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    Celiac Disease Alternative Medicine


    Scott Adams

    Celiac.com 02/12/2007 - Before they are diagnosed, people with celiac disease often find themselves in an unenviable position. They may go out of their way to eat a wholesome, balanced diet including plenty of fruits and vegetables, a good variety of whole-grain foods, and a modest amount of meat and dairy, yet still find themselves suffering a whole range of bothersome stomach and digestive complaints including indigestion, gas, stomach cramps and diarrhea, alternating with constipation.


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    Thats because people with celiac disease are intolerant of the protein gluten. Gluten is found in wheat, rye, and barley (oats contain a type of gluten that may be safe for most celiacs), and is found in the soft, white inside of the grain, its what makes dough, and flour and water paste, sticky and gooey.

    When people with celiac disease eat food made from these grains, even in small amounts, their immune systems seem to treat the gluten as foreign invader, and basically create a massive defensive action against what might be, for most people, part of a good healthy diet. The immune reaction that is triggered by gluten causes inflammation of the intestines, which leads to many problems that are associated with malabsorption, and ultimately to the general gastrointestinal malaise associated with undiagnosed celiac disease, or with gluten contamination in otherwise mindful celiac patients on a gluten-free diet.

    Diagnosis and Treatment of Celiac Disease are Important

    Unless celiac is treated, it becomes difficult for the digestive system to absorb enough nutrients from food to carry on proper body functions, and resulting vitamin deficiencies can cause a wide range of symptoms, including a condition known as malabsorption. Weight-loss, listlessness, feeling or looking malnourished, are all signs of the nutritional malabsorption associated with untreated celiac disease.

    Left untreated, celiac disease can become life-threatening. People can waste away. More likely though are higher instances of certain cancers, particularly of the intestines, and other diseases associated with untreated celiac disease. Thats why its advisable for people with any of these symptoms to check with their doctor to ensure a proper diagnosis, and to have follow up wellness checks.

    Even a negative blood test for celiac disease doesnt mean youre fully out of the woods. For a long time, research put the number of celiac patients at around 0.5% of the worlds population, or around 1 in 200 people. Recent studies however, have shown that to be a low estimate, and incidence is more likely around 1% of the population, or 1 in 133 people. Celiac Disease, however, is looking more and more like a very small part of the much larger Gluten sensitive picture.

    More ominous still, new evidence shows Non-Celiac Gluten intolerance to be around 30 times more prevalent than celiac disease, and if could affect up to 15% of people worldwide. 1 in 7 people are gluten-sensitive or gluten-intolerant. These people test negative or inconclusive for Celiac Disease, but suffer most of the same symptoms and long-term problems associated with celiac disease when they ingest wheat. This group of people are sometimes referred to as Non-Celiac Gluten Sensitive.

    Because the symptoms overlap with many other ailments, Gluten intolerance can easily be missed or misdiagnosed; especially in light of negative blood or biopsy tests--and this may lead many to miss out on discovering the simple and drug-free remedy of a Gluten-free diet for a dramatic recovery. If classic screening techniques for celiac disease do not identify the disease in someone who is in the Non-Celiac Gluten Sensitive category, or if the test results are borderline or inconclusive, often the only other approach to discover the problem is via the Elimination Diet.

    Once the cause is understood, and the necessary adjustments are made to the diet, celiac disease and gluten sensitivity are easily treated. A diet free of gluten usually brings both short and long-term improvement. This isnt always quite as easy as it sounds, as so many processed foods contain hidden forms of wheat that are used as binding or flavoring agents.

    Once you become aware of damaging foods and avoid them, a gluten-free diet can restore small intestine function within a few weeks to a few months. Once the mucosa of the intestine is no longer inflamed, most absorption issues will usually subside. The inflammation in the intestine will subside as gluten is eliminated.

    Echinacea and goldenseal may help to speed this process along. These two immune system boosters are often packaged together in capsule form. You may also find Echinacea and goldenseal in combination with slippery elm, marshmallow, geranium, and other herbs. This combination goes by the generic name of Roberts Formula, and is made by a number of manufacturers. Roberts formula treats the digestive tract by creating a beneficial layer of slime that is healing to digestive tissues. Check your local health food store.

    Echinacea and goldenseal are important healers because they have anti-inflammatory and antibacterial properties. One cautionary note, however: Dont take these herbs continuously. Generally, two weeks on and two weeks off for a period of up to two months.

    How to Replace Lost Nutrients Caused by Untreated Celiac Disease

    At the very least, most celiacs will benefit from a daily multivitamin/mineral supplement that includes calcium, 1,000 milligrams, along with 400 milligrams of magnesium (note that too much magnesium can cause diarrhea). Lack of vitamin B6 is partly to blame for symptoms of celiac disease, Pyridoxal-5-Phosphate (P-5-P) is often a good choice, as it requires no conversion to make vitamin B6, and can be easier on the stomach.

    Vitamins can also speed healing. Because the absorption of fats is particularly poor in celiacs, many celiac patients commonly suffer deficiencies of vitamins A, C, D, E, and benefit from taking these in supplemental form, along with a chelated form of zinc supplement. As with any supplement, read the directions and keep your doctor fully informed about what you are taking and how much.

    A typical dose, for example, is 1,000 to 2,000 international units (IU) of vitamin A in the form of fish oil (too much can have toxic effects so discuss this with your doctor), 100 to 200 IU of vitamin D also in fish oil, 500 to 1000 milligrams of vitamin C, 100 to 400 IU of vitamin E, and 15 to 30 milligrams of chelated zinc.

    Check with your doctor before taking more than 20 milligrams of zinc. Beta-carotene, 10,000 I.U. daily, can also be helpful, as can Iron, 60 mg. daily, if a blood test indicates iron deficiency.

