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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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    Celiac Disease Foundation is the nation’s leading disease advocacy organization for celiac disease and non-celiac gluten/wheat sensitivity. We drive diagnosis, treatment, and a cure through research, education, and advocacy to improve the quality of life for all those affected. Through iCureCeliac®, our national registry dedicated to patient-centered research, we collaborate with researchers, clinicians, and industry to better understand, and ultimately cure, celiac disease.

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    Since our founding in 1990, Celiac Disease Foundation continues to champion many battles: federal recognition of celiac disease and labeling standards for gluten-free foods, improved diagnostic tools, widespread patient and provider education, access to mainstream gluten-free products, and the need for better treatments and a cure.

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    E-mail: cdf@celiac.org
    Internet: http://www.celiac.org


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    The Gluten Intolerance Group of North America, also known as GIG, is a 501©(3) non-profit organization funded by private donations including the Combined Federal Campaign, United Way Designated Giving, Employer Matching Funds; proceeds from memberships, the sale of products and our educational resources. We rely on your contributions, which are tax deductible. 85% or more of our revenue is used to support our programs.
    GIG is at the forefront of innovative action and is respected globally as a powerful leader in the celiac community. GIGs volunteers, staff, and Board are knowledgeable and our materials and resources are credible.
    Our Mission is to provide support to persons with gluten intolerances, including celiac disease, dermatitis herpetiformis, and other gluten sensitivities, in order to live healthy lives.
    GIG Branches help to fulfill GIGs mission on a local and regional level through programs tailored to their community.
    The vision of the Gluten Intolerance Group of North America is one of mutual support, acceptance, and respect for all persons living with gluten intolerances and working with this community. GIG envisions a united gluten intolerant community in which all persons feel they are healthy, are positively nurtured to live life to the fullest, and are involved and contributing citizens.
    GIG fulfills its mission of supporting persons living with gluten intolerances through programs directed to consumers, health professionals and the public. GIGR programs provide:
    Support and education Awareness and advocacy Research awareness and support GIG is dedicated to providing accurate, scientific, evidence-based information.
    Cynthia Kupper, RD, celiac disease, Executive Director
    31214 - 124 Ave SE
    Auburn WA 98092
    Phone: 253-833-6655
    Fax: 253-833-6675
    Web sites: www.gluten.net; www.GFCO.org; www.GlutenFreeRestaurants.org
    Email: info@GLUTEN.net

    The National Celiac Association remains dedicated to the mission of supporting, educating and advocating for individuals with celiac disease and non-celiac gluten sensitivity, their families and communities across the nation. Our grassroots approach hasn’t changed in the 24 years we have been serving the community. Wherever you may reside, you matter to us and we are here to help you! We welcome support groups who would like to team up with us to provide education and support on a local level. Over 70 support groups and former CSA chapters are in the process of joining our team and more would be wonderful. Together our outreach will be both nurturing and empowering.
    Executive Director Lee Graham
    Web site: https://www.nationalceliac.org

    Celiac disease support groups in the United States - Includes national organization affiliation (if any).
    Birmingham - Support Group
    Birmingham Celiac Disease Support Group (Alabama)
    Contact: Rebecca Kinney
    Email: birminghamceliac@hotmail.com
    Los Angeles - Support Group:
    Awesome Friends with Food Sensitivities
    Contact: Harmony Hopkins
    Website: http://www.meetup.com/Awesome-Friends-with-Food-Sensitivities/
    Email: awesomefriendsmeetup@gmail.com

    Huntsville, AL
    North Alabama Gluten Intolerance Group
    Jeana Swaim, President
    Tel: (256) 233-8436
    email: jswaim@arilion.com
    Anchorage Resource:
    Contact: Michelle Johnson
    815 W. 12th Avenue
    Anchorage, AK 99501
    Tel: (907) 279-9856
    E-mail: michelej@alaska.net
    Anchorage - Resource:
    Contact: Alison L. Smith, Branch Manager
    E-mail: ancgig@customcpu.com
    Fountain Hills - Support Group
    Contact 1: Allyn Krieger-Fiedler NMD
    E-mail: drakfiedler@cox.net
    Contact 2: Margy Squires
    E-mail: msquires@e-tyh.com 
    Green Valley - Support Group
    Contact: Kay Bleuer
    E-mail: nkbleuer@yahoo.com
    Payson - Support Group
    Contact 1: Nancy A. Palmer
    Payson Area Celiac Support Group
    HC 2 Box 95-S
    Payson, AZ 85541
    Tel: (520) 478-4383
    Contact 2: Jane Kendall
    HCR Box 305-B
    Payson, AZ 85541
    Tel: (520) 474-6707.
    Phoenix - Support Group
    Contact 1: Russ Boocock
    Sunshine Celiac Support Group
    16205 N. Boulder Drive
    Fountain Hills, AZ 85268-1519
    Tel: (602) 837-1953
    Conact 2: Walter Koncar
    1920 E. Inglewood St.
    Mesa, AZ 85203
    Phoenix - Support Group
    Contact 1: Diane Lake
    Celiac Support of Greater Phoenix (A CDF Connections Group)
    Tel: (623) 587-8885
    E-mail: dlake41@cox.net
    Contact 2: contact 2: Ruth Arieli
    Tel: (480)922-7492
    E-mail: arieliline@cox.net
    Internet: http://www.phoenixceliac.com
    Tucson - Support Group
    Southern AZ Celiac Support
    Contact 1: Cheryl Wilson
    11605 E Golf Links Rd
    Tucson, AZ 85730
    Tel: (520) 298-5551
    E-mail: rhranchaz@earthlink.net
    Sue Beveridge
    1807 W. Mountain Laurel Dr.
    Tucson, AZ 85737
    Jeannine Faidley
    8479 East Tiffany Drive
    Tucson, AZ 85715
    Tel: (520) 298-9480
    E-mail: suebever@comcast.net
    Internet: http://www.southernarizonaceliacsupport.org
    Hot Springs Village - Resource:
    Contact: Betty Shepherd
    11 Indiana Circle
    Hot Springs Village, AR 71909
    Tel: (501) 922-6034
    Little Rock - Support Group
    Contact: Anne Luther
    Gluten Free in Central Arkansas
    4710 Sam Peck Road, 1015
    Little Rock, AR 72223
    Tel: (501) 223-3981
    E-mail: aaluther@comcast.net
    Mountain Home - Support Group
    Contact: Marilyn H. Jorgensen
    Arkansas/Ozark Celiac Support Group (CSA)
    198 Cochran Drive
    Mountain Home, AR 72653
    Tel: (501) 492-5243
    Rogers - Support Group
    Contact: Janice Carmichael
    Northwest Arkansas Celiac-Sprue Group (Fayetteville, AR)
    2703 Kathy Lane, Rogers, AR 72653-8725
    Tel: (501) 636-8995
    Carlsbad - Resource:
    Contact: Helen Foreman
    7112 Lantana Terrace
    Carlsbad, CA 92011
    Tel: (760) 931-7809
    E-mail: bhforeman@webtv.net
    Lake Arrowhead - Support Group
    Contact: Jeanne Dickson
    PO Box 2052
    Lake Arrowhead, CA 92352
    Tel: (208) 699-5913
    E-mail: gfjeanne@msn.com
    Los Angeles - Support Group:
    Contact: Harmony Hopkins
    Awesome Friends with Food Sensitivities
    Website: http://www.meetup.com/Awesome-Friends-with-Food-Sensitivities/
    Email: awesomefriendsmeetup@gmail.com
    Marin - Support Group
    Gluten Intolerance Resource Group of Marin
    Contact: Alison St. Sure
    Tel: (415) 785-4980
    Merced - Resource:
    Contact: Gary L. Brackney Sr.
    3596 Hagen Court
    Merced, CA 95348
    Tel: (209) 722-7760
    Modesto/Stockton/Turlock - Support Group
    Central Valley Celiacs
    Contact: Karen Cadiz
    Tel: (209) 823-3211
    E-mail: centralvalleyceliacs@comcast.net
    Newport Beach - Support Group
    Contact: Barbara Nielsen
    Newport Beach Celiacs
    440 Villa Point Drive
    Newport Beach, CA 92660
    Tel: (949) 644-4966
    E-mail: glutenfreecoach@cox.net
    Oakland - Support Group
    Contact 1: Melissa Batavia
    Sprue Group of the SF Bay Area
    Tel: (510) 655-2555
    E-mail: melbatavia@comcast.net
    Contact 2: Ellen Eagan
    632 Miller Ave.
    South San Francisco, CA 94080
    Tel: (415) 583-6413
    E-mail: eagan@pangloss.ucsf.EDU
    Orange County - Support Group
    Contact: Cecile Weed
    Orange County Celiacs
    Tel: (714) 750-9543
    Palm Springs - Resource:
    Contact: Taylor Cushmore
    2283 S. Alhambra Drive
    Palm Springs, CA 92264
    Tel: (760) 416-2051
    E-mail: TaylorCush@aol.com
    Redding - Support Group:
    The Redding Gluten Free Support Group
    Contact: Misty Price
    Redding, CA 96003
    Tel: (530) 223-2167
    E-mail: mistyprice@charter.net
    Solano County - Support Group
    Contact: Crystal Elizabeth
    Tel: (415) 828-5574
    E-mail: solanocountyceliacs@gmail.com
    San Luis Obispo County - Support Group
    Central Coast Celiacs
    Contact: Isabella Porter
    Tel: (805) 314 0394
    Email: thecentralcoastceliacs@gmail.com
    Santa Maria - Support Group
    Santa Maria Celiac Support Group
    Contact: Leona Meyer
    Email: info@smvceliac.com
    Internet: smvceliac.com
    Sacramento - Support Group
    Contact 1: Diane Craig
    Sprue & You (CSA)
    Tel: (916) 483-8546
    E-mail: dcraig101@hotmail.com
    Contact 2: Kathleen G. Hughes
    Tel: (530) 672-1104
    San Bernardino - Support Group
    Contact 1:Patricia Berger
    Redlands Area Celiac Sprue Support Group
    627 Fountain Ave.
    Redlands, CA 92373
    Tel: (909) 793-3712
    Contact 2: Robert V. Breunig
    Highlander Hall Economics Dept.
