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    The Finnish Coeliac Society/Suomen Keliakialiitto ry
    Hammareninkatu 7
    SF-33100 Tampere,
    Phone:+358 3 2541 300
    Fax:+358 3 2541 350
    E-mail: info@keliakialiitto.fi
    Internet: www.keliakialiitto.fi

    Group: Hameen Keliakiayhdistys ry
    Contact: Pj. Jorma Taipalus
    Janiksenpoiku 32
    13600 Hameenlinna
    Tel: (03) 616 1232
    Siht. Erja Kangasvuori
    Liisanaro 3
    13210 Hameenlinna
    Tel: (03) 674 8979
    Group: Imatran Seudun Keliakiayhdistys ry
    Contact: Pj. Helena Hallikainen
    Pajarintie 95
    56730 Laikko
    Tel: (05) 75 765
    Siht. Eila Lintunen
    Irmankatu 3
    55120 Imatra
    Tel: (05) 4322 550
    Group: Pohjois - Karjalan Keliakiayhdistys ry
    Contact: Pj. Erkki Vallius
    Penttilankatu 1 B 9
    80220 Joensuu
    Tel: (013) 137 905
    Siht. Mauno Koljonen
    Ylasatamakatu 30 A 2
    80100 Joensuu
    Tel: (013) 225 709
    Group: Keski-Suomen Keliakiayhdistys ry
    Contact: Pj. Pirjo Laine
    Hirvenkello 14
    40520 Jyvaskyla
    Tel: (014) 641 054
    Siht. Sinikka Vihne
    Lahdepolku 3
    40500 Jyvaskyla
    Tel: (014) 241 003
    Group: Kainuun Keliakiayhdistys
    Contact: Pj. Tarja Korvinen
    Lansitie 15 E
    87150 Kajaani
    Tel: (08) 628 004
    Siht. Helvi Paivi
    Karjakatu 10
    88600 Sotkamo
    Tel: (08) 6662 141
    Group: Lansi-Pohjan Keliakiayhdistys ry
    Contact: Pj. Sanni Raisanen
    Hervantie 20
    94400 Keminmaa
    Tel: (016) 270 272
    Siht. Anne-Mari Keronen
    Haapalankatu 5 A 4
    94100 Kemi
    Group: Koillis-Lapin Keliakiayhdistys ry
    Contact: Pj. Reino Kunnari
    Poylionkatu 7
    98100 Kemijarvi
    Tel: (016) 813 516
    Siht. Ritva Pajari
    98400 Isokyla
    Tel: (016) 880 044
    Group: Kokkolanseudun Keliakiayhdistys ry
    Contact: Pj. Mauno Sulkala
    Tyynikatu 3
    67100 Kokkola
    Tel: (06) 831 2915
    Siht. Carita Holmberg
    Pengerkuja 6
    67100 Kokkola
    Tel: (06) 831 1504
    Group: Pohjois-Kymenlaakson Keliakiayhdistys ry
    Contact: Pj. Aulikki Volanen
    Valimontie 16
    45100 Kouvola
    Tel: (05) 3754 369
    Siht. Raija Hayha
    Alankotie 5
    45120 Kouvola
    Tel: (05) 3117 663
    Group: Pohjois-Savon Keliakiayhdistys ry
    Contact: Pj. Veikko Jokela
    Suunnistajantie 1 A 23
    70200 Kuopio
    Tel: (017) 282 5166
    Siht. Sisko Hentunen
    Kielorannankatu 27
    70820 Kuopio
    Tel: (017) 363 2454
    Group: Koillismaan Keliakiayhdistys
    Contact: Pj. Tarja Virkkula
    Kaakkurilammentie 9
    93999 Kuusamo
    Tel: (08) 8681 154
    Siht. Sirpa Vaarala
    Oravantie 9 A 18
    93600 Kuusamo
    Tel: (08) 8514 903
    Group: Paijat-Hameen Keliakiayhdistys ry
    Contact: Pj. Jorma Ahonen
    Uotilankatu 85 B
    15840 Lahti
    Tel: (03) 7535 505
    Siht. Seija Saaski
    Kansakoulunkatu 14 B 5
    15700 Lahti
    Tel: (03) 7823 764
    Group: Etela-Kymen Keliakiayhdistys ry
    Contact: Pj. Eija Aaltonen
    Hirventie 7
    49210 Huutjarvi
    Tel: (05) 3431 021
    Siht. Ritva Anttila
    Aholankuja 69
    49540 Metsakyla