    In addition to a good multivitamin/mineral for support, and other vitamins, digestive enzymes, which digest gluten, may also be helpful. To improve nutrient absorption and assimilation, these should be supplemented.

    Celiac patients also often suffer a deficiency of vitamin K., which can be supplemented through green foods, especially alfalfa. Green food supplements contain many essential nutrients, including trace minerals. Evening primrose oil is a good source of the omega-6 essential fatty acids that celiac patients often lack.

    Silica soothes inflammations in the gastrointestinal tract. It is available in both capsules and gel form.

    Medicinal clay is excellent in promoting healing of the walls of the colon and protecting it from irritation by toxins and dry, abrasive matter.

    Daily Dosages of Supplements for Celiacs:

    • Green food supplements, 1 tbsp.
    • Evening primrose oil, two 500 mg capsules three times daily
    • Multivitamin supplement, as directed on the label
    • Medicinal clay, dissolve 1 tsp. of clay in ½cup of water at room temperature and drink twice daily.
    • Papain, 500 mg three times daily
    • Pyridoxal-5-Phosphate, 50 mg daily
    • Silica, 3-6 capsules; in the gel form, follow the directions on the label
    • Vitamin B complex, 50 mg twice daily
    • Vitamin B12, 100 mcg
    • Vitamin C, with bioflavonoids, 5,000 mg one to three times daily

    Herbal Remedies in the Treatment of Celiac Disease

    Herbal remedies can help soothe intestinal irritation and inflammation and heal damaged mucous membranes.

    • Roberts Formula
    • Take 4 drops of agrimony tincture in water, three times daily.
    • Sufficient silica in the intestines will reduce inflammation, and strengthen and rebuild connective tissue. Take 3 cups of silica-rich horsetail tea or 15 drops of tincture in liquid three times daily.
    • A combination of burdock, slippery elm, sheep sorrel and Turkish rhubarb tea helps different types of inflammations in the gastrointestinal tract.
    • Use dandelion, saffron and yellow dock herbal teas to that purify and nourish the blood.
    • Pickled ginger can be eaten for anti-inflammation properties.
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    Guest Georgette

    Posted

    I just discovered today that I have celiac disease, and this article was very helpful to me.

     

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    Some notes on the herbs and supplements from someone who has studied and used 'alternatives' for the last 15y:

     

    The part of the above 'Roberts Formula' that helps recovery is the Slippery Elm and Marshmallow, which are used to sooth inflamed tissues; commonly in sore throat preparations. Licorice is another good one, but not if you have high blood pressure, and only take it for a short time. Another good gut soother is enteric coated peppermint.

     

    However Echinacea is a T-cell 'booster' and contraindicated for anyone with an auto-immune disorder. Celiacs, therefore should steer clear of it. Goldenseal is an all around anti viral/bacterial/parasitic and is hard on your liver, which is why you should not take it for very long, however still a very useful cold remedy. Like any other anti-bacterial, you should follow your treatment with a beneficial bacterial preparation. You can do this with either a pill, or a good quality yogurt or kefir. Read the labels; the more species listed the better, and of course avoid the Modified Food Starch. For Americans, LifeWay kefir or Horizon yogurt are good choices. These good bacteria are also helpful to form that healing 'slime' spoken of. If you have been experiencing any kind of bowel troubles, whether it is '24 hour stomach flu' or celiac-sprue, those bacteria have been depleted from that condidion. Also maintaining a healthy colony of beneficial bacteria in your gut acts as a barrier for any harmful organisms to take hold, including candida (Yeast infection). A daily dose of your favorite fruit flavored Kefir will do the body; especially the celiac one; a lot of good. If you are lactose intolerant, you should still be able to take this; the bacteria will happily oblige you in digesting all the lactose.

     

    The purpose of the medicinal clay is to absorb toxins, but it doesn't discriminate against vitamins, so if you use the clay, use it for a week or so at a time, and do not supplement, otherwise you are wasting your money.

     

    Also if you intend on taking the 5000 mg of Vit C, work up to it slowly, 500mg/day increase each day from either a starting amount of 500mg, or whatever you currently take. Large doses can be a shock and may give you diarrhea. Everone has a different tolerance for this, but if you don't know yours, it won't hurt to take it slow.

     

    Vit A is indeed the most toxic of the vitamins, but the average person can safely take 5000 IU of activated A (retinyl palmitate) per day. A therapeutic dose is more like 10,000 to 20,000 IU /day UNLESS YOU ARE PREGNANT OR AT RISK OF PREGNANCY then stick to the 5,000 max. Beta Carotene is the un-activated version of Vit. A. There is no upper dose of that, and can be found in great abundance in any colored vegetable/fruit, so don't waste your money on a pill; just go to the produce dept. You store Beta Carotene in your skin, and the liver retreives it and turns it into active Vit A 'as needed'. Part of the reason why Vit A is toxic, is that it is fat soluable so your body stores it instead of passing it like it will water-soluable B vitamins. That means to be safe, you should not engage in a therapeutic dose past the time you need the therapy.

     

    Vit E is used in building the cell walls of every cell in the body, and is our most basic defense against 'free radicals'. 400 IU/day is the dose recommended for a healthy adult. For healing and tissue repair, you can easily double that. Although fat soluable, there is no known upper limit for toxicity; just tolerance, so if your waste becomes oily, back off a little, or break it up into smaller more frequent doses.

     

    Celiacs are notoriously Magnesium deficient, so I would say more than the 400mg is recommended. Yes, too much AT ONCE can cause diarrhea, so avoid liquid preparations (which taste hideous anyway). Go with a chelated preparation. Almost all Calcium pills will have Magnesium as well in a roughly 2:1 ratio, as well as 200 IU Vit D. The problem with this for celiacs is that calcium and magnesium compete for the same ion channels in the cell. So, take additional magnesium (chelation increases the number of absorption pathways available to a nutrient). 200-400 mg 1/day. You can even split this up so that you take the Calcium supplement in the am, and the magnesium in the pm; it might just help you sleep too.