    University of California Riverside
    Riverside, CA 92521
    E-mail: bbreunig@mail.ucr.edu.
    San Diego Support Group
    Contact: Glorian Beeson
    San Diego Celiac Sprue Association (CSA)
    Tel: (760) 721-1791
    E-mail: frankbeeson@cox.net
    Contact 2: William & Helen Foreman
    7112 Lantana Terrace
    Carlsbad, CA 92009
    Tel: (760) 931-7809
    E-mail: bhforeman@webtv.net
    Contact 3: Sandy Milne
    Tel: (858) 278-1413
    E-mail: shipmates2@mindspring.com
    San Gabriel Valley - Support Group
    CDF West San Gabriel Valley, including Burbank/Glendale
    Contact: Tenny Custer
    Tel: (626) 287-5436, 
    E-mail:   tenaya3@earthlink.net
    CDF East San Gabriel Valley
    Contact: Lynne Turner
    Tel: (626) 915-2196, 
    E-mail:   travelynne812@yahoo.com
    Internet:  www.sgvceliac.org
    Santa Ana - Support Group
    Santa Ana Celiacs
    Contact: Cecile Weed
    13471 Marty Lane
    Garden Grove, CA 92843
    Tel: (714) 750-9543
    Contact 2: Debbie Lee
    Tel: (714) 830-8237
    Santa Cruz - Support Group
    Santa Cruz Celiac Support Group
    Contact: Pam Newbury
    543 Ice Cream Grade
    Santa Cruz, CA 95060
    Tel: (831) 423-6904
    E-mail: pam@santacruzceliac.org
    Internet: http://santacruzceliac.org
    Santa Rosa - Support Group
    Contact 1: Laura Southworth
    Sonoma County CSA
    480 Bohemian Highway
    Freestone, CA 95472
    Tel: (714) 798-3112
    Contact 2: Rosemary Yates
    129 Grenvillia Drive
    Petaluma, CA 94952
    Tel: (707) 766-8606.
    Stockton - Support Group
    Contact 1: Karen Cadiz
    Central Valley Celiacs (CSA)
    E-mail: centralvalleyceliacs@comcast.net
    Tel: (209) 823-3211
    Temecula - Support Group:
    Contact: Ramona Inman
    Celiac Disease Foundation - Temecula
    Tel: (951) 676-0651
    E-mail: ramonacdf@aol.com
    Ventura County - Support Group
    Contact: Kathy Button
    2525 Waxwing Ave.
    Ventura, CA 93003
    Tel: (805) 650-0520
    E-mail: venturaceliac@sbcglobal.net
    Internet: http://www.venturaceliac.org
    Walnut Creek / Contra Costa County Support Group
    Walter Moeller, Founder and President
    Walter Moeller
    Tel: 925-932-8875
    Email: GlutenfreeWC@Gmail.Com
    Berthoud - Resource:
    Contact: William R. Eyl
    2600 Blue Mountain Avenue
    Berthoud, CO 80513
    Tel: (303) 772-3155
    Colorado Springs - Support Group
    Contact: Virginia Ludwig
    Pikes Peak (CSA)
    3705 Meadowland Blvd.
    Colorado Springs, CO 80918
    Tel: (719) 598-6748
    Internet: www.groupspaces.com/pikespeakceliacs  
    Colorado Springs - Support Group
    Contact: Victoria Garcia
    Celiac Youth Support Group
    3408 Colony Hills Road
    Colorado Springs, CO 80916
    E-mail: jv4garcia@msn.com
    Denver - Support Group
    Contact: Betty Elofson
    Denver Celiac Sprue Association (CSA)
    Tel: (303) 238-5145
    Denver - Support Group
    Contact 1: Donna Steelman
    Denver Celiacs
    Denver Metro Area
    4617 S Joplin Way
    Auroa, CO 80015
    Tel: (303) 699-6170
    E-mail: donnasteelman@comcast.net
    Contact 2: Jill Smith
    2289 W. Hyacinth Road
    Highlands Ranch, CO 80216
    Tel: (303) 683-3281
    Fort Collins - Support Group
    Contact 1: Deborah Fusco
    Northern Colorado Chapter (CSA)
    4610 Shoreline Road
    Fort Collins, CO 80526
    Tel: (970) 226-4105
    E-mail: dfusco@hach.com
    Contact 2: Delores Valdez-Amick
    803 S. Van Buren Ave.
    Loveland, CO 80538
    Tel: (970) 663-4048
    Highlands Ranch - Resource:
    Contact: Mary Ann Peterson
    10111 S. Silver Maple Rd.
    Highlands Ranch, CO 80126
    Tel: (303) 683-1461
    Danbury/Waterbury - Support Group
    Contact 1: Suzel Cable
    Nutmeg Chapter (CSA)
    548 High St., 2nd Floor
    Naugatuk, CT 06770
    Tel: (203) 723-1318
    Contact 2: Edith K. Meffley
    Tel: (203) 438-6108.
    Glastonbury - Resource:
    Contact: Beth Hillson
    262 Cedar Ridge Drive,
    Glastonbury, CT 06033
    E-mail: beth@glutenfree.com
    New Haven - Support Group
    Contact: Bill Jacobs
    Greater New Haven Celiac Group
    100 Alexander Drive
    Cheshire, CT 06410
    E-mail: wajacobs15@aol.com
    Northwest Connecticut - Support Group
    Contact: Marilyn Duffany
    Celiac Support Group of Northwest Connecticut (CSA)
    Tel: (203) 283-8506
    Suffield - Support Group
    Contact: Kathy Bosse
    Celiac Discussion Group
    P.O. Box 307
    Suffield, CT 06078
    Tel: (860) 668-4835
    Email: Kathybosse@aol.com
    Waterbury/Nutmeg - Support Group
    Contact 1: Carol Hoebel
    Celiac Sprue Support Group of NW Connecticut
    84 Woodruff Ave.
    Thomaston, CT 06787
    Tel: (860) 283-5577
    E-mail: david.hobel@snet.net
    Contact 2: Suzel Cable
    548 High St., 2nd Floor
    Naugatuk, CT 06770
    Tel: (203) 723-1318
    Contact 3: Edith K. Meffley
    Tel: (203) 438-6108
    Contact 4: Joan Balough
    Tel: (203) 268-3829
    Contact 5: Syd Aronowitz
    Tel: (203) 794-0150
    Wilmington/Newark - Support Group
    Delaware Celiac and Gluten Free Group
    Contact: Eva Szalewicz
    Tel: (302) 482-4882
    E-mail: glutenfreedelaware@gmail.com
    Internet: http://glutenfreedelaware.tripod.com
    District of Columbia, Washington
    Washington DC - Support Group
    Contact: Susan Flinn
    Washington Area Celiac Support Group
    Tel: (202) 667-1624
    Email: info@dcceliacs.org
    Internet: http://www.dcceliacs.com
    Clearwater - Support Group
    Contact: Brian Kelly
    Pinellas County Celiac Group, CSA/USA Chapter #84
    Tel: (727) 734-0561
    E-mail: bkelly1@tampabay.rr.com
    Crystal River - Support Group
    Contact: Mary Lou Thomas
    Crystal River Celiacs
    6350 W. Patriot St
    Homosassa, Florida 34448
    Tel: (352) 628-9559
    E-mail: mlthomas4cs@hotmail.com
    Daytona Beach - Support Group
    Contact: Juanita Ohanian
    Daytona Beach Celiac Support Group
    2720 Autumn Leaves Drive
    Port Orange, FL 32128
    Tel: (386) 492-3159
    Fort Myers - Support Group
    Contact: Terry Foster
    Lee County Celiac Group
    Tel: (237) 935-5093
    E-mail: terry@theskinnypantry.com
    Largo - Support Group
    Contact: Carol Anne
    Gluten Intolerance Support Group of Largo
    Cypress Palms, Largo
    400 Lake Avenue N E
    Largo, Florida   33771
    Tel: (727) 204-3538
    E-mail: WyndStarrCO1@Yahoo.com
    Internet: http://health.groups.yahoo.com/group/GlutenFreeInFlorida
    Melbourne - Support Group
    Contact 1: Mary Kump
    GIG of Florida
    3190 Village Park
    Melbourne, FL 32934-8296
    Tel: (407) 254-2034
    Contact 2: Michael Jones
    E-mail: mjones@digital.net
    Naples - Support Group
    Contact: Liisa DePeri
    E-mail: SWFLCeliac@gmail.com
    Internet: http://www.swflceliac.com/ 
    Orlando - Support Group
    Contact: Michael Jones
    Celiacs of Orlando
    12733 Newfield Drive
    Orlando, FL 32837
    Tel: (407) 856-3754
    E-mail: mjones@digital.net.
