- trents replied to AlyO's topic in Parents, Friends and Loved Ones of Celiacs3
Possible gluten exposure in 4yo
And the fact is, no two celiacs will necessarily respond the same to gluten exposure. Some are "silent" celiacs and don't experience obvious symptoms. But that doesn't mean no harm is being done to their gut. It just means it is subclinical. -
- AlyO replied to AlyO's topic in Parents, Friends and Loved Ones of Celiacs3
Possible gluten exposure in 4yo
Thank you, Trents. I appreciate your helpful and friendly reply. It seems more likely to be a bug. It has been a pretty severe bought. I feel that I don’t have enough experience to know what signs my little one shows after exposure to gluten. -
- trents replied to Hannah24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Negative Test but I have All the Symptoms!
Hannah24, be aware that if you are on a gluten free diet, you will invalidate any further testing for celiac disease (except genetics) and would need to go back to eating significant amounts of gluten for weeks or months to qualify for valid testing.
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