     

    You don't really need much more D if at all from the above; the liver makes it in storage form and you store it in the skin. Sunlight activates it, so 20 min/day of just arms & face exposure is adequate. So if you are very sick, calcium deficient and it is winter in a cold climate, Vit D supplementation above that 200 may be needed, but not much. Darker skinned folks are at a bigger risk of needing D than caucasions.

    Any source of EFAs is good. Flax oil is probably the best generic one, and easily available. You can also by flax meal, and add to your home gluten-free baked goods.

     

    All your vitamin pills should be in a capsule form. This is the powder encased in a clear capsule. Liqui-gels are even better if you can find them. Avoid tablets; they are hardest to digest, and if you are a celiac, you might as well eat your money! Also avoid liquids (drinkable preps); they are highly absorbable, but if you gut is 'handicapped' it won't be able to react fast enough to utilize them. Also all vitamins should be taken with food; even if it is just a swig of milk, for best utilization. The papain however should be taken on an empty stomach unless you want it to help you digest your food.

     

    Also don't waste your money on any 'dry' or 'water soluble' A, D or E vitamins. The logic of chemistry is that if they are made this way, they are no longer the vitamin you need. The plain old oil caps are the best and cheapest.

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    Guest Elaine

    Posted

    Thank you, thank you for taking the time to give a program that may help!

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    Guest Hanson

    Posted

    I am just learning how to eat gluten free . Need all the help I can get

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    I've been diagnosed celiac for a year now. It's been a rough road. Figuring out what else my body needs balancing the damage that had occurred. But I am wondering if you have celiac, if it can develop, or if your born with it, and how will it affect my future children? Should I just have them avoid it too?

    This was very helpful and GREATLY appreciated. Bless you.

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    Guest *pinky*

    Posted

    Why it's good in fairness. Wish there was a cure for coeliac disease though. I t can get depressing as well as annoying when you're out or in school and you cant eat anything because it contains gluten or might contain gluten. I'm 17 and I have to deal with this. Unfair.

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    Guest Ban Chan

    Posted

    This is extremely useful information to one who is confused and lost about what to do when suffering with this condition.

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    Guest Shelia

    Posted

    Some notes on the herbs and supplements from someone who has studied and used 'alternatives' for the last 15y:

     

    The part of the above 'Roberts Formula' that helps recovery is the Slippery Elm and Marshmallow, which are used to sooth inflamed tissues; commonly in sore throat preparations. Licorice is another good one, but not if you have high blood pressure, and only take it for a short time. Another good gut soother is enteric coated peppermint.

     

    However Echinacea is a T-cell 'booster' and contraindicated for anyone with an auto-immune disorder. Celiacs, therefore should steer clear of it. Goldenseal is an all around anti viral/bacterial/parasitic and is hard on your liver, which is why you should not take it for very long, however still a very useful cold remedy. Like any other anti-bacterial, you should follow your treatment with a beneficial bacterial preparation. You can do this with either a pill, or a good quality yogurt or kefir. Read the labels; the more species listed the better, and of course avoid the Modified Food Starch. For Americans, LifeWay kefir or Horizon yogurt are good choices. These good bacteria are also helpful to form that healing 'slime' spoken of. If you have been experiencing any kind of bowel troubles, whether it is '24 hour stomach flu' or celiac-sprue, those bacteria have been depleted from that condidion. Also maintaining a healthy colony of beneficial bacteria in your gut acts as a barrier for any harmful organisms to take hold, including candida (Yeast infection). A daily dose of your favorite fruit flavored Kefir will do the body; especially the celiac one; a lot of good. If you are lactose intolerant, you should still be able to take this; the bacteria will happily oblige you in digesting all the lactose.

     

    The purpose of the medicinal clay is to absorb toxins, but it doesn't discriminate against vitamins, so if you use the clay, use it for a week or so at a time, and do not supplement, otherwise you are wasting your money.

     

    Also if you intend on taking the 5000 mg of Vit C, work up to it slowly, 500mg/day increase each day from either a starting amount of 500mg, or whatever you currently take. Large doses can be a shock and may give you diarrhea. Everone has a different tolerance for this, but if you don't know yours, it won't hurt to take it slow.

     

    Vit A is indeed the most toxic of the vitamins, but the average person can safely take 5000 IU of activated A (retinyl palmitate) per day. A therapeutic dose is more like 10,000 to 20,000 IU /day UNLESS YOU ARE PREGNANT OR AT RISK OF PREGNANCY then stick to the 5,000 max. Beta Carotene is the un-activated version of Vit. A. There is no upper dose of that, and can be found in great abundance in any colored vegetable/fruit, so don't waste your money on a pill; just go to the produce dept. You store Beta Carotene in your skin, and the liver retreives it and turns it into active Vit A 'as needed'. Part of the reason why Vit A is toxic, is that it is fat soluable so your body stores it instead of passing it like it will water-soluable B vitamins. That means to be safe, you should not engage in a therapeutic dose past the time you need the therapy.

     

    Vit E is used in building the cell walls of every cell in the body, and is our most basic defense against 'free radicals'. 400 IU/day is the dose recommended for a healthy adult. For healing and tissue repair, you can easily double that. Although fat soluable, there is no known upper limit for toxicity; just tolerance, so if your waste becomes oily, back off a little, or break it up into smaller more frequent doses.