    Palm Beach - Support Group
    Contact: Phyllis Kessler
    Palm Beach County Celiac Support Group
    15927 Laurel Creek Drive
    Delray Beach, FL 33446
    Tel: 561-637-0396
    Pensacola - Resource:
    Contact: Nancy Kilpatrick
    5433 Lee St. West
    Milton, FL 32570
    Tel: (904) 626-0064
    Sarasota - Support Group
    Contact: Edith Kaplan
    Sarasota Celiacs
    E-mail: ediesrq@verizon.net
    Internet: http://www.sarasotamanateeceliacs.com
    South Florida Celiac Support Group
    CDF So. Florida Chapter
    Tel: 561-637-0396
    Email: Pkessler23@AOL.COM
    Internet: http://www.southfloridaceliacsupport.org
    Tampa Bay - Support Group
    Contact: Janet Heitler
    Tampa Bay Celiacs
    8106 North Albany
    Tampa, FL 33604
    Tel: (813) 933-1645
    E-mail: jchtbc42@tampabay.rr.com
    Atlanta - Support Group
    GIG of Atlanta
    Julie A Arnes - President
    Jennifer D. Harris -Program Chair
    E-mail: jennifer@gigofatlanta.com
    Internet: www.gigofatlanta.com
    Smyrna - Support Group
    Contact: Jan Austin
    Atlantic Celiac Support Group (CSA)
    Tel: (404) 433-9661
    Warner Robins - Support Group
    Contact: Carol Hinton, Branch Manager
    Tel: (478) 397 5061
    E-mail: middlegeorgiagig@yahoo.com
    Boise - Support Group
    Contact: Twylia McIlvanie
    Boise Idaho Celiac Support Group
    Tel: (208) 939-0373
    E-mail: Scott Neil - SNeil@Cableone.net
    Aurora - Support Group
    Contact: Sandy Wright
    Aurora celiac disease/GI CSA Support Group
    Aurora, IL
    Email: sandywright@att.net
    Champaign - Support Group
    Champaign-Urbana Celiac Support Group
    E-mail: tlflipper76@aol.com
    Channahon - Support Group
    Contact: Jenn Cain
    23918 W. McClintock
    Channahon, IL 60410
    Tel: (815) 467-8180
    E-mail: jacsgroup@att.net
    Chicago - Support Group
    Contact: Christine Sabbia
    Southwest Suburban Celiac Support Group
    Celiac Sprue Association of Greater Chicago
    4111 W. 183rd St.
    Country Club Hills, IL
    Tel: (312) 282-1516
    E-mail: socwkr@hotmail.com
    Decatur - Resource:
    Resource: Jewell M. Barr
    3333 Lost Bridge Rd.
    Decatur, IL 62521
    Tel: (217) 423-8234
    McHenry - Support Group
    Contact: Elizabeth Secora
    Tel (815) 363-1523
    E-mail: emorgan816@comcast.net
    Internet: www.mchenryceliacs.com
    Peoria - Support Group
    Contact 1: Marsha Bishoff
    Central Illinois Celiacs (CSA)
    619 Spring Street
    Washington, IL 61571
    Tel: (309) 444-7415 or (309) 692-3848
    Contact 2: Pat Weinkauf
    825 West Meadows Place
    Peoria, IL 61604
    Contact 3: Kate Jowick
    E-mail: Kate_Joswick@ccmail.wiu.edu
    Petersburg - Support Group
    Contact: Barb Hand
    Land of Lincoln Celiac Support Group
    R.R. 3, Box 276C
    Petersburg, IL 62675
    Tel: (217) 632-2684
    Rockford - Support Group
    Contact 1: Jolyn M. Fasula
    Rockford Area Chapter (CSA)
    6816 Crown Ridge
    Rockford, IL 61103
    Tel: (815) 877-5302
    Contact 2: Ron Ford
    Tel: (815) 229-8804
    Bloomington - Resource:
    Contact: Denise Brown
    Tel: (812) 824-9674
    Evansville - Support Group
    Contact: Barbara Watson
    Evansville Celiac Sprue Support Group
    1317 Bayard Park Dr.
    Evansville, IN 47714
    Evansville - Resource:
    Contact: Gloria Baker
    2711 Knob Hill Dr.
    Evansville, IN 47711
    Tel: (812) 476-5744
    Indianapolis - Support Group
    Contact: Joyce Etheridge
    Celiac Support Group of Indianapolis, (CSA)
    1168 Sheffield Drive
    Avon, IN 46123
    Tel: 317-272-4609
    E-mail: mjbetheridge@aol.com
    Indianapolis - Support Group
    Contact: Diane Hosek
    1371 Stoney Creek Circle
    Carmel, IN 46032
    Tel: (317) 569-9670
    Email: dianehosek@gmail.com
    Lafayette - Support Group
    Contact: Nancy H. Linnemann
    Indiana Gluten Intolerance Support Team (CSA)
    2635 N 400 W.,
    West Lafayette, IN 47906
    Tel: (765) 497-0665
    E-mail: n.linnemann@comcast.net
    La Porte - Resource:
    Contact: Margaret M. Diffendorfer
    1012 Wright Avenue
    LaPorte, IN 46350
    Tel: (219) 362-6607
    Carroll - Resource:
    Contact: Lynne Humphrey
    121 S. Maple St.
    Carroll, IA 51401-3123
    Tel: (712) 792-5866
    E-mail: hump@win-4-u.net
    Cedar Rapids - Support Group
    Cedar Rapids support group (CRCCgig)
    Contact: Theresa Brandon
    2407 Linwood St. S.W.
    Cedar Rapids, Iowa 52404-3554
    Tel: (319) 362.8087
    E-mail: tatbrandon@gmail.com
    Internet: http://www.iowaceliacs.org
    Davenport - Support Group
    Contact: Becky Wentworth
    Quad City Celiac Group
    6130 N. Hancock Ave
    Davenport, IA 52806
    Tel: (563) 391-2968
    E-mail: wentworth@netexpress.net
    Iowa City - Support Group
    Contact: Sarah Berke
    Iowa City Celiacs
    735 Michael St. #32
    Iowa City, IA 52246
    Tel: (319) 337-9521
    Manchester Support Group
    Contact 1: Marcia Intorf-president
    N.E.I. Celiacs Support Group
    307 Gay St.
    Delhi, Iowa 52223
    T el: (563) 922-2470
    E- mail: msintorf@wildblue.net
    Contact 2: Lynn Cooper-secretary
    N.E.I. Celiacs Support Group
    923 Doctor St.
    Manchester, Iowa 52057
    T el: (563) 927-3870
    E- mail: 923dlcoop@mchsi.com
    Tipton - Support Group
    Contact: Jacey Drollinger
    Living Free Celiac Disease Support Group
    Tipton, Iowa 52772
    Tel: (319) 886-6255
    Waverly - Support GroupWaverly Area Celiac Group
    Contact 1:
    Jill Everding
    Denver, IA  50622
    Tel: (319) 984-5928
    E-mail: jill.everding@wartburg.edu
    Contact 2:
    Betty Bast
    Waverly, IA  50677
    Tel: (319) 231-0107
    E-mail: bastbetty13@gmail.com
    Waterloo - Support Group
    Contact: Kristi Simmerman
    Waterloo & Cedar Falls Celiacs
    1753 Robin Rd.
    Waterloo, IA 50701
    Tel: (319) 234-2104
    E-mail: simmerman@bigfoot.com
    Kansas City - Support Group
    Contact 1: Helen Richards
    Greater Kansas City Celiacs (CSA)
    14409 W 123rd Terrace
    Olathe, KS 66062
    Tel: (913) 393-2400
    E-mail: richgary@swbell.net
    Contact 2: Karen & Roger Miller
    11714 Hadley
    Overland Park, KS 66210
    Kansas City - Resource:
    Contact: Danelle Sorensen
    Olathe, KS
    Tel: (913) 397-9284
    E-mail: homesweethome@yahoo.com
    Leavenworth - Resource:
    Contact: Latisha May Thomas
    1313 Vilas
    Leavenworth, KS 66048
    Tel: (913) 682-6678
    Manhattan - Support Group
    Contact: Rene' Eichem
    Manhattan Celiac Support Group
    2442 Buttonwood Drive
    Manhattan, KS 66502
    Tel: (913) 776-6013
    Contact 2: Mary Jordan
    2513 Nutmeg
    Manhattan, KS 66502
    Tel: (913) 539-2963
    E-mail: MJordan672@aol.com
    Topeka - Support Group
    Contact: Sharon Larson, President
    Topeka Celiac Sprue Support Group (CSA)
    4310 SE McMahan Ct.
    Tecumseh, KS 66542
    Tel: (785) 379-0479
    E-mail: slars5@cox.net
    Wichita - Support Group
    Contact 1: Kay Finn
    Wichita Celiacs (CSA)
    805 N. Cypress
    Wichita, KS 67206
    Tel: (316) 686-7034
    Internet: http://www2.southwind.net/~weeks/celiac/
    Benton - Support Group
    Contact: Rose Mary Mueller
    Heartland CS.DH of W. Ky./S.Il.
