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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    WHAT ARE THE BARRIERS TO CELIAC SCREENING IN POPULATIONS WITH HIGH CELIAC RATES?


    Jefferson Adams

    Celiac.com 05/09/2014 - Even though we now have cheap, readily available celiac blood screening tests, more than eight out of every ten people with celiac disease remain undiagnosed, and the average time to in diagnosis of symptomatic individuals with celiac disease ranges from about six to eleven years.


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    Photo: Wiki Media Commons--Van Damme.A team of researchers recently set out to assess if patient-centered barriers have a role in stifling serologic screening for celiac disease in individuals from high-risk populations.

    The research team included Erika M. Barbero, Shawna L. McNally, Michael C. Donohue, and Martin F. Kagnoff. They are variously affiliated with the Department of Medicine’s Division of Gastroenterology, and the Department of Family and Preventive Medicine’s Division of Biostatistics and Bioinformatics at the University of California San Diego in La Jolla, California, and with the Harvard Center for Population and Development Studies in Providence, Rhode Island.

    The team recruited, from the general population, 119 adults at a higher risk for celiac disease. These participants answered a survey/questionnaire that addressed demographic information, celiac disease related symptoms (gastrointestinal and extra-intestinal), family history, co-morbid diseases and conditions associated with celiac disease, and patient-centered barriers to screening for celiac disease.

    The team then screened all participants celiac disease using the IgA tissue transglutaminase antibody (IgA tTG), confirming positive results with an anti-endomysial antibody (IgA EMA) test.

    They found two significant barriers to serologic testing across the participant pool. The first was lack of knowledge of their higher risk level celiac disease. The second was a lack of knowledge about where and how to get tested.

    They also noted that lack of access to a doctor ordered celiac screening test was a significant barrier for participants earning less than $25,000/year and those under the average participant age. This was also strongly correlated with participants lacking health insurance.

    Patients with negative IgA tTG and those who tested positive showed similar symptoms and co-morbid conditions.

    There are a number of major patient-centered barriers stifle celiac blood test screening. These patient-centered barrier contribute to the delayed celiac detection and diagnosis.

    Education of the public and health care professionals about celiac disease symptoms, risk factors, and serologic testing can help to reduce these barriers.

    Source:


    Image Caption: Photo: Wiki Media Commons--Van Damme.
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    Jefferson Adams
    Celiac.com 03/13/2009 - A recent study confirms that celiac disease affects adults with Turner Syndrome at rates of up to 5%, compared to 1% for the general population.
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    Jefferson Adams
    Celiac.com 07/31/2009 - Worldwide, most people with celiac disease remain undiagnosed and untreated, oblivious to their increased risk of mortality, and of developing certain cancers and other celiac-related conditions.
    Finland has set out to achieve high detection rate by training health personnel, and advocating blood tests for people known to be at risk for developing celiac disease.
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    Since 2002, Finland's Social Insurance Institution had paid monthly compensation to people with newly diagnosed celiac disease for the additional cost of maintaining a gluten-free diet. To receive this compensation, people must submit proof of diagnosis, including biopsy findings, along with diagnostic criteria, in a statement from a physician. That information is kept in a national database. The researchers used the database to calculate incidence and prevalence rates of celiac disease through 2006.
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    Jefferson Adams
    Celiac.com 09/20/2010 - People with celiac disease face increased risk of cancer and a large amount of circumstantial evidence suggests that oxidatively damaged DNA may be used to help predict future cancer development in celiac patients.
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    Source:

    Cancer Epidemiol Biomarkers Prev 2010; 19: 1960–1965

    Jefferson Adams
    Celiac.com 09/03/2014 - What’s potential celiac disease, and what happens to kids who have it and continue to eat a gluten-containing diet?
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    Source:
     The American Journal of Gastroenterology

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    Tammy Rhodes
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    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
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    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
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