     

    Celiacs are notoriously Magnesium deficient, so I would say more than the 400mg is recommended. Yes, too much AT ONCE can cause diarrhea, so avoid liquid preparations (which taste hideous anyway). Go with a chelated preparation. Almost all Calcium pills will have Magnesium as well in a roughly 2:1 ratio, as well as 200 IU Vit D. The problem with this for celiacs is that calcium and magnesium compete for the same ion channels in the cell. So, take additional magnesium (chelation increases the number of absorption pathways available to a nutrient). 200-400 mg 1/day. You can even split this up so that you take the Calcium supplement in the am, and the magnesium in the pm; it might just help you sleep too.

     

    You don't really need much more D if at all from the above; the liver makes it in storage form and you store it in the skin. Sunlight activates it, so 20 min/day of just arms & face exposure is adequate. So if you are very sick, calcium deficient and it is winter in a cold climate, Vit D supplementation above that 200 may be needed, but not much. Darker skinned folks are at a bigger risk of needing D than caucasions.

    Any source of EFAs is good. Flax oil is probably the best generic one, and easily available. You can also by flax meal, and add to your home gluten-free baked goods.

     

    All your vitamin pills should be in a capsule form. This is the powder encased in a clear capsule. Liqui-gels are even better if you can find them. Avoid tablets; they are hardest to digest, and if you are a celiac, you might as well eat your money! Also avoid liquids (drinkable preps); they are highly absorbable, but if you gut is 'handicapped' it won't be able to react fast enough to utilize them. Also all vitamins should be taken with food; even if it is just a swig of milk, for best utilization. The papain however should be taken on an empty stomach unless you want it to help you digest your food.

     

    Also don't waste your money on any 'dry' or 'water soluble' A, D or E vitamins. The logic of chemistry is that if they are made this way, they are no longer the vitamin you need. The plain old oil caps are the best and cheapest.

    Great Info Thank you.

    Share this comment


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    Some notes on the herbs and supplements from someone who has studied and used 'alternatives' for the last 15y:

     

    The part of the above 'Roberts Formula' that helps recovery is the Slippery Elm and Marshmallow, which are used to sooth inflamed tissues; commonly in sore throat preparations. Licorice is another good one, but not if you have high blood pressure, and only take it for a short time. Another good gut soother is enteric coated peppermint.

     

    However Echinacea is a T-cell 'booster' and contraindicated for anyone with an auto-immune disorder. Celiacs, therefore should steer clear of it. Goldenseal is an all around anti viral/bacterial/parasitic and is hard on your liver, which is why you should not take it for very long, however still a very useful cold remedy. Like any other anti-bacterial, you should follow your treatment with a beneficial bacterial preparation. You can do this with either a pill, or a good quality yogurt or kefir. Read the labels; the more species listed the better, and of course avoid the Modified Food Starch. For Americans, LifeWay kefir or Horizon yogurt are good choices. These good bacteria are also helpful to form that healing 'slime' spoken of. If you have been experiencing any kind of bowel troubles, whether it is '24 hour stomach flu' or celiac-sprue, those bacteria have been depleted from that condidion. Also maintaining a healthy colony of beneficial bacteria in your gut acts as a barrier for any harmful organisms to take hold, including candida (Yeast infection). A daily dose of your favorite fruit flavored Kefir will do the body; especially the celiac one; a lot of good. If you are lactose intolerant, you should still be able to take this; the bacteria will happily oblige you in digesting all the lactose.

     

    The purpose of the medicinal clay is to absorb toxins, but it doesn't discriminate against vitamins, so if you use the clay, use it for a week or so at a time, and do not supplement, otherwise you are wasting your money.

     

    Also if you intend on taking the 5000 mg of Vit C, work up to it slowly, 500mg/day increase each day from either a starting amount of 500mg, or whatever you currently take. Large doses can be a shock and may give you diarrhea. Everone has a different tolerance for this, but if you don't know yours, it won't hurt to take it slow.

     

    Vit A is indeed the most toxic of the vitamins, but the average person can safely take 5000 IU of activated A (retinyl palmitate) per day. A therapeutic dose is more like 10,000 to 20,000 IU /day UNLESS YOU ARE PREGNANT OR AT RISK OF PREGNANCY then stick to the 5,000 max. Beta Carotene is the un-activated version of Vit. A. There is no upper dose of that, and can be found in great abundance in any colored vegetable/fruit, so don't waste your money on a pill; just go to the produce dept. You store Beta Carotene in your skin, and the liver retreives it and turns it into active Vit A 'as needed'. Part of the reason why Vit A is toxic, is that it is fat soluable so your body stores it instead of passing it like it will water-soluable B vitamins. That means to be safe, you should not engage in a therapeutic dose past the time you need the therapy.

     

    Vit E is used in building the cell walls of every cell in the body, and is our most basic defense against 'free radicals'. 400 IU/day is the dose recommended for a healthy adult. For healing and tissue repair, you can easily double that. Although fat soluable, there is no known upper limit for toxicity; just tolerance, so if your waste becomes oily, back off a little, or break it up into smaller more frequent doses.

     

    Celiacs are notoriously Magnesium deficient, so I would say more than the 400mg is recommended. Yes, too much AT ONCE can cause diarrhea, so avoid liquid preparations (which taste hideous anyway). Go with a chelated preparation. Almost all Calcium pills will have Magnesium as well in a roughly 2:1 ratio, as well as 200 IU Vit D. The problem with this for celiacs is that calcium and magnesium compete for the same ion channels in the cell. So, take additional magnesium (chelation increases the number of absorption pathways available to a nutrient). 200-400 mg 1/day. You can even split this up so that you take the Calcium supplement in the am, and the magnesium in the pm; it might just help you sleep too.

     

    You don't really need much more D if at all from the above; the liver makes it in storage form and you store it in the skin. Sunlight activates it, so 20 min/day of just arms & face exposure is adequate. So if you are very sick, calcium deficient and it is winter in a cold climate, Vit D supplementation above that 200 may be needed, but not much. Darker skinned folks are at a bigger risk of needing D than caucasions.