    102 Wyndy Brook Lane
    Benton, KY 42025
    Tel: (270) 527-8330
    E-mail: heartlandceliac@bellsouth.net
    Internet: http://www.heartlandgig.org
    Louisville - Support Group
    Contact 1: Emily McKinney
    Greater Louisville (Kentucky) CSA Chapter
    E-mail: ecmckinney@gmail.com
    Internet: www.glutenfreelouisville.org
    Baton Rouge - Support Group
    Contact 1: Mary Mack-Jeansonne, President
    Celiacs of Baton Rouge
    3387 Madeira Drive
    Baton Rouge, LA 70810
    Tel: (225) 766-8872
    E-mail: celiacsbr@aol.com
    Baton Rouge - Support Group
      Baton Rouge Area Celiacs
      Contact: Glenda Worm
      Tel: (225) 571-7980
    E-mail: pelinc1@bellsouth.net
    New Orleans - Support Group
    Contact 1: Diane Schaefer
    Greater New Orleans Celiac Sprue Support Group
    Tel: (504) 348-3099
    Contact 2: Lorraine McCaslin
    Tel: (504) 833-1717
    New Orleans - Support Group
    Contact: Annette Bentley, BA, MSc
    President, American Celiac Society
    P.O. Box 23455
    New Orleans, LA 70183-0455
    Tel: (504) 737-3293
    Internet: www.americanceliacsociety.org
    Slidell - Resource:
    Contact: Jamie Head
    3771 Arrowhead Dr.
    Slidell, LA 70458
    Tel: (504) 643-2676
    Bangor - Support Group
    Contact 1: Ann Delaware
    Celiac Sprue Support Group of the Greater Bangor Area
    P.O. Box 472, Bradley
    ME 04411-0472
    Tel: (207) 827-2733
    Contact 2: Greg Chappelle
    27 Hilliard St.
    Old Town, ME 04468
    Bangor - Resource:
    25 Cushing Drive
    Glenburn, ME 04401-1431
    Tel: (207)-947-9958.
    Bradley - Support Group
    Contact: Ann Delaware
    Bradley Celiacs
    P.O. Box 472
    Bradley, ME 04411
    E-mail: Anned0472@aol.com
    Portland - Support Group
    Portland Maine Celiac/DH Support Group (CSA)
    Tel: (207) 409-5677
    E-mail: info@csachapter88.com
    Annapolis - Support Group
    Chesapeake Celiac Support Group
    Contact: Patricia Minnigh
    Tel: (410) 672-5834
    Internet: http://www.celiacsonline.com
    Baltimore - Support Group
    Maryland Chapter 11 CSA/USA
    Contact 1: Phyllis Farmer
    600 Straffan Drive, Unit 502
    Timonium, MD 21093,
    Tel: (410) 560-1279
    Contact 2: Doug Rettberg
    498 South Hills Court
    Westminster, MD 21158
    Tel: (410) 876-3604
    Bethesda - Support Group
    Contact: Jerry Malitz
    Montgomery County Support Group
    Washington Area Celiac Support Group
    Email: dcmetroceliacs@gmail.com
    Internet: http://www.dcceliacs.typepad.com
    Delmarva - Support Group
    Contact: Betty Bellarin
    Maryland Delmarva Celiac Support Group
    E-mail: bbrboc@comcast.net
    Boston - Support Group
    Children's Hospital- GI/Nutrition Dept.
    300 Longwood Ave.
    Boston, MA 02115
    Tel: (617) 355-2127
    E-mail: celiacsupportgroup@childrens.harvard.edu
    Boston - Support Group
    The Healthy Villi
    (Greater Boston Celiac/DH Support Group, Chapter #67 of CSA/USA)
    Chairperson: Lee Graham
    E-mail: randlgraham@comcast.net
    Membership Chairperson: Catherine Mirick
    Tel: 888-4- CELIAC
    Internet: http://www.heathyvilli.org
    Cape Cod - Support Group
    Contact 1: Diane Bertrand
    Cape Cod Support Group
    PO Box 1114
    North Falmouth, MA 02556
    E-mail: Dibertrand@comcast.net
    Contact 2: Margo Finnell RD, MPH, LDN
    E-mail: Margo820@juno.com
    Fall River - Support Group
    Contact: Kathy Thiboutot
    Southeast New England (including Cape Cod ) Celiac Support Group
    Tel: (401) 624-8888.
    Lowell - Resource:
    Contact: Katherine C. Merrill
    45 Tolman Ave.
    Lowell, MA 01854
    Tel: (978) 454-2822
    Ann Arbor - Support Group
    Gluten Free Ann Arbor
    Contact: Valerie Mates
    E-mail: gfaa@unixmama.com
    Internet: http://groups.yahoo.com/group/glutenfreeannarbor/
    Battle Creek - Support Group
    Gluten Free Club Battle Creek, MI
    Contact: Nancy Makuch
    Tel (269) 979-7698.
    Coldwater - Resource:
    Contact: Bruce & Ruth Young
    335 Barnhart Road
    Coldwater, MI 49036
    Tel: (517) 278-8248
    Escanaba - Resource:
    Contact: David A. Jondrow
    312 Minneapolis Ave.
    Gladstone, MI 49837
    Tel: (906) 428-1621
    Flint - Support Group
    Contact: Margaret Clegg
    Mid-Michigan Celiacs
    Tel: (810) 252-1049
    E-mail: midmiglutenfree@gmail.com
    Contact 2: Pat Adams
    Tel: (989) 743-3990
    E-mail: pawadams4401@aol.com
    Internet: http://www.csaceliacs.info/csa_chapter_59.jsp
    Gladstone - Resource:
    Contact 1: David A. Jondrow
    312 Minneapolis Avenue
    Gladstone, MI 49837
    Tel: (906) 428-1621
    Grand Rapids - Support Group
    Contact: Nancy Carlson
    Greater Grand Rapids Celiac Support Chapter # 78 (CSA)
    E-mail: celiacsupport@sbcglobal.net
    Grand Rapids - Children's Support Group
    Contact: Nancy Spears
    E-mail: celiackids@glutenfreegr.com
    Kalamazoo - Support Group
    CSA of Greater Kalamazoo
    Contact: Annette Hensley
    Tel: (269) 492-5278
    Michelle Rutan
    Tel: (269) 342-1533
    Internet: www.glutenfreekzoo.org
    Lansing - Support Group
    Greta DeWolf
    1815 Sandhill Rd.
    Mason, MI 48854
    Tel: (517) 349-0294
    Internet: http://micapitalceliacs.atspace.com
    Support Group
    Contact: Donovan J. Sprick
    Mid-Michigan Chapter (CSA)
    Tel: (313) 733-6857
    Dryden - Support Group
    Tri-County Celiac Support Group, SE Michigan
    Newsletter information:
    TCCSG News, Editors:
    Contact: Robin Donagrandi
    21580 Birchwood
    Farmington, MI 48336
    E-mail: TCCSG@twmi.rr.com
    Tel: 86-NOGLUTEN
    Internet: www.tccsg.com
    Traverse City - Support Group
    Contact: Sandra Cartwright
    Traverse Area Gluten Free Support Group (TAGFSG)
    PO Box 4112
    Traverse City, MI 49685-4112
    Tel: (231) 947-8324
    E-mail: Scarttc@aol.com
    Contact 2: Kathy DiMercurio
    Tel: (231) 946-1687
    Conact 3: Kelli Sefton (children)
    Tel: (231)-943-0878
    Antrim and Kalkaska County contact: Linda Bicum
    Tel. (231) 322-2811
    Benzie County contact: Betty Robotham
    Tel. (231) 325-5725
    Brainerd Lakes Area Celiac Support Group
    Contact: Jennifer Chock
    Brainerd, MN
    Tel: (218) 825-9525
    Grand Rapids - Support Group
    Range Area Celiac Support Group
    Contact: Angeline Edgar
    Tel: (218) 328-5731
    E-mail: rangeceliac@yahoo.com
    Minneapolis/St. Paul Area Support Group
    Contact 1: Karen Geronime
    Northland Celiac Support Group (formerly Midwest Gluten Intolerance Group)
    E-mail: klgeronime@aol.com
    Contact 2: Judy LaBrosse
    E-mail: jlabrosse@usgo.net
    Internet: http://www.northlandceliacs.org
    Greater Minneapolis Area - Support Group
    Mpls./St. Paul and greater Minnesota Area Support
    Contact: Lynn Gabriel
    Tel: (952) 443-2626
    E-mail: lynnshadlegabriel@yahoo.com
    Contact 2. Carol Crandall
    E-mail: cgrzlybr@aol.com
    Internet: http://www.CDFTwinCities.com
    Rochester Support Group
    Contact: Coyla Shepard, Founder
    Southeast Minnesota Celiac Support Group
    2805 Hidden Hills Lane NE
    Rochester, MN 55906
    Contact 2: Warren Budd
    Tel: (507) 288-9056
    Gulfport - Support Group
    Contact: Jane Dacey
    Mississippi Celiac Support Group
    P.O. Box 1276
    Ocean Springs, MS 39566
    Tel: (601) 875-2820
    Branson - Support Group
    GIG of Branson Tri-Lakes
    Barbara Hicks
    9 Arrowhead Road
    Kimberling City, MO 65686
    Tel: (417) 739-2703
    E-mail: honedu@centurytel.net
    Columbia - Support Group
    Contact: Donna Kasper
    Columbia MO Gluten Free Support Group
    Columbia, MO 65203
    Tel: (573) 447-5659
    E-mail: n2kasper@mchsi.com
    Kansas City - Resource:
    Contact: Elanor R. Aadams
    135 N. Missouri
    Liberty, MO 64068
    Tel: (816) 781-6514
    Nevada (and Southeast Kansas) - Support Group
    Gluten Intolerance Group of North America
    Contact: Sharon Jepson
    Tel: 979-848-7455
    St. Louis - Support Group
    Contact 1: Bill Vellios Sr.
