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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Mari replied to goatmanvevo's topic in Coping with Celiac Disease3
Diarrhea vs Constipation
Hi Goatmanvivo, When I worked in medical labs we would examine fecal samples routinely noting the color, consistency and whether there was any blood or undigested food observed. Fresh blood as you described was noted as was an occult blood test reported. Fresh blood is usually from the large intestine and older (occult) blood is an indication that the... -
- knitty kitty replied to goatmanvevo's topic in Coping with Celiac Disease3
Diarrhea vs Constipation
@goatmanvevo, You may want to keep a food-mood-poo'd diary. Tracking irritating foods is much easier with a diary and helpful to doctors and nutritionists. Sometimes while healing we can react to other foods. Eggs, soy, and other grains like corn may be difficult to digest and may provoke gastrointestinal symptoms. Lactose intolerance or a... -
- RMJ replied to Shellly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Negative, positive and then negative blood test
Did you change your diet in between tests? -
- knitty kitty replied to heyitsme's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
How long until brain fog lifted for you? + my story in short
Welcome to the forum, @heyitsme! Your experiences and symptoms sound similar to mine when I had Thiamine deficiency and other nutritional deficiencies. You can read more of my story in my blog. Elevated liver enzymes are a symptom of Thiamine deficiency. Dizziness, especially after changing position could be Postural Orthostatic Tachycardia... -
- gregoryC replied to gregoryC's topic in Traveling with Celiac Disease6
Celebrity Cruise for Gluten Free
I did not see this on ours. I did notice both items and they were not listed as gluten-free. I have found the best experience starts with the Main Dining Room (MDR) head waiter. I have always talked to the MDR head waiter first, then he would bring the executive chef out to meet me at our table. Doing this I have found is the best time to challenge...
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