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This category contains celiac disease support group information, both international and within the United States of America, including local and national organizations and their contacts.
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Recent Activity
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- Zackery Brian replied to rsvtwin6's topic in Food Intolerance & Leaky Gut6Gluten and 30 other Items causing me Severe Muscle Inflamation Pain
I'm sorry to hear about the challenges you've been facing with your health. Dealing with celiac disease and multiple food sensitivities can indeed be overwhelming. Here are a few thoughts and suggestions based on your experience and the replies you've received: Confirming Diagnosis: It's great that your gastroenterologist confirmed your celiac disease... -
- Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Waiting for urgent referral.
Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this... -
- Moodiefoodie replied to Moodiefoodie's topic in Related Issues & Disorders9Joint swelling when ill even on gluten-free diet
Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well. I also... -
- knitty kitty replied to Moodiefoodie's topic in Related Issues & Disorders9Joint swelling when ill even on gluten-free diet
@Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm... -
- knitty kitty replied to Shireen32's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Still testing positive after being gluten free for one year ?!!
@Shireen32, Take some deep breaths. Your labs are fine! Your tTg IgA is so low! Well done! Your endomysial IgA is fine. There's not a level on the endomysial test. It's just "yes or no" for if you have celiac disease. No, it's too early to call it refractory. What are you eating? Please tell us more than meat and veg. Do you...
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