    St. Louis Chapter (CSA)
    812 Kehrs Mill Road
    Ballwin, MO 63011-2442
    Tel: (314) 391-6855
    Contact 2: Joan Fitzsimmon
    6716 Westway Road
    St. Louis, MO 63109
    Tel: (314) 351-5114
    Contact 3: Linda Ritter
    E-mail: nltr@charter.net
    Alzada - Resource:
    Contact: Teri Lindberg
    HC 56, P.O. Box 60
    Alzada, MT 59311
    Big Timber - Resouce:
    Contact: Debra Barrett
    P.O. Box 1018
    513 W. Third
    Big Timber, MT 59011
    Billings - Resouce:
    Contact: Dennis McGough
    1023 Marie Dr.
    Billings, MT 59101
    Tel: (406) 256-5569
    Bozeman / Helena - Support Group
    Contact: R. Jean Powell
    Montana Celiac Society
    1019 S Bozeman Avenue, #3
    Bozeman, MT 59715
    Tel: (406) 586-1285
    E-mail: rjeanp@aol.com
    Choteau - Resource:
    Contact: Jeanette Rasmussen
    4210 Highway 89
    Choteau, MT 59422
    Tel: (406) 466-2091
    Columbus - Resource:
    Contact: Jeanne Murray
    P.O. Box 594
    Absarokee, MT 59001-0594
    Tel: (406) 328-4851
    Deer Lodge - Resource:
    Contact: Eloise Faber
    911 Missouri Avenue
    Deer Lodge, MT 59722
    Tel: (406) 846-1246
    Havre - Resouce:
    Contact: Ruth Wardell
    Havre, MT 59522
    Tel: (406) 265-1701
    Helena - Resource:
    Contact 1: Cleo Anderson
    P.O. Box 4637
    Helena, MT 59604
    Tel: (406) 227-6671
    E-mail: cleomt@aol.com
    Contact 2: Judy Harris
    1817 Silver St.
    Helena, MT 59601
    Tel: (406) 443-5158
    Missoula - Resource:
    Contact: Dottie Caluori
    1440 River St.
    Missoula, MT 59801
    Tel: (406) 542-7499
    Wolf Point - Resource:
    Contact: Alice Whitmer
    872 Nickwall Road
    Wolf Point, MT 59201
    Tel: (406) 525-3289
    Celiac disease support groups in the United States - Includes national organization affiliation (if any).
    Grand Island - Support Group
    Contact: Keith McTavish
    Central Nebraska Celiacs
    P.O. Box 411
    Wood River, NE 68883
    Tel: (308) 583-2949.
    Grand Island - Resource:
    Contact: Diane D. Epp
    Box 595
    Henderson, NE 68371
    Tel: (402) 723-4759
    Lincoln - Support Group
    Contact 1: Beckee Moreland
    Star City Area Chapter (CSA)
    1639 Sunset Rd.
    Lincoln, Ne 68506
    Tel: (402) 441-9621
    E-mail: beckland@inebraska.com
    Omaha - Celiac Sprue Association/USA
    Contact: Mary A. Schluckebier
    PO Box 31700
    Omaha, NE 68131-0700
    Tel: (402) 558-0600
    E-mail: csaceliacs@csaceliacs.org
    Omaha - Support Group
    Contact 1: Lynn Samuel
    Midlands Chapter (CSA)
    6303 Kentucky Road
    Papillion, NE 68133
    Tel: (402) 339-1346
    Contact 2: Rebecca Warren
    Tel: (402) 235-3576
    Seward - Resource:
    Contact: Mary Schluckebier
    1616 Plainview Avenue
    Seward, NE 68434
    Tel: (402) 643-4340
    Las Vegas - Support Group
    Contact: Jennifer Sullivan
    Tel: (702) 985-7664
    Las Vegas - Resource:
    Contact: Joanne B. Mathews
    270 W. Basic Road
    Henderson, NV 89015
    Las Vegas - Resource:
    Contact: Catherine Hammelrath
    3355 Rolan Court
    Las Vegas, NV 89121
    Tel: (702) 733-7633
    E-mail: vegascat53@cox.net
    Reno Support Group
    Contact: Kerry Seymour, MS, RD, CDE
    Reno Celiacs & Nutrition Resources
    475 Hill Street, Suite C
    Reno, Nevada 89501
    Tel: (775) 329-8811
    New Hampshire
    Laconia - Resource:
    Contact: Ann Marie Shumway
    2541 Old Parade Rd.
    Laconia, NH 03246
    Tel: (603) 528-1911
    Nashua area - Support Group
    Contact 1: John Waksmonski
    Tel: (603) 437-1702
    Contact 2: Christine Muir
    E-mail: themuirs@charter.net
    Portsmouth - Support Group
    Contact: Dan Davis
    6 Oakridge Rd.
    Kensington, NH 03833
    Tel: (603) 778-1938
    E-mail: djdavis107@comcast.net
    New Jersey
    Brick - Resource:
    Contact: Gary Powers
    284 White Oak Court
    Brick, NJ 08724
    Tel: (732) 840-3718
    Cherry Hill - Resource:
    Contact: Fran Twersky
    107 East Burgess Road
    Marlton, NJ 08053-1202
    Tel: (609) 983-3362
    Hackettstown - Resource:
    Contact: Mrs. Merle Morse
    P.O. Box 148
    Hackettstown, NJ 07840
    Tel: (908) 852-7311
    Long Branch - Support Group
    Specialized Pediatric Celiac Group
    Specialized Ped. Ambulatory Center
    307 3rd Avenue
    Long Branch, NJ 07740
    Tel: (201) 870-5216
    Maple Shade-Resource
    Cindy Fisher
    377 Crawford Ave.
    Maple Shade, NJ 08052
    Tel: (856) 779-1562
    E-mail : hfishernj@aol.com
    New Brunswick - Support Group
    Contact 1: Diane Eve Paley
    Celiac/DH Support Group and Cel-Kids Network CSA/USA Inc. #58
    22 Island Drive
    Old Bridge, NJ 08857-2518
    Tel: (908) 679-6566
    E-mail: DEPaley@AOL.COM
    Contact 2: Alex Schwedack
    5-c Twin Rivers Dr.
    East Windsor, NJ 08520
    Tel: (609) 443-6623
    Contact 3: Rosanna Beck
    Tel: (908) 225-7594
    E-mail: B6724@aol.com
    Old Bridge - Support Group
    Contact: Diane Eve Paley
    Central Jersey Celiac/DH Support Group, CSA/USA
    22 Island Dr.
    Old Bridge, NJ 08857
    Tel: (732) 679-6566
    E-mail: DEPaley@aol.com.
    Paramus - Support Group
    Contact: Lauri Schlussel
    American Celiac Society Bergen County
    11 Marz Road
    Westwood, NJ 07675-8217
    Tel: (201) 573-0397
    Princeton - Resource:
    Contact: Evelyn Sasmor
    Tel: (609) 279-0770
    E-mail: evelyn@sasmor.com
    South Jersey - Support Group
    CSA Southern New Jersey Chapter #9
    Contact 1: Leah Edelstein, Co-chairperson
    23 Stevens Drive
    Voorhees, NJ 08043
    Tel: (856) 435-6785
    E-mail: ledelstein@comcast.net
    Contact 2: Patti Townsend, Co-Chairperson, Membership
    Collingswood, NJ
    Tel: (856) 854-5508
    E-Mail: pattitowns@verizon.net
    New Mexico
    Albuquerque - Support Group
    Contact: Marilyn Johnson
    Albuquerque Gluten Intolerance Support Group
    Celiac Sprue Association New Mexico State Coordinator
    Tel: (505) 299-5283
    E-mail: marilynyj@comcast.net
    Las Cruces - Support Group
    Las Cruces Celiacs
    Contact: Susan Pieper
    4825 Senita
    Las Cruces, NM 88011
    Tel: (505) 522-8182
    E-mail: spieper@huntel.com
    New York
    Albany - Support Group
    Contact 1: Katie Marschilok
    Capital District Celiac Support Group (Albany - ACS)
    4 Fairlawn Lane
    Troy, NY 12180
    Tel: (518) 271-1784
    E-mail: Marschilok@aol.com
    Contact 2: Barbara Jordan
    Tel: (518) 439-8652
    Batavia - Resource:
    Contact: Virginia R. Baldwin
    P.O. Box 158
    Pavilion, NY 14525
    Tel: (716) 584-3422
    Binghamton - Support Group
    Contact: Nancy Dorfman
    Celiac Self Help Group
    12 Laurel Avenue
    Binghamton, NY 13905
    Tel: (607) 722-3848
    Buffalo - Support Group
    Contact 1: Mike Lodico
    Gluten Free In WNY (GIG)
    P.O. Box 24
    N.Tonawanda, NY 14120
    Tel: (716) 694-3287
    E-mail: glutenfree2@gmail.com
    Contact 2: Joanne Hameister
    Tel: (716) 655-0849
    E-mail: jeham@buffnet.net
    Internet: http://www.glutenfreeinwny.com/
    Hudson Valley Area - Support Group
    Contact: Cathy Selber
    Mid-Hudson Valley Gluten-Free Outings Meetup Group
    E-mail: clselber@optonline.net
    Ithaca/Cornell - Support Group
      Contact: Laura Johnson-Kelly
      48 Comfort Rd.
      Ithaca, NY 14850
      Tel: (607) 272-5902
      E-mail: LWJ1@cornell.edu.