    Tel: (05) 3458 151
    Group: Mikkelin Seudun Keliakiayhdistys ry
    Contact: Pj. lsto Liukkonen
    Otavantie 10
    50670 Otava
    Tel: (015) 170 241
    Siht. Heli Pyrhonen
    Sannastinlaakso 6 B 14
    50100 Mikkeli
    Tel: (015) 177 606
    Group: Oulun Seudun Keliakiayhdistys ry
    Contact: Pj. Vuokko Paaso
    Manttaalitie 2 C 15
    90650 Oulu
    Tel: (08) 530 3702
    Siht. Raili Toivio
    Kirkkokatu 55 B 15
    90120 Oulu
    Tel: (08) 3113 110
    Group: Suur-Helsingin Keliakiayhdistys ry
    Contact: Pj. Hanna Kuntonen
    Joukahaisentie 9 C 59
    06150 Porvoo
    Tel: (019) 669 241
    Siht. Joni Torpo
    Lyvkkiniemi 13
    02160 Espoo
    Tel: (09) 452 1437
    Group: Raahen Tienoon Keliaakikot ry
    Contact: Pj. Erkki Sivonen
    Peiponpoiku 2
    92130 Raahe
    Tel: (08) 221 987
    Siht. Riitta Silvennoinen
    Vilpunlaakso 48
    92130 Raahe
    Tel: (08) 220 787
    Group: Rauman Seudun Keliakiayhdistys ry
    Contact: Pj. Maija Mattila
    Paroalhonkatu 6
    26660 Rauma
    Tel: (02) 8251 083
    Siht. Raija Uusitorppa
    Vinkkelinkuja 30 1 C
    26660 Rauma
    Tel: (02) 8250 802
    Group: Rovaniemen Seudun Keliakiayhdistys
    Contact: Pj. Jorma Lietsalmi
    Palkisentie 13 as 2
    96100 Rovaniemi
    Tel: (016) 346 152
    Siht. Ritva Macklin
    Perapuistikko 1-3 B 7
    96190 Rovaniemi
    Tel: (016) 395 767
    Group: Seinajoen Seudun Keliakiayhdistys ry
    Contact: Pj. Paula Alanen
    Jokitie 12
    61230 Luopa
    Tel: (06) 4533 368
    Siht. Marjo Kauppi
    Jyrkkakallionkatu 1
    60320 Seinajoki
    Tel: (06) 4144 871
    Group: Pirkanmaan Keliakiayhdistys ry
    Contact: Pj. Pekka Collin
    Pellervonkatu 9, huone 1011
    33540 Tampere
    Varapj. Paavo Leskinen
    Tel: (03) 3645 719
    Siht. Kirsi Makinen
    Tel: (03) 3481 424
    Group: Turun Seudun Keliakiayhdistys ry
    Contact: Pj. Tarja Kemppi
    Alikuimantie 362
    21450 Tarvasjoki
    Tel: (02) 848 172
    Siht. Pirjo Vienonen
    Vastarakinkatu 1 A 32
    20610 Turku
    Tel: (02) 2443 380
    Group: Vaasan Seudun Keliakiayhdistys ry - Vasanejdens Celiakiforening rf
    Contact: Pj. Leif Lili-Their
    Korsholmanpuistikko 16
    65100 Vaasa
    Tel: (06) 312 7505
    Siht. Birgitta Finne
    Suopursuntie 8
    65280 Vaasa
    Tel: (06) 321 3637
    Group: Harman Seudun Keliakiayhdistys ry
    Contact: Pj. Erkki Kallio
    Keskirannantie 2
    62375 Yliharma
    Tel: (06) 484 6363
    Siht. Taimi Hakomaki
    Kangastie Kp2
    62375 Yliharma
    Tel: (06) 484 6446


    Çölyakla Yaþam Derneði (Society of Living with Celiac )
    Istanbul /TURKEY
    PO Box - 44 34110 /Bostancý - ISTANBUL - TURKEY
    Contacts : Mrs. Oya OZDEN
    Mrs. Ayin KUCUK
    Mrs. Derya UKAV
    Tel: 90.533.722 5050
    E-Mail : oozden@ixir.com
    Mail Group : turk_celiac@yahoogroups.com (Turkish)
    Colyak: Glutensiz Yasam Merkezi (Center for Gluten-free Life)
    Contact person: Canan Onural
    Internet: http://www.colyak.web.tr
    Email: canan@colyak.web.tr

  • Recent Articles

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764