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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- JustGemi replied to Hannah24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Negative Test but I have All the Symptoms!
Scott, Can you look at my post and tell me if my numbers are off the chart!? I won't be able to see my Gastro for another 7 weeks and I am freaking out at the numbers. JustGemi -
- Scott Adams replied to JustGemi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
SCARED: What Do These Test Results Mean?
Welcome to the forum! Could you also post the reference ranges for your test results, unfortunately each lab has a different range, so there is no way to interpret your results without that info. -
- Scott Adams replied to Hannah24's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Negative Test but I have All the Symptoms!
The number of genes associated with celiac disease is more than two, but there are two main genes that are commonly tested for celiac disease susceptibility. These genes are HLA-DQ2 and HLA-DQ8. HLA-DQ2: The majority of individuals with celiac disease (about 90-95%) carry the HLA-DQ2 gene. HLA-DQ8: Around 5-10% of individuals with celiac... -
- Scott Adams replied to Linedancegal's topic in Related Issues & Disorders6
25 year biopsy confirmed/ate pizza with no ill effects?
The whole point of the gluten-free diet is to send the disease into remission. For some this process means strong reactions when exposed to even trace amounts of gluten, while for others it seems they have little to no reactions when exposed to larger amounts of gluten. In either case, research has shown that repeated gluten exposure will trigger the autoimmune... -
- JustGemi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
SCARED: What Do These Test Results Mean?
I just got two test results from bloodwork I recently did. According to my numbers, it's looking like Celiac disease but I cannot see my doctor until next month. Can this be true? My numbers are so elevated this is ALARMING! Tissue Transglutamine 120.9 Gliadin Antibody IGA/IGC 62.1 Please shed some light on my numbers....
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