    Ithaca - Resource:
    Contacts: Mary Ochs
    18 Whig St.
    Trumansburg, NY 14886
    Tel: (607) 387-9221
    E-mail: mao4@cornell.edu.
    Long Island - Support Group
    Contact 1: JoanAnn Defiglia
    Long Island Celiacs
    1023 Jackson Avenue
    Franklin Square, NY 11010
    Tel: (516) 437-0396
    Contact 2: Ellen Mulligan
    193-5th St.
    Hicksville, NY 11801
    Contact 3: James J. Callahan
    Tel: (516) 794-1654.
    Middletown - Support Group
    Contact: Marisa Frederick
    Celiac Kids' Club
    264 Scotchtown Road
    Goshen, NY 10924
    Tel: (914) 294-1385
    Mohawk Valley - Support Group
    Contact: Eleanor P. Wallace
    The Celiac Support Group of the Mohawk Valley
    - chapter of Celiac Disease Foundation
    10 Clinton St., Apt. 715
    Whitesboro, NY 13492
    Tel: (315) 736-6981
    E-mail: elpar6@yahoo.com
    Internet: http://www.csgmv.org/
    New York - Support Group
    Contact 1: Mary Ferry
    Greater New York Celiac Support Group (CSA)
    Tel: (212) 304-1026
    Contact 2: Merle Cachia
    Tel: (212) 662-2464
    E-mail: pjc1@columbia.edu
    Plattsburgh - Support Group
    North Country Celiac Support Group
    Contact: Shirley Koester
    Tel: (518) 643-9461
    E-mail: redwing2@localnet.com
    Rochester - Support Group
    Rochester Celiac Support Group
    Contact 1: Susan Kath
    1039 Moseley Road
    Fairport, NY 14450
    Tel: (585) 425-9994
    Contact 2: Marvin Becker
    210 Crandon Way
    Rochester, NY 14618
    Tel: (585) 442-9528
    E-mail: http://www.rochesterceliacs.org/contact.htm
    Internet: http://www.rochesterceliacs.org
    Suffolk County - Support Group
    Suffolk County (NY) Celiacs-a Branch of GIG
    Contact 1: Les Doti
    P.O. Box 13
    Kings Park, NY 11754-0013
    Contact 2: Michael Thorn
    Tel: (631) 395-5071
    E-mail: SuffolkCeliacs@aol.com
    Internet: http://www.suffolkcountyceliacs.org
    Syracuse - Support Group
    Contact: Ruth Wyman
    Central New York Celiac Support Group
    263 Roxbury Road
    Syracuse, NY 13206
    Tel: (315) 463-4616
    E-mail: info@CNYceliacs.org
    Website: www.CNYceliacs.org
    White Plains - Support Group
    Contact 1: Chris Spreitzer
    Westchester Celiac Sprue Support Group
    P.O. Box 66
    Montrose, NY 10548-0066
    Tel: (914) 737-5291
    E-mail: info@westchesterceliacs.org
    Contact 2: Lou Zimet
    E-mail: louzimet@optonline.net
    Williamsville - Support Group
    Contact: Cliff Hauck, Co-Chairperson
    P.O. Box 1835
    Williamsville, NY 14231
    Western NY Gluten Free Diet Support Group (CSA/USA Chapter #33-1990)
    Tel: (716) 636-6021
    E-mail: hauckc@adelphia.net
    Internet: http://www.buffaloglutenfree.org
    North Carolina
    Asheville - - Resource:
    Contact: Leah R. Karpen
    518 Ox Creek Road
    Weaverville, NC 28787
    Tel: (704) 645-9067
    Boone - Resource:
    Contact: Ernest Lane
    827 Blairmont Dr.
    Boone, NC 28607
    Tel: (704) 264-4618 or (704) 262-2380
    E-mail: epl@math.appstate.edu
    Charlotte - Support Group
    Contact: Janet Kline
    Charlotte Celiac Connection
    Tel: (704) 442-2997
    E-mail: Janet@Charlotte-Celiac-Connection.org
    Internet: www.Charlotte-Celiac-Connection.org
    Durham - Fayetteville Support Group
    Contact 1: Ruth Thomas
    North Carolina Celiacs (CSA)
    Tel: (919) 542-4030
    Contact 2: Susan Black
    Tel: (910) 875-3186
    Raleigh-Durham - Support Group
    Contact 1: Diana Clarke
    Triangle Celiac Support Group
    E-mail: DeBucket@aol.com
    Contact 2: Connie Margolin
    E-mail: ThirdEar0@aol.com
    North Dakota
    Bismarck - Support Group
    Contact: Lila Brendel
    Central ND Celiac Resource Group
    1900 93 St. SE
    Bismarck, ND 58504
    Tel: (701) 258-7800
    E-mail: CNDC_GIG@msn.com
    Fargo - Support Group
    Contact: Stacey Juhnke or Sara Vollmer 
    GIG of Fargo-Moorhead
    PO Box 464 Fargo ND 58107
    Tel: (701) 237-4854, (701) 412-8110, (701) 238-0587
    Internet: www.gluten.net/local-branches/north-dakota/gig-of-fargo-moorhead
    Email: GIG_FM@hotmail.com
    Oakes - Support Group
    Contact: Juli Becker
    North Dakota Celiacs (CSA)
    10585 85th St. SE
    Oakes, ND 58474
    Tel: (701) 742-2738
    Bellevue - Support Group
    Contact: Dennis & Cheryl Dendinger
    North Coast Celiac Support Team
    Bellevue, OH 44811
    Tel: (419) 483-6529
    Canton - Support Group
    Contact: Denise Ramey
    Alliance Area Celiac Support Group
    E-mail: daramey33@netzero.net
    Tel: (330) 966-1515
    Cincinnati - Support Group
    Contact: Denise Ramey
    Cincinnati Celiac Support Group
    Children's Hospital Medical Center
    Cincinnati, OH 45229
    Tel: (513) 887-7153
    Internet: http://www.cinciceliac.com
    E-mail: president@cinciceliac.com
    Cleveland- Support Group
    Northeast Ohio Celiac Support Group
    E-mail: info@neohioceliac.com
    Contact: Trisha Lyons, RD, LD
    2500 MetroHealth Dr.
    Cleveland, OH 44109
    E-mail: TLyons@metrohealth.org
    Tel: (216)-778-7835
    Internet: www.neohioceliac.com
    Cleveland - Support Group
    Contact: Cindy Koller-Kass, President
    Greater Cleveland Celiac Association
    CSA/USA Chapter 50
    33040 Rockford Drive
    Solon, OH 44139
    Tel: (440) 248-6671
    E-mail: glutenfree1@yahoo.com
    Gluten Free Support Group of NW Ohio
    Contact: Holly McCollam
    Email: glutenfreesupportgroupofnwohio@aol.com
    Internet: https://www.facebook.com/groups/glutenfreesupportgroupofnwohio
    Columbus - Support Group
    Contact: Mary Kay Sharrett
    Gluten Free Gang
    700 Children Drive
    Columbus, OH 43205-2696
    Tel: (614) 722-3093
    E-mail: sharretm@chi.osu.edu
    Contact 2: Monica Hrabowy
    663 Laurel Ridge Drive
    Gahanna, OH 43230
    Tel: (614) 337-1833
    Tel: EHrabowy@aol.com.
