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This category contains celiac disease support group information, both international and within the United States of America, including local and national organizations and their contacts.
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3 yo daughter possible celiac, my Mom hear just needs some clarity! Help!? Scope Wednesday
By lindseyg930, in Celiac Disease Pre-Diagnosis, Testing & Symptoms
- 4 replies
- 119 views
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I’m really not sure although I’m not sure how to go about it?
By chickenpie, in Celiac Disease Pre-Diagnosis, Testing & Symptoms
- 7 replies
- 177 views
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My symptoms are getting worse.
By Alfrieda, in Post Diagnosis, Recovery & Treatment of Celiac Disease
- 5 replies
- 161 views
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Difficulty being diagnosed with celiac disease?
By Sambozzi, in Celiac Disease Pre-Diagnosis, Testing & Symptoms
- 6 replies
- 195 views
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- 4 replies
- 156 views
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Blood screening false negative??
I am waiting for my ebdoscopy biopsy results. One of the biopsys was to test for celiac. I had a blood test for celiac screening a few days ago and my test has come back as negative. Could i still have celiac disease? Im really confused as from my symptoms are really bad.. help! -
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My symptoms are getting worse.
Good morning! I remember those days. I remember how emotionally hard it was for me. I felt very overwhelmed and exhausted from all of the sudden, unexpected change. I had to do a lot of grieving. I found it really helpful to talk with a therapist. I also have a few friends that have walked the path before me. And, this forum has been wonderful! So it could very well be that you are dealing with vitamin deficiencies. Have you looked at vitamin d recently? It could be related to the dairy products. It could be withdrawal. But, it could also be just a step in the very normal grief process. -
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I’m really not sure although I’m not sure how to go about it?
Hi! Welcome! Definitely keep asking for a referral. You need to see a good GI doctor. I know that eating gluten free is expensive, and being a college student, you probably have to watch out for the pocket book. However, if you are noticing symptoms after eating oats, I would highly recommend cutting oats out of the diet. When I tried reintroducing oats, I had painful bloating within the hour. I had eaten gluten free rolled oats, and the next day it looked like my bowel movements were full of splinters. Also, I noticed that my skin issues returned when I had oats. I hope this helps! -
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3 yo daughter possible celiac, my Mom hear just needs some clarity! Help!? Scope Wednesday
Thank you for your reply! We did eliminate cows milk protein when she was an infant but re introduced later but it could be worth looking into again for sure. If the scope is negative for celiac we definitely believe an elimination diet and/ or genetic screening would be the best next step! Along with some other possible deficiencies poster below listed. -
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3 yo daughter possible celiac, my Mom hear just needs some clarity! Help!? Scope Wednesday
Thank you so much for responding and shining some light on our sweet girl! In my heart I do trust the GI Dr. and her primary that a scope is needed I am just anxious as the procedure is more invasive than just an MRI or ultrasound like she's done, but I do feel that its the next step in this puzzle fo her. I have had years of IBS and no answers, I was tested for celiac 16 years ago but it was "negative" but I was not consuming gluten at that time so it was highly recommended to get screened again if she tests positive. It does run in my Mothers family (she is not but her aunts, and sister
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