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  • Scott Adams
    Scott Adams

    Scott Adams' Story of His Diagnosis of Celiac Disease


    Like many people with celiac disease, I spent a lot of years and money to go through many tests and misdiagnoses before doctors finally found my problem. Because of the large variety of symptoms associated with celiac disease, diagnosis can be very difficult. Most medical doctors are taught to look for classic symptoms and often make a wrong diagnosis, or no diagnosis at all.

    During my doctor visits my diet was never discussed, even though most of my symptoms were digestive in nature. My symptoms included abdominal pain, especially in the middle-right section while sleeping, bloating, and diarrhea (off and on over a period of several years). A simple (and free!) exclusionary diet would have quickly revealed my problem. An exclusionary diet involves eliminating wheat, rye, oats, barley, dairy products, soy and eggs for several weeks, and recording any reaction as one slowly adds these foods back to their diet.

    It took two years for the doctors to discover that I had celiac disease. During that time I was misdiagnosed with Irritable Bowel Syndrome (IBS), told that I could have cancer or a strange form of Leukemia, treated for a non-existent ulcer with a variety of antibiotics that made me very ill, and was examined for a possible kidney problem. I also underwent many unnecessary and expensive tests including CAT Scans, thyroid tests, tests for bacterial infections and parasites, ultrasound scans, and gall bladder tests. Luckily I ended up reading something about celiac disease in a book on nutrition, which led me to ask my doctor to test me for it. I was finally diagnosed via a biopsy of my small intestine (which is not as bad as it sounds). Although the biopsy is still considered the gold standard of diagnosis, there are also several blood tests for celiac disease.

    I decided to create this Website to help others avoid a similar ordeal. I also want to provide people who know they have the problem with information which will improve their quality of life, and broaden their culinary horizons. To do this, I have compiled information from a large variety of sources including medical journals, books, doctors, scientists and the Celiac Listserv News Group, and posted it all right here. Please remember that I am not a doctor, and none of this information should be considered expert medical advice....enjoy! - Scott Adams


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    My info is that some wine casks use a gluten product to line the insides of wine barrels.

    Wine makers steam clean all barrels with a pressure washer before using them...wine is gluten-free.

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    I only found out about it after another member of the family had similar problems and it's genetic. As a child I was diagnosed as having dyslexia, later on in life I experienced classic tell tale signs of Schizophrenia such as mumbling to myself, being pot bellied and experienced being cranky obsessional and slightly deluded. Reading about it I see another medical professional once wrote in 1959 that many (adult celiacs) showed extreme obsessional neuroses, suffering delusions, frequently believing they had cancer. Paranoid ideas were also frequent and many were considered psychotic or near psychotic. It fitted perfectly, went to see a dietician and another G.P had my thyroid levels checked, the bit supposed to provide T3 & T4 to your brain and the rest as they say is history, been wheat and grain free for a while now and already feeling the huge difference, but having it go undiagnosed for years, while there was family history of it hasn't been pleasant!

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    After having issues for 24 years, I am being tested for celiac disease. My only wish is that doctors would truly sit down and listen to patients.

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    I had a phone call today saying my bloods came back saying I had coeliac disease. Then a follow up phone telling me not to cut out gluten until my biopsy. Is this normal? Also how long did you guys wait for the biopsy?

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    I had a phone call today saying my bloods came back saying I had coeliac disease. Then a follow up phone telling me not to cut out gluten until my biopsy. Is this normal? Also how long did you guys wait for the biopsy?

    Typically one should eat gluten until after the biopsy.

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  • About Me

    In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease. In 1998 I founded The Gluten-Free Mall, Your Special Diet Superstore!, and I am the co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

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