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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Blanco replied to Blanco's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
1540 TTG Results... Help!
Hi Christina! Thank you so much for your in depth reply it's nice to hear from a fellow Brit as the health care system here is a lot different to the US as you know. I am waiting for my referral and I'm going to see what they say at the appointment, the GP did say they might well just confirm the diagnosis without a biopsy and they may want to... -
- Vicrob posted a topic in Related Issues & Disorders0
Gluten ataxia
It took years to realise it was gluten making me poorly but I’d cut it out my diet when I was finally tested. So, not diagnosed celiac and presume it’s gluten ataxia due to lesions on cerebellum. I’m much better yet still have mild neuropathy especially if I’m feeling unwell. I take thiamine and magnesium for it. I’ve had problems with liver enzymes but last ... -
- knitty kitty replied to Sultana's topic in Related Issues & Disorders7
Thiamine supplementation
@Celiac16, When the effects wear off, have you tried taking MORE thiamine? Have you tried Allithiamine (Tetrahydrofurfuryl Disulfide TTFD) or Thiamax? Are you taking a magnesium supplement, too? -
- knitty kitty replied to lydialoo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
Almost in remission!!!
@Celiac16, Fat soluble vitamins are Vitamins A, D, E, and K. There's little risk of toxicity unless one takes supplementing to excessive levels for a long period of time. https://ods.od.nih.gov/factsheets/VitaminA-HealthProfessional/#h17 https://ods.od.nih.gov/factsheets/VitaminD-HealthProfessional/#h36 https://ods.od.nih.gov/factsheets...
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