    Internet: http://www.glutenfreegang.org
    Dayton - Support Group
    Contact 1: Sandra Leonard
    Miami Valley Celiac Sprue Support Group
    560 Park Hills Crossing
    Fairborn, OH 45324
    Tel: (513) 878-3221
    E-mail: thebaker_30@yahoo.com
    Contact 2: Barbara Wieland
    5903 S. Tecumseh Rd.
    Springfield, OH 45502
    Tel: (937) 324-8652
    E-mail: wielandbj@aol.com
    Mansfield - Support Group
    Contact: Bev Messner
    Richland County Celiac Support Group
    First Presbyterian Church
    399 S. Trimble Rd.
    Mansfield, OH
    E-mail: bevmessner@aol.com
    Tel: (419) 589-5972
    Internet: http://www.rccsg.com
    Toledo - Support Group
    Contact: Holly McCollam
    Gluten Free Support Group of NW Ohio
    E-mail: glutenfreesupportgroupofnwohio@aol.com
    Internet: https://www.facebook.com/groups/glutenfreesupportgroupofnwohio/
    Norman - Resource
    Contact: Kate Martin
    Norman, OK
    Tel: (405)364-5612
    email: one4life@swbell.net
    Internet: http://katesceliac.blogspot.com
    Oklahoma City - Support Group
    Contact: Heather Cline
    Oklahoma Celiac Sprue Support Group (CSA)
    1403 Classen Drive, Oklahoma City, OK 73106
    Tel: (405) 235-1715
    E-mail: HMCline@aol.com
    Internet: http://www.OKceliac.com
    Okmulgee - Resource:
    Contact: Barbara Sipple
    Rt. 1, Box 247
    Morris, OK 74445
    Tel: (918) 733-4571
    Tulsa - Support Group:
    Contact: Jennifer Croley
    Celiac Sprue Association
    Tulsa Chapter #119
    E-mail: csatulsa@gmail.com
    Internet: www.csatulsa.org
    Bend - Support Group
    Contact: Lynelle Thomas
    Central Oregon Gluten Intolerance Group (GIG)
    2442 NW Marken
    Bend, OR 97701
    Tel: (541) 389-1731
    Burns - Resource:
    Contact: Nici Bailey
    449 S. Diamond
    Burns, OR 97720
    Tel: (541) 573-1164
    Grants Pass - Support Group
    Contact: Janine Chambers
    1035 NE 6th St.
    Grants Pass, OR 97526
    Tel: (541) 218-0229
    Portland/Vancouver - Support Group
    Portland Metro GIG Branch Contacts
    Contact: Mary Wikle - Branch Manager
    PO Box 4204
    Tualatin, OR 97062-4204
    Tel: (503) 692-0724
    E-mail: mwikle_carousel@yahoo.com
    Salem - Support Group
    Contact #1 - Ann Grafe
    1328 Dogwood Drive
    Woodburn OR 97071
    Tel: (503) 982-3644
    Bethlehem (Allentown area) - Support Group
    Contact: Carla Madden
    809 Race St
    Catasauqua PA 18032
    E-mail: kapanagia@yahoo.com
    Danville - Support Group
    Contact: Elaine M. Jeffreys
    ACS Danville City Support Group
    R.d.#6 Box 143 C
    Danville, PA 17821
    Tel: (717) 275-0654
    Gluten Free Group of Gettysburg
    Betsy Wargo, RD
    e-mail: bwargo@wellspan.org 
    Harrisburg - Support Group:
    Contact: Linda L. Weller
    GIG of Harrisburg
    Address: PO Box 312
    Hershey, PA 17033
    Tel: (717) 520-9817
    E-mail: Harrisburg@gluten.net
    Internet: http://www.harrisburgceliacs.org
    Indiana - Support Group
    Indiana Regional Medical Center Celiac Support Group
    Contact: Brenda Shilling, Director of NFS
    Indiana Regional Medical Center
    Indiana, PA 15701
    E-mail: bshilling@indianarmc.org
    Lancaster Area - Support Group
    George and Becky Maag
    Tel: (717) 367-9257
    E-mail: lancasterareaceliacs@yahoo.com
    Internet: http://www.lancasterareaceliacs.org
    Mount Pleasant - Support Group
    Mount Pleasant Celiac Support Group
    Contact: Vicky Vrabel
    616 West Main Street
    Mount Pleasant, Pennsylvania 15666
    Tel: (724) 542-9745
    Philadelphia - Support Group
    Contact: Laura Sposito
    ACS Whoo Sprue Group
    1211 Tree Street
    Philadelphia, PA 19148
    Tel: (215) 336-5004
    Philadelphia - Support Group
    Contact: Karen Dalrymple
    Greater Philadelphia Area Celiac Sprue Support Group
    583 Valley View Rd.
    Langhorne, PA 19047
    Pittsburgh - Support Group
    Contact: Elsie Janthey
    Pittsburgh East Area Celiac Sprue Support
    204 George Lane
    Pittsburgh, PA 15235
    Tel: (412) 823-2010
    Contact 2: Lois Kosoglow
    Tel: (412) 744-2356
    Contact 3: Ruth Masengill
    Tel: (412) 327-5564
    Pittsburgh - Support Group
    Contact 1: Lorraine Weaver, Treasurer and Membership
    Greater Pittsburgh Celiac Sprue Support Group, Chapter #48 CSA/USA
    1446 Greenbriar Court
    Library, PA 15129
    Tel: (412) 835-4983 or (412) 833-9507
    Contact 2: Theresa Fogle
    Tel: (724) 335-4892
    E-mail: tfogle1@aol.com
    State College - Support Group
    Contact: Cindy Sunderland
    Central Pennsylvania Celiac Support Group
    RD 2, Box 189
    McVeytown, PA 17051-9618
    Tel: (717) 899-6482
    E-mail ras@DD1.ARL.PSU.EDU
    Wilkes-Barre/Scranton - Support Group
    Contact: Rosemarie Butera
    CSA/USA Wilkes-Barre/Scranton Celiac Support Group
    Tel: (570) 655-0728
    Wynnewood - Resource:
    Contact: Rita M. Herskovitz
    52 Rockglen Road
    Wynnewood, PA 19096
    Tel: (215) 642-9351
    Rhode Island
    Providence - Support Group
    Contact: Tanis Collard
    MA & RI Celiac Support Group for Children
    11 Level Acres Road
    Attleboro, MA 02703-6843
    Tel: (508) 399-6229
    Internet: http://members.home.net/kellyleech/celiac/csgc.html
    Rhode Island - Support Group
    Contact 1: Linda Monahan
    American Celiac Family Support Group of RI
    155 Reservoir Road
    Pascoag, RI 02859
    Tel: (401) 568-6110
    E-mail: MonahanLinda@yahoo.com
    Internet: http://www.celiacsupportgroup.com
    South Carolina
    Columbia - Support Group
    Contact 1: Peggy Smith
    Palmetto Celiac Support Group
    1508 Anthony Drive
    West Columbia, SC 29172
    Tel: (803) 775-9466 or (803) 755-7291
    Florence - Resource:
    Contact: Lea E. Marshall
    1214 Hillside Avenue
    Florence, SC 29505
    Tel: (803) 665-6290
    Jackson - Support Group
    Contact: Allan Clement
    151 Lone Oak Dr.
    Jackson, TN 38305
    Tel: (731) 423-5315
    E-mail: aclementhome@hotmail.com
    Knoxville - support group
    Contact: Theresa Cornelius, MS, RD, LDN
    7424 Oaken Dr.
    Knoxville, Tn 38938-4321
    Tel: (865) 922-8780
    E-mail: TheresaCornelius@Changing-Lifestyles.com
    Memphis - Support Group
    Contact 1: Lisa Trenthem
    Memphis Area Celiac Support Group
    1753 Carruthers Pl.
    Memphis, TN 38112
    Tel. (901) 276-7751
    E-mail: ltrenthem@utmem.edu
    Contact 2: Sally Damron
    E-mail: srdamron@bellsouth.net
    Nashville - Support Group
    Nashville Celiac Support Group (CSA)
    Contact 1: Gary Seise, Co-chair
    Tel: 615-895-0398
    E-mail: grseise@juno.com
    Contact 2: Darryl Casey, Co-chair
    Tel: 615-481-4445
    E-mail: DarrylCasey@yahoo.com
    Austin - Support Group
    Contact : Francie Kelley
    Alamo Celiac Austin
    Alamo Celiac Gluten Intolerance Group
    Tel: (512) 301-2224
    E-mail: fkelley@austin.rr.com
    Internet: http://www.alamoceliac.org
    Brazoria County Texas Celiac Support Group
    Contact: Cecilia McNeil
    Tel: (979) 265 0819
    E-mail: clmcneil@academicplanet.com
    Corpus Christi - Support Group
    Alamo Celiac Corpus Christi
    Contact: Susan M. Revier, Secretary
    Tel: (361) 855-6810
    E-mail: jamesrevier@grandecom.net
    Dallas - Support Group
    Lone Star Celiac Gluten Intolerance Group
    Contact: Rose Mary Simmons
    2603 Dorrington Drive
    Dallas, TX  75228
    Tel: (214) 328-7286
    E-mail: president@dfwceliac.org
    Internet: http:www.dfwceliac.org
    Eastland - Resource:
    Contact: Jill Hollywood
    P.O. Box 938
    Eastland, TX 76448-0938
    Tel: (254) 629-1299
    Fort Worth - Support Group
    Contact: Betty Barfield, President
    North Texas Gluten Intolerance Group
    6821 Nob Hill Dr.
    North Richland Hills, TX 76182
    Tel: (817) 929-9227
    E-mail: manager@northtexasgig.com
    Internet: http://www.northtexasgig.com
    Houston - Support Group
    Houston Celiac Sprue Association
    Janet Y. Rinehart, Chairman
    13722 Ashley Run
    Houston, TX 77077
    Tel: (281) 679-7608
    E-mail: txjanet@swbell.net
    Chapter web site: http://www.houstonceliacs.org
    Lubbock - Support Group
    Contact: Rebecca Holland
    Lubbock Celiac Support Group
    Internet:- http://www.lubbockceliacgroup.com
    Midland - Support Group
    Contact 1: Pat Gatlin
    West Texas GF Awareness Group
    11809 W. County Road, #54
    Midland, TX 79707
    Tel: (915) 563-4847
    Contact 2: Lois Newbold
    Tel: (915) 684-4671
    Contact 3: Linda Blanchard
    E-mail: linda@ccgs.com
    San Antonio - Support Group
    Alamo Celiac San Antonio
    Contact 1: Anne Barfield
    606 Jackson Keller
    San Antonio TX 78216-7121
    Tel: (210) 340-0648
    E-mail: AnneBarfield@satx.rr.com
    Contact 2: Lynn Rainwater
    5014 Gemsbuck Chase
    San Antonio TX 78251-4380
    Tel. (210) 509-0179
    E-mail: txlynnr@swbell.net
    Texas Hill Country - Support Group
    Austin Gluten-Free Friends
    Contact: Kay Stence
    1863 Greenwood Lane
    Kingsland, TX 78639
    Tel: (512) 632-3682 or (325) 388-3103
    E-mail: kstence@marykay.com
    Texarkana - Resource:
    Contact: Marie Freeman
    Rt 6, Box 465-F
    Texarkana, TX 75501
    Tel: (903) 793-1392
    Utah Support Groups - Website
    Gluten Intolerance Support Groups of Utah
    Internet: http://www.gfutah.org
    Northern Utah - Support Group
    Celiac Support Group of Northern Utah,
    a branch of the Gluten Intolerance Group
    Contact: Marie Kawaguchi
    E-mail: mkawag@msn.com
    Tel: (801) 732-9363
    Salt Lake Gluten Intolerance Group (GIG)
    St. Mark's Hospital (meeting place)
    Pam Ward - CoChair
    Sandi Bigelow - CoChair
    Tim Coda - CoChair
    Marcie Coda, Branch Manager
    E-mail: saltlakegig@gmail.com
    Internet: http://www.gfutah.org
    Utah County- Support Group
    Contact: Paul Faris
    E-mail: pfaris@juno.com
    Tel: (801) 225-5828
    Utah County - Support Group
    Utah County Gluten Intolerance Group (GIG)
    Contact: Robert and Amber Lee
    Tel: (801) 763-0977
    Email: info@gfutah.org
    Internet: http://www.gfutah.org
    Bennington - Support Group
    Contact: Lynn Grieger
    Southern Vermont Celiacs
    RD3 Box 586
    Arlington, VT 05250
    Tel: (802) 375-9069
    St. Albans - Support Group
    Contact: Suzanne Ludlam
    Celiac Support Group of Vermont
    E-mail: rsludlam@yahoo.com
    Alexandria, Arlington - Support Group
    Contact: Jerry Malitz
    Washington Area Celiac Support Group
    Email: dcmetroceliacs@gmail.com
    Internet: http://www.dcceliacs.typepad.com
    Blacksburg - Support Group
    Contact: John Tice
    New River Valley CS Support Group
    Blacksburg, VA
    Tel: (540) 951-2126
    E-mail: jtice1@johntice.com
    Charlottesville - Support Group
    Contact: Amy E. Pagano, MS, RD
    Celia Sprue Support Group
    Tel: (434) 243-4666
    E-mail: ap8a@virginia.edu
    Chesapeake, VA - Support Group
    Contact: Dawn Ryan
    Celiac Disease Foundation Chesapeake Tidewater Chapter
    E-mail: ctcglutenfree@gmail.com
    Internet: www.celiacsofva.com
    Richmond - Support Group
    Contact: Madelyn Smith
    Gluten Intolerance Group of Richmond
    E-mail: gigrva@comcast.net
    Richmond - Support Group
    Richmond Celiac Sprue Support Group
    Contact: William & Deborah Locke
    1347 Sweet Willow Drive
    Midlothian, VA 23113
    Tel: 804-794-7476
    E-mail: csa_rcssg87@comcast.net
    Bellingham - Support Group
    Bellingham Gluten Intolerance Group
    Contact: Kelle A. Rankin-Sunter
    P.O. Box 28894
    Bellingham, WA 98229
    Tel: (360) 332-7435
    E-mail: celiac@nuwworld.com
    Internet: http://www.glutenfreeway.info
    Seattle - Support Group
    Gluten Intolerance Group
    15110 10 Ave. SW, Suite A
    Seattle, WA 98166-1820
    Tel: (206) 246-6652
    E-mail: gig@gluten.net
    Internet: http://www.gluten.net
    Renton - Support Group
    Contact: Lynn Jameson
    E-mail: Southseattlegfgroup@yahoo.com
    Seattle - Support Group
    Seattle Celiacs
    Kirkland WA 98033
    Tel: (425) 503-6126
    E-mail: eric@seattleceliacs.com
    Internet: http://www.seattleceliacs.com
    Tacoma - Support Group
    South Sound Gluten Free "Encouragement" Group
    Contact: Gay McCray
    Tel: (253) 851-4610
    E-mail: gmccray@centurytel.net
    West Virginia
    Huntington - Support Group
    Tri-State Celiac Sprue Support Group
    Contact: Deborah Yeager
    5425 Lea Hill Dr.
    Huntington, WV 25705
    Tel: (304) 733-5867
    Appleton - Support Group
    Fox Valley Celiacs
    Contact: Helen Morris
    1369 Graystone Court
    Depere, WI 54115
    Tel: (920) 337-9235
    E-mail: hbmorris1369@sbcglobal.net
    La Crosse - Support Group
    La Crosse Area CS Support Group
    Contact: Mary Lou Balts
    2601 Losey Blvd. South
    La Crosse, WI 54601
    Tel: (608) 788-7398
    E-mail: baltskml@centurytel.net
    Madison - Support Group
    Group: Madison Area Gluten Intolerance Chapter (MAGIC)
    Contact: Aaron Avery
    Tel: (608) 271-4041
    E-mail: aavery77@hotmail.com
    Marshfield - Support Group
    Marshfield Celiac Support Group
    Contact: Marshfield Clinic Nutrition Services
    Tel: (715) 387-5480
    E-mail: carolasher46@gmail.com
    Internet: www.marshfieldceliac.weebly.com
    Milwaukee - Support Group
    Milwaukee Sprue Crew
    Contact: Bev Lieven
    E-mail: milcs@aol.com
    Casper - Support Group
    Central Wyoming Celiac Association
    Contact: Kim Attaway
    P.O. Box 50124
    Casper, WY 82605-0124
    Tel: (307) 472-5889
    E-mail: wyceliacassoc@alluretech.net

    Beyond Celiac is a non-profit organization dedicated to: Through empowerment, education and advocacy, the Beyond Celiac drives diagnoses of celiac disease and other gluten-related disorders and improves the quality of life for those on a lifelong gluten-free diet.
    Beyond Celiac 
    P.O. Box 544
    Ambler, PA 19002
    215-283-0859 (fax)

  • Recent Articles

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.

    Jefferson Adams
    Celiac.com 04/19/2018 - Previous genome and linkage studies indicate the existence of a new disease triggering mechanism that involves amino acid metabolism and nutrient sensing signaling pathways. In an effort to determine if amino acids might play a role in the development of celiac disease, a team of researchers recently set out to investigate if plasma amino acid levels differed among children with celiac disease compared with a control group.
    The research team included Åsa Torinsson Naluai, Ladan Saadat Vafa, Audur H. Gudjonsdottir, Henrik Arnell, Lars Browaldh, and Daniel Agardh. They are variously affiliated with the Institute of Biomedicine, Department of Microbiology & Immunology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; the Institute of Clinical Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden; the Department of Pediatric Gastroenterology, Hepatology and Nutrition, Karolinska University Hospital and Division of Pediatrics, CLINTEC, Karolinska Institute, Stockholm, Sweden; the Department of Clinical Science and Education, Karolinska Institute, Sodersjukhuset, Stockholm, Sweden; the Department of Mathematical Sciences, Chalmers University of Technology, Gothenburg, Sweden; the Diabetes & Celiac Disease Unit, Department of Clinical Sciences, Lund University, Malmö, Sweden; and with the Nathan S Kline Institute in the U.S.A.
    First, the team used liquid chromatography-tandem mass spectrometry (LC/MS) to analyze amino acid levels in fasting plasma samples from 141 children with celiac disease and 129 non-celiac disease controls. They then crafted a general linear model using age and experimental effects as covariates to compare amino acid levels between children with celiac disease and non-celiac control subjects.
    Compared with the control group, seven out of twenty-three children with celiac disease showed elevated levels of the the following amino acids: tryptophan; taurine; glutamic acid; proline; ornithine; alanine; and methionine.
    The significance of the individual amino acids do not survive multiple correction, however, multivariate analyses of the amino acid profile showed significantly altered amino acid levels in children with celiac disease overall and after correction for age, sex and experimental effects.
    This study shows that amino acids can influence inflammation and may play a role in the development of celiac disease.
    PLoS One. 2018; 13(3): e0193764. doi: & 10.1371/journal.pone.0193764