    Any source of EFAs is good. Flax oil is probably the best generic one, and easily available. You can also by flax meal, and add to your home gluten-free baked goods.

     

    All your vitamin pills should be in a capsule form. This is the powder encased in a clear capsule. Liqui-gels are even better if you can find them. Avoid tablets; they are hardest to digest, and if you are a celiac, you might as well eat your money! Also avoid liquids (drinkable preps); they are highly absorbable, but if you gut is 'handicapped' it won't be able to react fast enough to utilize them. Also all vitamins should be taken with food; even if it is just a swig of milk, for best utilization. The papain however should be taken on an empty stomach unless you want it to help you digest your food.

     

    Also don't waste your money on any 'dry' or 'water soluble' A, D or E vitamins. The logic of chemistry is that if they are made this way, they are no longer the vitamin you need. The plain old oil caps are the best and cheapest.

    Leigh, some comments regarding your advice on the supplements recommended for celiacs.

    Echinacea has dramatically reduced the incidences of flu and colds my celiac daughter experiences. She was sick every 2nd week and now never sick with flu or cold, echinacea is well tolerated by her, as a daily supplement during flu season.

    Vitamin D is essential for anyone not living near the equator per Dr. Vieth of the University of Toronto, he has studied vitamin D for 30 years.

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    Guest Bertha Gonzalez

    Posted

    I was diagnosed with celiac in 1995, and so far this article has been the only helpful one that I have read.

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    Guest stephie

    Posted

    Good information I am having tests at the moment to check if I have celiac. Thank you.

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    Guest Heather

    Posted

    Excellent info. Dialog is so beneficial. Celiacs, like Hypothyroidism, will get more manageable as we share the details of what works for each of us. With both conditions, it seems there is quite a bit we can do for ourselves that most mainstream docs are either ignorant of or unwilling to explore. Read, research and share. Patient heal thyself? Certainly not in every case, but arm yourself with as much info as possible when talking to a doc. And if you aren't getting relief, find another one.

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    Guest Anand

    Posted

    I am just learning how to eat gluten free.

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    Guest Pauline

    Posted

    I just found out I have celiac disease. I have no symptoms, feel great and I am extremely healthy and lead a very healthy lifestyle. How can I have this disease and feel this good!!!

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    Guest CherryBLOSSom

    Posted

    Some notes on the herbs and supplements from someone who has studied and used 'alternatives' for the last 15y:

     

    The part of the above 'Roberts Formula' that helps recovery is the Slippery Elm and Marshmallow, which are used to sooth inflamed tissues; commonly in sore throat preparations. Licorice is another good one, but not if you have high blood pressure, and only take it for a short time. Another good gut soother is enteric coated peppermint.

     

    However Echinacea is a T-cell 'booster' and contraindicated for anyone with an auto-immune disorder. Celiacs, therefore should steer clear of it. Goldenseal is an all around anti viral/bacterial/parasitic and is hard on your liver, which is why you should not take it for very long, however still a very useful cold remedy. Like any other anti-bacterial, you should follow your treatment with a beneficial bacterial preparation. You can do this with either a pill, or a good quality yogurt or kefir. Read the labels; the more species listed the better, and of course avoid the Modified Food Starch. For Americans, LifeWay kefir or Horizon yogurt are good choices. These good bacteria are also helpful to form that healing 'slime' spoken of. If you have been experiencing any kind of bowel troubles, whether it is '24 hour stomach flu' or celiac-sprue, those bacteria have been depleted from that condidion. Also maintaining a healthy colony of beneficial bacteria in your gut acts as a barrier for any harmful organisms to take hold, including candida (Yeast infection). A daily dose of your favorite fruit flavored Kefir will do the body; especially the celiac one; a lot of good. If you are lactose intolerant, you should still be able to take this; the bacteria will happily oblige you in digesting all the lactose.

     

    The purpose of the medicinal clay is to absorb toxins, but it doesn't discriminate against vitamins, so if you use the clay, use it for a week or so at a time, and do not supplement, otherwise you are wasting your money.

     

    Also if you intend on taking the 5000 mg of Vit C, work up to it slowly, 500mg/day increase each day from either a starting amount of 500mg, or whatever you currently take. Large doses can be a shock and may give you diarrhea. Everone has a different tolerance for this, but if you don't know yours, it won't hurt to take it slow.

     

    Vit A is indeed the most toxic of the vitamins, but the average person can safely take 5000 IU of activated A (retinyl palmitate) per day. A therapeutic dose is more like 10,000 to 20,000 IU /day UNLESS YOU ARE PREGNANT OR AT RISK OF PREGNANCY then stick to the 5,000 max. Beta Carotene is the un-activated version of Vit. A. There is no upper dose of that, and can be found in great abundance in any colored vegetable/fruit, so don't waste your money on a pill; just go to the produce dept. You store Beta Carotene in your skin, and the liver retreives it and turns it into active Vit A 'as needed'. Part of the reason why Vit A is toxic, is that it is fat soluable so your body stores it instead of passing it like it will water-soluable B vitamins. That means to be safe, you should not engage in a therapeutic dose past the time you need the therapy.

     

    Vit E is used in building the cell walls of every cell in the body, and is our most basic defense against 'free radicals'. 400 IU/day is the dose recommended for a healthy adult. For healing and tissue repair, you can easily double that. Although fat soluable, there is no known upper limit for toxicity; just tolerance, so if your waste becomes oily, back off a little, or break it up into smaller more frequent doses.

     

    Celiacs are notoriously Magnesium deficient, so I would say more than the 400mg is recommended. Yes, too much AT ONCE can cause diarrhea, so avoid liquid preparations (which taste hideous anyway). Go with a chelated preparation. Almost all Calcium pills will have Magnesium as well in a roughly 2:1 ratio, as well as 200 IU Vit D. The problem with this for celiacs is that calcium and magnesium compete for the same ion channels in the cell. So, take additional magnesium (chelation increases the number of absorption pathways available to a nutrient). 200-400 mg 1/day. You can even split this up so that you take the Calcium supplement in the am, and the magnesium in the pm; it might just help you sleep too.

