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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Katiec123 replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Finding out I’m coeliac whilst pregnant
@RMJ this is really concerning and my GP has said none of this to me! -
- RMJ replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Finding out I’m coeliac whilst pregnant
Undiagnosed (and thus untreated) celiac disease is associated with a higher chance of miscarriage. The downside of continuing to eat gluten now is increased chance of miscarriage. The downside of stopping gluten now and having to restart later to get a clear, official diagnosis is that you might have worse symptoms eating gluten after being gluten... -
- cristiana replied to Blanco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16
1540 TTG Results... Help!
@Blanco - you are most welcome, and I am glad to hear you have made your glutinous bucket list! Just before my biopsy, after the shed loads of Weetabix and Penguins I had eaten, I had a terrible tight headache across my forehead, something I'd suffered from a child and had just thought was a headache at the time. Maybe my body was trying to tell me something... -
- Katiec123 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Finding out I’m coeliac whilst pregnant
Hi everyone! I’m beginning to get a bit worried. I have had the first lot of tests done and my bloods are showing as a very strong positive for coeliac. I am also currently pregnant. I have been told to continue to eat gluten until more testing is done (biopsies). If I continue to eat gluten when the chances are very high that I am coeliac, will this h... -
- Spacepanther replied to Moodiefoodie's topic in Related Issues & Disorders5
Joint swelling when ill even on gluten-free diet
I have had joint pain as one of my dominant symptoms. I've wondered, mostly to myself until now, whether it could be related to another autoimmune concern. Have you had any ideas of what else it might related to?
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