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    Do you have questions about celiac disease or the gluten-free diet?

  • Scott Adams
    Scott Adams

    Additional Recommendations to Help You Make a Full Recovery from Celiac Disease


    Celiac.com 01/11/2005 - After being diagnosed with celiac disease and going on a 100% gluten-free diet, make sure your doctor:
    • Tests your bone density (osteoporosis is more likely in those with untreated celiac disease);
    • Tests your blood for iron and folate deficiencies;
    • Vaccinates you for pneumococcal disease (serious infections are common in immune-stressed individuals. This step will vary with your overall condition upon diagnosis and may not be necessary).

    Other recommendations for initial management of celiac disease:

    • Referral to a dietitian and support group;
    • Ensure all regular medications are gluten-free;
    • If osteoporosis is found, assess vitamin D and parathyroid hormone concentrations;
    • Blood screening of your parents, children, brothers and sisters for celiac disease.
    • Check the Diseases and Disorders Associated with Celiac Disease section of Celiac.com and if you have any other health problems listed in that section be sure to discuss this with your doctor.

    Many people with celiac disease have additional food intolerance, and therefore never fully recover on a gluten-free diet alone. If you fall into this category try the following:

    • Re-check your diet and make sure it is 100% gluten-free;
    • Food allergy testing (finger-stick or ELISA);
    • An elimination diet;
    • Keep a food diary;
    • Try a rotation diet--only eating the top food allergens once every few days. The most common additional food intolerance are: Cows milk, corn, soy and eggs.

    Many people who have had difficulty recovering from celiac disease have found that maintaining a "paleo" perspective which favors unprocessed meats, vegetables, and fruits while avoiding all grains, is the final step necessary for a complete recovery.

    For more information on this topic the Winter 2005 edition of Scott-Free Newsletter has an excellent article: Putting the Pieces Back Together by Roy S. Jamron, which is available on-line to all subscribers. A special thanks to Ron Hoggan for providing me with some of the information that appears in this article.


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    I am SO glad to see something about the paleolithic diet on your website. My celiac disease did improve with eliminating wheat, barley, rye, and oats, but I was still pretty sick. Next went milk and eggs. Still sick. Next went corn and rice. Still sick. Finally, ALL legumes and potatoes. Great breakthrough. Celiac disease takes 3-5 years to recover from and I'm 1 1/2 years in. My comfort level is much higher on the paleolithic diet.

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    I have had celiac disease for 8 1/2 years. At 1st I was vomiting and running to the toilet when I ate something containing gluten. I've been following a gluten free diet since. But in the last couple of weeks I've been having cravings for gluten foods.

    It started off with some fresh doughnuts when my husband took me to Blackpool a couple of weeks ago, then some crispy creams, followed by jam dough nuts, chocolate éclairs - not all on the same day! Today I've had a double cheese burger meal from McDonald's. I've not been sick yet, or the runs!

     

    Does that mean I've not got celiac disease any more?

     

    I've made a doctors appointment for next week to be on the safe side.

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    I have had celiac disease for 8 1/2 years. At 1st I was vomiting and running to the toilet when I ate something containing gluten. I've been following a gluten free diet since. But in the last couple of weeks I've been having cravings for gluten foods.

    It started off with some fresh doughnuts when my husband took me to Blackpool a couple of weeks ago, then some crispy creams, followed by jam dough nuts, chocolate éclairs - not all on the same day! Today I've had a double cheese burger meal from McDonald's. I've not been sick yet, or the runs!

     

    Does that mean I've not got celiac disease any more?

     

    I've made a doctors appointment for next week to be on the safe side.

    Hello Dav,

     

    This is fairly normal, but it does not mean that you no longer have celiac disease. If you continue down this path it is likely that you could end up with intestinal damage or other more serious health issues which could take years to heal, or worse...more permanent issues.

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  • About Me

    In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease. In 1998 I founded The Gluten-Free Mall, Your Special Diet Superstore!, and I am the co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

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