     

    You don't really need much more D if at all from the above; the liver makes it in storage form and you store it in the skin. Sunlight activates it, so 20 min/day of just arms & face exposure is adequate. So if you are very sick, calcium deficient and it is winter in a cold climate, Vit D supplementation above that 200 may be needed, but not much. Darker skinned folks are at a bigger risk of needing D than caucasions.

    Any source of EFAs is good. Flax oil is probably the best generic one, and easily available. You can also by flax meal, and add to your home gluten-free baked goods.

     

    All your vitamin pills should be in a capsule form. This is the powder encased in a clear capsule. Liqui-gels are even better if you can find them. Avoid tablets; they are hardest to digest, and if you are a celiac, you might as well eat your money! Also avoid liquids (drinkable preps); they are highly absorbable, but if you gut is 'handicapped' it won't be able to react fast enough to utilize them. Also all vitamins should be taken with food; even if it is just a swig of milk, for best utilization. The papain however should be taken on an empty stomach unless you want it to help you digest your food.

     

    Also don't waste your money on any 'dry' or 'water soluble' A, D or E vitamins. The logic of chemistry is that if they are made this way, they are no longer the vitamin you need. The plain old oil caps are the best and cheapest.

    Great information, thank you. Just a comment to those who are doing this reading to try and figure out what is wrong with their health, I came down with 3 nasty viruses (Ross River, then strep throat which caused rheumatic fever). After this I was very sick and it is now 3 years after and I have just started feeling energy on a gluten-free diet. I have read that viruses, illness or increased stress can make this disease become active in you. I believe that this is what has happened to me because very gradually I have started to feel that this diet is helping. Please try it for yourself, even if you have a negative blood test. Doctors have not suggested that this is wrong and keep going back to a diagnosis that I have chronic fatigue and fibromyalgia. I say that these are symptoms and not an illness. Keep trying to work it out and give the gluten-free a SERIOUS effort. I.e. don't eat any at all for at least three months to test if it makes you feel better.

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    Guest Judith

    Posted

    This article is terrific but what about older celiacs who have been on the diet for 50 years? How about vitamin deficiencies in us? I have dry eyes, which nothing helps except ribloflavin for now and hopefully forever, as it is very annoying, unpleasant and painful. There should be more articles for us older celiacs.

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    Some notes on the herbs and supplements from someone who has studied and used 'alternatives' for the last 15y:

     

    The part of the above 'Roberts Formula' that helps recovery is the Slippery Elm and Marshmallow, which are used to sooth inflamed tissues; commonly in sore throat preparations. Licorice is another good one, but not if you have high blood pressure, and only take it for a short time. Another good gut soother is enteric coated peppermint.

     

    However Echinacea is a T-cell 'booster' and contraindicated for anyone with an auto-immune disorder. Celiacs, therefore should steer clear of it. Goldenseal is an all around anti viral/bacterial/parasitic and is hard on your liver, which is why you should not take it for very long, however still a very useful cold remedy. Like any other anti-bacterial, you should follow your treatment with a beneficial bacterial preparation. You can do this with either a pill, or a good quality yogurt or kefir. Read the labels; the more species listed the better, and of course avoid the Modified Food Starch. For Americans, LifeWay kefir or Horizon yogurt are good choices. These good bacteria are also helpful to form that healing 'slime' spoken of. If you have been experiencing any kind of bowel troubles, whether it is '24 hour stomach flu' or celiac-sprue, those bacteria have been depleted from that condidion. Also maintaining a healthy colony of beneficial bacteria in your gut acts as a barrier for any harmful organisms to take hold, including candida (Yeast infection). A daily dose of your favorite fruit flavored Kefir will do the body; especially the celiac one; a lot of good. If you are lactose intolerant, you should still be able to take this; the bacteria will happily oblige you in digesting all the lactose.

     

    The purpose of the medicinal clay is to absorb toxins, but it doesn't discriminate against vitamins, so if you use the clay, use it for a week or so at a time, and do not supplement, otherwise you are wasting your money.

     

    Also if you intend on taking the 5000 mg of Vit C, work up to it slowly, 500mg/day increase each day from either a starting amount of 500mg, or whatever you currently take. Large doses can be a shock and may give you diarrhea. Everone has a different tolerance for this, but if you don't know yours, it won't hurt to take it slow.

     

    Vit A is indeed the most toxic of the vitamins, but the average person can safely take 5000 IU of activated A (retinyl palmitate) per day. A therapeutic dose is more like 10,000 to 20,000 IU /day UNLESS YOU ARE PREGNANT OR AT RISK OF PREGNANCY then stick to the 5,000 max. Beta Carotene is the un-activated version of Vit. A. There is no upper dose of that, and can be found in great abundance in any colored vegetable/fruit, so don't waste your money on a pill; just go to the produce dept. You store Beta Carotene in your skin, and the liver retreives it and turns it into active Vit A 'as needed'. Part of the reason why Vit A is toxic, is that it is fat soluable so your body stores it instead of passing it like it will water-soluable B vitamins. That means to be safe, you should not engage in a therapeutic dose past the time you need the therapy.

     

    Vit E is used in building the cell walls of every cell in the body, and is our most basic defense against 'free radicals'. 400 IU/day is the dose recommended for a healthy adult. For healing and tissue repair, you can easily double that. Although fat soluable, there is no known upper limit for toxicity; just tolerance, so if your waste becomes oily, back off a little, or break it up into smaller more frequent doses.

