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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- mishyj replied to mishyj's topic in Coping with Celiac Disease1
Why?
Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that. -
- mishyj posted a topic in Coping with Celiac Disease1
Why?
My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any... -
- cristiana replied to Aussienae's topic in Coping with Celiac Disease64
Constant low back, abdominal and pelvic pain!
I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors. Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps. I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage...- abdominal pain
- celiac
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- cristiana replied to Kirbyqueen's topic in Dermatitis Herpetiformis12
Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.
HI @Kirbyqueen That's great news your insurance will be kicking in soon. Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana -
- Scott Adams replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Trying to read my lab results
I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms?
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