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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- trents replied to ekelsay's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
50 YO Male Recently Diagnosed with Celiac Disease
Welcome to the forum community, @ekelsay! Yes, your tTG-IGA score is strongly positive for celiac disease. There are other antibody tests that can be run when diagnosing celiac disease but the tTG-IGA is the most popular with physicians because it combines good sensitivity with good specificity, and it is a relatively inexpensive test to perform. The... -
- Tanner L replied to Tanner L's topic in Gluten-Free Foods, Products, Shopping & Medications6
Bad Reaction To Regular Ruffles Cheddar and Sour Cream
Constantly! I don't want everything to cost as much as a KIND bar, as great as they are. Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. -
- ekelsay posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
50 YO Male Recently Diagnosed with Celiac Disease
Today, I received the results of my Tissue Transglutaminase (tTG) Ab, IgA test. I am not sure how to interpret the results. I have left a message for the doctor that requested the test but have not heard back. The results stated that the normal range is from 0.00 - 4.99 FLU. My results came back at 92.08. Is this concerning? This seems extremely high for... -
- Scott Adams replied to Jesmar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Weak positive anti-ttg igA?
Be sure to keep eating gluten daily until all testing is completed. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- Scott Adams replied to Katiec123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14
Finding out I’m coeliac whilst pregnant
You can always to the gluten challenge later, after your pregnancy, should you need a formal diagnosis. I think it's best to play it safe in this case.
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