     

    Celiacs are notoriously Magnesium deficient, so I would say more than the 400mg is recommended. Yes, too much AT ONCE can cause diarrhea, so avoid liquid preparations (which taste hideous anyway). Go with a chelated preparation. Almost all Calcium pills will have Magnesium as well in a roughly 2:1 ratio, as well as 200 IU Vit D. The problem with this for celiacs is that calcium and magnesium compete for the same ion channels in the cell. So, take additional magnesium (chelation increases the number of absorption pathways available to a nutrient). 200-400 mg 1/day. You can even split this up so that you take the Calcium supplement in the am, and the magnesium in the pm; it might just help you sleep too.

     

    You don't really need much more D if at all from the above; the liver makes it in storage form and you store it in the skin. Sunlight activates it, so 20 min/day of just arms & face exposure is adequate. So if you are very sick, calcium deficient and it is winter in a cold climate, Vit D supplementation above that 200 may be needed, but not much. Darker skinned folks are at a bigger risk of needing D than caucasions.

    Any source of EFAs is good. Flax oil is probably the best generic one, and easily available. You can also by flax meal, and add to your home gluten-free baked goods.

     

    All your vitamin pills should be in a capsule form. This is the powder encased in a clear capsule. Liqui-gels are even better if you can find them. Avoid tablets; they are hardest to digest, and if you are a celiac, you might as well eat your money! Also avoid liquids (drinkable preps); they are highly absorbable, but if you gut is 'handicapped' it won't be able to react fast enough to utilize them. Also all vitamins should be taken with food; even if it is just a swig of milk, for best utilization. The papain however should be taken on an empty stomach unless you want it to help you digest your food.

     

    Also don't waste your money on any 'dry' or 'water soluble' A, D or E vitamins. The logic of chemistry is that if they are made this way, they are no longer the vitamin you need. The plain old oil caps are the best and cheapest.

    I am a celiac and your information is great help! Thank you!

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    The specific carbohydrate Diet and GAPS diet books are a must-read for anyone with celiac, allergies, auto-immune or digestive issues. It is the only hope I have come across for reversing the condition so that gluten, etc. is tolerable again (takes at least one year). There are lots of resources out there to make it easier to follow the SCD/GAPS diet. Done properly, it is very nourishing. Many cognitive, psychiatric issues also stand to improve dramatically.

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    Guest isabel

    Posted

    Very interesting. I have been eating gluten-free for 4 months and feel no benefit yet. I'm struggling with fatigue, depression and boring food. Will definitely look into more vitamins as I have also suffered 30 years with Crohn's disease and now FODMAPS. Sadly, through all these years I have continued to be grossly obese, so I am rarely taken seriously by doctors when describing constant diarrhea and pains and zero energy. Thanks for the info.

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    Guest michael

    Posted

    Isabel, my wife, has MS and is on a no gluten, dairy or sugar diet. I understand that your food can be boring, but there are alternatives. Check out Chef Chloe's website. My wife loves her cookbooks; she now gets excited about cooking again.

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    Guest Christy

    Posted

    Celiac disease is not an intolerance, it's an autoimmune disease and is genetic. This info needs to be updated desperately!

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    I just found out I have celiac disease. I have no symptoms, feel great and I am extremely healthy and lead a very healthy lifestyle. How can I have this disease and feel this good!!!

    Hi Pauline, I was exactly the same. No symptoms at all--my disease was diagnosed after I was found to be anemic. It is very important however to follow a gluten free diet for your future health. Good luck.

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    In 1994 I was diagnosed with celiac disease, which led me to create Celiac.com in 1995. I created this site for a single purpose: To help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. Celiac.com was the first site on the Internet dedicated solely to celiac disease. In 1998 I founded The Gluten-Free Mall, Your Special Diet Superstore!, and I am the co-author of the book Cereal Killers, and founder and publisher of Journal of Gluten Sensitivity.

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    Scott Adams
    Celiac disease is a permanent (lifelong) condition which affects genetically predisposed individuals who are exposed to gluten and related products from rye, barley and oats. Once the diagnosis has been confirmed there is absolutely no indication for periodically undertaking a gluten challenge. It is well known that patients with celiac disease who start ingesting gluten again after having been on a gluten free diet may go for years without apparently having any symptoms. Despite this there will be ongoing histological damage to the intestines. It was this apparent prolonged symptom free state that led doctors in the past to believe that people could grow out out of the condition. This is no longer accepted as correct.
    Dr. Ivor Dennis Hill left the University of Baltimore and is now in North Carolina. He is the Chief of the Division of Pediatric Gastroenterology and Nutrition, Bowman Gray School of Medicine, Winston-Salem. His new phone number is (910) 716 4431. As such he will be very involved in all aspects of Clinical Pediatric Gastroenterology. Dr. Hill has every intention of continuing his work with celiac disease and sees this as an opportunity to open another center of interest. Colleagues at Duke and Chapel Hill are keen to join Dr. Hill in a Pediatric Gastroenterology Group.

