Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Scott Adams
    Scott Adams

    Chronic Fatigue Syndrome (myalgic encephalomyelitis or ME, PVS, post viral fatigue syndrome or PVFS)


    In the Friday, February 9, 1996 edition of the Independent newspaper (UK), there was a short article reporting research into ME (myalgic encephalomyelitis) by doctors at the Royal Hallamshire Hospital in Sheffield. Their research was published that same weeks Lancet.

    Mysterious symptoms, including muscle weakness, wasting, and poor coordination and balance may be due to an undiagnosed allergy to wheat, barley, oats or rye, according to new research which may have implications for some people with ME...A study of 53 patients with these and other unexplained neurological symptoms, found that nearly three-fifths of them had antibodies to gluten in their blood...none of the patients in the Sheffield group had been diagnosed with celiac disease but when samples of tissue were removed from their gut, more than a third showed evidence of the disease or inflammation of the middle and lower gut.


    User Feedback

    Recommended Comments

    Last month I had a blood test for celiac and I just received a phone call from my GI doctor that the test came back positive. I going in for an upper GI and they are going to do a biopsy. Could you explain to me what they would be looking for exactly. I know they want to rule out cancer but if the test came back positive, I would think that there is already cancer. I just want to know what I could be facing as far as a treatment option. Could it be that because the test came back positive they are just checking to make sure there is no cancer? What are the percentages if you know for it either being or not being cancer?

    Share this comment


    Link to comment
    Share on other sites
    Last month I had a blood test for celiac and I just received a phone call from my GI doctor that the test came back positive. I going in for an upper GI and they are going to do a biopsy. Could you explain to me what they would be looking for exactly. I know they want to rule out cancer but if the test came back positive, I would think that there is already cancer. I just want to know what I could be facing as far as a treatment option. Could it be that because the test came back positive they are just checking to make sure there is no cancer? What are the percentages if you know for it either being or not being cancer?

    Hi Edward. I was diagnosed with coeliac disease about 10 years ago in my late 20's. I also had a blood test that came back positive and had to have an endoscopy where they take a small biopsy. Don't be too alarmed, they do this to check the size and shape of the 'villi' which determines whether you have coeliac disease. This is the only accurate way to confirm the diagnosis. It does not necessarily mean you have cancer. I certainly didn't so I thought I would put this message on the site to reassure you.

    Share this comment


    Link to comment
    Share on other sites

    Hi, Linda here. I go alright through the day as long I don't have anything with gluten or maybe wheat. When I have this I get the strangest feeling, weak, pale, almost lack of conciseness, racing feeling, weak muscles, fatigued. It's so scary. I know that these things affect me this way but still eat a little through the day. How do you get passed that craving.

    Thanks !

    Share this comment


    Link to comment
    Share on other sites


    Join the conversation

    You are posting as a guest. If you have an account, sign in now to post with your account.
    Note: Your post will require moderator approval before it will be visible.

    Guest
    Add a comment...

    ×   Pasted as rich text.   Paste as plain text instead

      Only 75 emoji are allowed.

    ×   Your link has been automatically embedded.   Display as a link instead

    ×   Your previous content has been restored.   Clear editor

    ×   You cannot paste images directly. Upload or insert images from URL.


  • About Me

    In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease. In 1998 I founded The Gluten-Free Mall, Your Special Diet Superstore!, and I am the co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

×
×
  • Create New...