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    Well, TDZ, I certainly hope that your husband is able to get some Dapsone to quickly ameliorate his DH (and that it does not have too many adverse effects on him, either).  It sounds like your husband's DH is worse than mine ever was, so I can only imagine the ongoing agony that he's been dealing with.  To call DH "just an itch" would be like calling am amputation "just a scratch", i.e., probably nobody who has not experienced it can imagine how frustrating, distracting, maddening and depre
    Yeah, I think the only reason to bother with trying to get a diagnosis is if it's needed in order to get the Dapsone, which would be a lifesaver for him in stopping or helping the itching while he gets his diet more in order. He's had continuous rash and lesions and blisters over large to larger parts of his body for a couple of years, and the itching is driving him insane.  We do have an appointment with his PCP this afternoon, to try and talk him into trying the Dapsone -- seems it would
    Alaskaguy,  Sorry to interrupt, but I wanted to put in my two cents. I prefer the Autoimmune Protocol diet because it helps heal the gut so quickly.  It's a bit more strict than the Fasano diet but the results are striking.   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5647120/#!po=43.7500 People with Celiac and DH have a problem with leaky guts.  The AIP diet helps heal this problem. https://www.ncbi.nlm.nih.gov/pubmed/3934051 Nightshade vegetables are not allowed
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