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Just a suggestion: I've had a pain like that under my jaw and down my shoulder on the left side. It was constant. I went to an ear, nose and throat specialist and found it was a blocked saliva gland! The dr. was able to remove it manually. It was a tiny crystal-like block that had plugged the gland. The dr. told me to suck on a lemon or drink plain lemon juice to keep it unplugged and to drink more water. I thought perhaps my experience might help you.
OMG the poor dear! Thankfully your daughter has great parents.
I am happy to hear you laugh about this now I am also glad your daughter was diagnosed early.
Thanks for your story. If I don't laugh at some celiac related things I am afraid that I will become a curmudgeon ! It is such a frustrating disease to have, always explaining, educating, not being taken seriously, being in pain, so many symptoms etc etc.
Have a great evening/day de...