    Dr. Scot Lewey
    Celiac.com 04/24/2008 - Genetic tests for celiac disease and gluten sensitivity are readily available. Testing can be performed on either blood and mouth swab samples. If the testing is performed by certain laboratories not only will you have quite an accurate prediction of your risk of Celiac disease but also you may have information about the statistical probability that your children will inherit the risk, your likelihood of more severe Celiac disease, whether one or both of your parents had the risk gene, and for some laboratories you may determine your risk of gluten sensitivity without Celiac disease.
    The absence of any portion of the high-risk genetic patterns DQ2 and DQ8 nearly excludes the possibility of celiac disease with an approximate accuracy of 99.9%. However, there is a big caveat about relying on "negative celiac genetic testing". To definitively declare you have negative celiac genetic tests requires that the laboratory test for and report the presence or absence of the entire HLA DQ genetic pattern, including both alpha and beta subunits. The DQ genetic patterns DQ2 and DQ8 have two subunits but some laboratories only test for the beta subunit. This DQ typing is complicated and difficult to understand even by physicians and scientists. I have written an updated detailed review that appears in the Spring 2008 issue of Scott-Free newsletter published by celiac.com.
    Data collected by Dr. Ken Fine of Enterolab has supported the well-known fact that the absence of DQ2 and DQ8 does not exclude the risk of being gluten intolerance or sensitive though it now generally believed that one or both of those genetic white blood cell patterns are required to develop the autoimmune disorder known as Celiac disease or Celiac Sprue. However, there is a new study that reports that being negative for DQ2 and DQ8 does not completely exclude the possibility of celiac disease, especially in men. Previous studies have well documented blood test negative Celiac Sprue, also more common in elderly men with long-standing severe disease. Since DQ2 or DQ8 is almost universally present with the specific blood tests tissue transglutaminase and anti-endomysial antibodies are present it is not surprising that individuals without DQ2 or DQ8 that are negative for these two blood tests are being reported that meet criteria for Celiac disease.
    These new studies are also providing further information that the genetics of Celiac is gender specific. If you are a man, your risk of celiac disease may be higher than a woman if you don't have the classic genetic patterns. Again, in this situation your blood tests may be negative. If you are a woman, the risk for Celiac disease is generally higher than a man, especially if you have received the at risk gene from your father instead of your mother.
    Celiac is arguably the most common autoimmune disease. It is very common. It is easily treated. It affects 1/100 people worldwide. However, most people with celiac disease (~90%) are unaware, undiagnosed or misdiagnosed. Most adults finally diagnosed with celiac disease have suffered at least 10-11 years and have seen more than 3 or more doctors. Genetic testing is not only available but can be extremely helpful in determining your risk of developing Celiac disease, how severe it may be and the risk of your family members. Don't be one of those whose diagnosis is missed or needlessly delayed for over a decade. Get tested! Learn about the genetic tests for Celiac disease and if necessary educate your doctor about this testing.
    Here are ten facts you should know and remember about Celiac genetic testing.

    Genetic testing can help determine your risk as well as your children's risk. Celiac genetic tests can be done on blood or a mouth swab sample but your doctor may be unaware of the tests, not know how to order them, or know how to interpret the results. Genetic testing is not affected by diet. You can be eating gluten or on a gluten free diet. Blood tests for celiac disease antibodies, however, need to be done while eating gluten. They can become negative within a few weeks of restricting gluten so if you are going to get the diagnostic antibody blood tests don't begin a gluten free or restricted diet before being tested. Some insurance companies do not for the Celiac genetic test and almost all who do require pre-authorization first. The following diagnostic codes are helpful when requesting insurance coverage: 579.0 (Celiac disease); V18.59 (family history of GI disease); and/or V84.89 (genetic susceptibility to disease). Some laboratories do not perform the all of the necessary components of the test to completely exclude the possible genetic risk of Celiac disease and most don't test for or report the other gluten sensitive DQ patterns. Before you accept that have a negative test you need to know if your test included both the alpha and beta subunits of HLA DQ or did they just perform the beta typing. In some rare individuals, especially some men, a negative genetic test may not exclude the possibility of celiac disease anymore than a negative blood test. Men more commonly have negative genetic tests and blood tests, especially older men with long-standing severe disease. Both the DQ type, and number of copies you have, matter when determining not only your risk but also the possible severity of celiac disease. Two copies of DQ2 carries more risk than one copy of DQ8 or only partial DQ2. Even a single copy of DQ2 alpha subunit ("half DQ2 positive") carries risk for celiac disease but most of the commonly used laboratories for Celiac genetics do not test for or report the presence of this component of the celiac genes. The absence of at risk genes DQ2 and/or DQ8 does not exclude the possibility of being gluten intolerant or sensitive. You may respond to a gluten free diet even if you don't have DQ2 or DQ8 or true autoimmune Celiac disease. You can get genetic testing without a doctor's order and the tests can be done without having blood drawn or insurance authorization if you are willing to pay between $150-400 (www.kimballgenetics.com and www.enterolab.com). Laboratories in the U.S. that are known to offer complete alpha and beta subunit genetic testing include Kimball Genetics, Prometheus, and LabCorp. Bonfils, Quest and Enterolab only test for the beta subunit portions and therefore their test can miss part of a minor alpha subunit that carries a risk of Celiac disease. A negative DQ2 and DQ8 report from these labs may not necessarily be truly negative for the risk of Celiac disease.
    References and Resources:
    HLA-DQ and Susceptibility to Celiac Disease: Evidence for Gender Differences and Parent-of-Origin Effects. Megiorni F et al. Am Journal Gastroenterol. 2008;103:997-1003. Celiac Genetics. Dr. Scot Lewey. Scott-Free, Spring 2008.


    Jennifer Arrington
    I would hate to add up all the hundreds of dollars I have wasted trying to get healthy.  Now, however, I get healthy by focusing on one thing:  making my intestines healthy.  If my intestines are healthy, I can absorb food.  If I can absorb food, my body will be receiving the nutrition it needs to function, and thus I will be healthy.
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    Jefferson Adams
    Celiac.com 06/23/2018 - If you’re looking for a great gluten-free Mexican-style favorite that is sure to be a big hit at dinner or at your next potluck, try these green chili enchiladas with roasted cauliflower. The recipe calls for chicken, but they are just as delicious when made vegetarian using just the roasted cauliflower. Either way, these enchiladas will disappear fast. Roasted cauliflower gives these green chili chicken enchiladas a deep, smokey flavor that diners are sure to love.
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    Heat 1 tablespoon oil in a cast iron or ovenproof pan until hot.
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    Roxanne Bracknell
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    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
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    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

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    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au